Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,831

  • Joined

  • Last visited

  • Days Won

    65

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    This is an old thread, but as I contributed a while back on this thread, for anyone interested I can definitely confirm that chills (hot, cold, sweats, plus dizziness) is how I react to major gluten exposure (as opposed to cross contamination on a small scale which gives me gastritis like pain). I've now had this happen three times - once when I ate...
  2. cristiana
    I completely missed that one. I just wish I'd insisted my mother had been tested. Thanks so much for sharing.
  3. cristiana
    Wow Scott, that is an astounding statistic! I had no idea. My mother had osteoporosis and was a very anxious type. But of the generation where you "just got on with it" as we like to say here in the UK. I told my parents to get tested when I was tested but nothing came of it.
  4. cristiana
    Charlotte As you say... wise after the event! And you also mention another symptom I had - fainting! I'd forgotten that one. I too was worried about going to the doctor about my anxiety. I did go eventually, but I wish I'd gone sooner. While I was ill like this, physically and mentally, I actually looked unwell so people were asking me how I...
  5. cristiana
    Charlotte Sorry, I think your question was directed at Trents but I thought I'd chime in too! Just to say that my most troubling symptom prior to diagnosis was severe anxiety of the likes I have never known before - my mind would not stop racing, coupled with really disturbing thoughts - plus worsening tingling, twitching and numbness which had been...
  6. cristiana
    Hi Charlotte I am not sure about iron tests outside the NHS. However, one avenue worth exploring may be attending an accredited nutritionalist - we have a very highly qualified one living in our area and she did an additional blood test for me and found my D levels were far from ideal, something the NHS had overlooked. She copied my GP in on the results...
  7. cristiana
    PS.... these symptoms took a while to clear, months in some cases, and during that time I was very anxious which seems only to exacerbate the issues. So try not to panic if there isn't an instant fix, these things take time to heal. Incidentally I spoke to my nutritionalist that I was concerned about MS and she told me she had had a patient who had...
  8. cristiana
    I wonder if you are having problems with all types of nut, or whether it is a particular type of nut that might be causing symptoms? I have to bake a carrot cake once a year for a relative's birthday (I refuse to do it more often as the recipe involves grating vast quantities of carrots!). I have found that when I eat this cake, my stomach burns like mad...
  9. cristiana
    Hi Kyleweber I must admit I felt exactly like you around the time of diagnosis as I was exhibiting and had been for some time some very odd 'nerve' type issues. Waking up with dead arms (pins and needles), muscle twitching, fizzing sensations in my left calf, odd visual disturbances, and other things. I think for me it was to do with massive vitamin...
  10. cristiana
    Hello Charks There's a lot of debate on line about anemia and thinning hair. I don't know what other contributors think or whether they have personally experienced of any link with iron levels, but having read your posts (sorry if I have missed something) I can't see that you have had a test for iron. Might be worth doing. Don't supplement without...
  11. cristiana
    Yes, it sounds likely that you have found the cause. Sounds like it has been a long haul, trying to find the answer. I've been told polcythaemia vera itself is actually very rare but recently discovered a distant cousin has it, even though it isn't meant to be hereditary. I do wonder if years of iron deprivation has had some sort of rebound effect...
  12. cristiana
    This is really helpful, Scott, many thanks. My husband say I snore but my children say it's my husband that snores! My consultant is just keeping an eye on things for the moment. Is a high RBC a variant of polycythemia?
  13. cristiana
    That's so interesting, Scott. Thanks for posting. My blood tests suggest something may be going on there. I've had higher results for RBC, and hematocrit in the past, but my last test showed my haemaglobin was a tad higher than usual. I was aware though before I went in for my test that I was dehydrated, and hadn't drunk enough that morning, so that may...
  14. cristiana
    My blood tests have been interesting since my DX in 2013. I've noticed that at times I have elevated red blood count and wonder if there is an overall upward trend but so far my doctors haven't said anything about it. What is the treatment for high red blood cell count?
  15. cristiana
    I was asked by knitty kitty to keep this updated - my hemoglobin is now 15.7, but my ferritin is 8 as I'm being good and not supplementing iron, as per doctor's instructions! That said I was quite dehydrated when the test was done, so maybe that has a bearing? My doctor isn't concerned but they are keeping an eye on things. When I was in my teens I...
  16. cristiana
    Yes, it's always heartening to meet a fellow sufferer, but a shame for the fellow sufferer all the same! I would give peppermint tea a go, though, if you haven't. Yes, and probiotics aren't always a silver bullet - I had problems with one brand and stopped using them for a while. Hopefully we will both find answers soon.
  17. cristiana
    Hi Mike I suffer from bloating, sometimes upper abdomen, other times lower abdomen so I do sympathaise. However, at the moment my bloating is so extreme that I can feel the gas moving around day and night! I'm now getting sacroiliac pain and brain fog, all the things I had for a long while before and after diagnosis. Couple of questions: Are...
  18. cristiana
    A difficult pain to describe. At times for me it was a dull ache, other times burning. When I had an u/s I was told the pain was where my stomach was. When I am glutened I get the same pain as when I have gastritis, caused by, say, certain antibiotics or aspirin. When I am having a flare I find it really soothing to drink chamomile tea.
  19. cristiana
    Thank you RMJ - as my symptoms are so similar to a reaction to gluten I have suspected this for some time but this is the only place I have seen anything written about it. I'm very grateful for your taking the time to reply. Interestingly the store where I purchased this loaf do list oats in bold text in their ingredients list - which is what they do with...
  20. cristiana
    Hello All I've been feeling really bloated, sore stomach, IBS like symptoms over the last couple of weeks and discovered that I had confused my usual loaf of bread was replaced with one made with pure oat flour. Since my DX in 2013 I've tried pure oats every few months and have concluded that unfortunately I'm just one of those coeliacs that can't eat...
  21. cristiana
    HI Becktoria Just saying hi to a fellow Brit, but also to say I have that pain you describe when I'm having a flare when I've been glutened. I also sometimes get pain in the pelvis, and to the sides of my abdomen - this thing keeps you guessing! All the best with the diagnosis, and if it is Coeliac, I recommend joining Coeliac UK for at least...
  22. cristiana
    Wow! It was my left leg. I was working in France, crazy hours in an auberge, desperate to learn the language so happy to work from 6am to midnight. I was on my feet all day. I think I knocked my leg or something one day and the swelling wouldn't go down. I haven't ever asked to see my doctor's reports of the time but the words 'sticky blood' stuck...
  23. cristiana
    Anita - I'm interested that you have had problems with thrombophlebitis. I had phlebitis when I was a teenager for many months. I was told at the time I had 'sticky' blood. Is your hemoglobin within normal limits? Mine is high normal even though my blood iron is borderline normal.
  24. cristiana
    I had terrific SI joint pain for a long time. It started up with a vengeance around the time of my diagnosis and took a while to subside but it still comes back from time to time. It used to be worse in my left side, now it's on my right side just as I speak. It can be very painful - a sort of tightness, and burning. I also have a weird thing from...
  25. cristiana
    Yes... that extra pressure makes itself felt. In the UK where I live I understand they used to operate quickly if someone developed a hernia but nowadays they tend to leave it until it is necessary. There is always a slight risk that it can quickly turn into an emergency but I've had mine for fourteen years now and it hasn't really altered much.
×
×
  • Create New...