Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,871

  • Joined

  • Last visited

  • Days Won

    71

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Knitty Kitty No... there's not much sun in England at the moment! But I do find changes in temperature really aggravates things, as does exercising outdoors. It's worse under a hot shower. I also notice that my skin really itches when I lie down but it's the places that are actually in contact with the bed or pillow, when my skin warms up....
  2. cristiana
    Yes... I'm beginning to wonder if that's an issue for me. I can't find it now but a story was posted on this site recently about a very sick child whose numbers were stubbornly high until they actually gave up dairy. When I read that I did wonder if dairy had been contributing factor as to why my numbers have taken sooo long to drop. This study is...
  3. cristiana
    I wanted to update this as my problems with itchy skin has progressed. 😓 I treated the itchy scalp problem pretty successfully with coal tar shampoo, and a product called Skin Salvation made with natural products that you can buy here in the UK. Things improved. A few weeks later what looked like a kind of nettle rash on my shoulders. Itchy bu...
  4. cristiana
    I'll be thinking of you, Gemak. I too had young children at the time, it's not easy feeling like this when you have to look after the family. Take things as easy as you can while you are doing the trial - easier said than done, I know. My husband was travelling a lot at that stage of my life so I decided to make no secret of how bad I was feeling when...
  5. cristiana
    Hello again Gemak Around the time of the 2012 Olympics (I'm not an athlete, I just remember it was around then!) I started to suffer from debilitating anxiety. I also started to get hallucinations on waking. Long before that even I was beginning to think I was losing my memory as I went through long stretches of not being able to find the right words...
  6. cristiana
    Hi Keza It takes a while for symptoms to settle, so I'd say that what you are experiencing would not be unusual. You may find it beneficial to cut out dairy at this early stage until your gut has healed properly. I continued to get loose stools and bloating for some time until I gave up dairy. I do consume dairy now but it can still upset me if I...
  7. cristiana
    Hi Gemak I saw the words "UK" in your thread title so I thought I'd chime in as I live in England and so I've been through the UK testing process. I had two tests done by my GP - the Iga and the TTG. I remember being referred to a gastroenterologist and him telling me that the Iga was unconvincing but my TTG was over 100 (then, in 2013, UK readings...
  8. cristiana
    Just to add... H. Pylori is definitely a cause of gastritis but in my case I've had three scopes with multiple samples/biopsies taken and they've never found it. Perhaps it is well hidden! I tend to get gastric symptoms when I'm accidentally glutened, when I take certain medication (anti-biotics and NSAIDS) and also if I over indulge in cake and other rich...
  9. cristiana
    I suffer from this from time to time. I think I may have found the solution for me - that that if I take two or three days of a PPI (omeprazole or similar) it seems to help. I also suffer from gastritis and I think this belching comes before any other symptoms of gastritis become noticeable, in my case a burning stomach.
  10. cristiana
    Scott and Posterboy Sorry to interrupt but do you guys get itchy skin as a symptom of your blood levels? I get this a lot and for years I though it was due to low iron (which I still think it may be as my iron is still very low) BUT I understand it can also be a symptom of high haemaglobin - in my own case, possible polycythemia. Cristiana
  11. cristiana
    I'm so sorry for your loss.
  12. cristiana
    Kate Just to say I was in the pharmacy today and the lady in front of me gets itchy skin every time she has vaccines. She'd obviously just had her Covid shot and had been told by the doctor to just buy some over the counter antihistamines. The pharmacist gave her these, said they are fine to take. https://www.boots.com/boots-one-a-day-allergy...
  13. cristiana
    Hi Kate. I too seem to be getting seasonal allergies . I struggle with gastric issues. My TTG levels have only once been as low as I would like them to be since I was diagnosed in 2013, despite being careful. I also have low iron. I refer to myself as a "creaking gate". But that said, my sister, very close in age to me and in comparatively...
  14. cristiana
    Hi Kate I meant to include this link in my earlier post: https://www.coeliac.org.uk/information-and-support/coronavirus-information-hub/vaccinations/ Coeliac UK is Britain's leading gluten free charity and they have some very helpful information on Coeliac Disease and Covid on their website. I hope this might reassure you. C.
  15. cristiana
    Hi Kate As I understand it, for the most part Coeliacs in the UK are categorised as a more at risk group so are in Group 6. This is to do with spleen issues, a matter that has been covered in other threads. So I was really thrilled to be invited. However, I felt ghastly the week before my jab. I actually thought of postponing it - I was suffering...
  16. cristiana
    Hi Madmom It can be scary. I completely relate. And sometimes I still feel alarmed by some of my pains, and I was diagnosed back in 2013! If I had a pound (dollar) for every time I had a weird twinge I reckon I'd have quite a bit of money by now. Since being diagnosed with coeliac disease I've had some very strange twinges but they have come...
  17. cristiana
    Thanks, Posterboy - it is so kind of you to take the time to share all this. It is so true what you say about supplementation. I saw a fantastic dietitian after my diagnosis and she was a real advocate, but my doctors only told me to try iron supplementation, and that ended when my haemoglobin went too high.
  18. cristiana
    Hello Posterboy Thank you so much for taking the time to write all this down for me, and to share the links. Not being scientific I have to admit I need to look at them in greater depth, and probably with a medical dictionary, but I am very grateful! I've managed to get my B12 levels tested but I don't think my other B's have been tested, apart...
  19. cristiana
    It is good for about 24 hours after the coal tar shampoo. I read on a psoriasis site it was good to wash hair in the evening and I think that works best for me. Yesterday the itching started up again as I went 48 hours without a hair wash, so I would say that the coal tar wash is really helping. I'm also quite surprised at well it suits my hair type. ...
  20. cristiana
    That's fascinating, I think I've heard of Tallow and will see if I can find it here, too. I think in the olden days they used to make candles out of it?!I've never been screened for B2 deficiency - I think I might ask for it. Poor you - the rash sounds awful, I'm so glad that you have found such a helpful treatment.
  21. cristiana
    Hi Icey - I've just passed yet another Thyroid panel (I seem to have so many symptoms, but it's always normal - weird) so I think it must be something else with me. Do you find yours is worse in the winter? Although my skin is dry it is just really very pink, or red when I itch it a lot.
  22. cristiana
    Thanks Kate, so much of what you write is true of me. Definitely a nervous habit, and where we live it's hard water. The hand sanitizer bit is also true as although I don't pour it on my neck, I think having it on my hands when I do scratch has caused issues. I am a bit on edge at the moment with everything that is going on. Getting counselling will be...
  23. cristiana
    Hi Jane... so interesting.... So, out of interest, apart from being super gluten free are there any topical creams that would help?
  24. cristiana
    Icey... you too?! We really must be twins! One pharmacist seemed to think it was psoriasis and told me it was a typical site for it to occur. She told me to try Neutrogena T Gel Coal Tar and actually it seems to be working now but it has taken a week of using it every other day. I read somewhere it is good to wash your hair in the evening and I think...
  25. cristiana
    Thanks for posting this Posterboy. Do you mind me asking, do you have to have blood taken? Personally I don't have excess iron (in fact it is currently at 8 ) but I do seem to have high hemoglobin but at the moment it is just over high normal. My doctor says I shouldn't feel tired with low iron levels if my hemoglobin is "very good" - as he it puts...
×
×
  • Create New...