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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Thanks Kate, so much of what you write is true of me. Definitely a nervous habit, and where we live it's hard water. The hand sanitizer bit is also true as although I don't pour it on my neck, I think having it on my hands when I do scratch has caused issues. I am a bit on edge at the moment with everything that is going on. Getting counselling will be...
  2. cristiana
    Hi Jane... so interesting.... So, out of interest, apart from being super gluten free are there any topical creams that would help?
  3. cristiana
    Icey... you too?! We really must be twins! One pharmacist seemed to think it was psoriasis and told me it was a typical site for it to occur. She told me to try Neutrogena T Gel Coal Tar and actually it seems to be working now but it has taken a week of using it every other day. I read somewhere it is good to wash your hair in the evening and I think...
  4. cristiana
    Thanks for posting this Posterboy. Do you mind me asking, do you have to have blood taken? Personally I don't have excess iron (in fact it is currently at 8 ) but I do seem to have high hemoglobin but at the moment it is just over high normal. My doctor says I shouldn't feel tired with low iron levels if my hemoglobin is "very good" - as he it puts...
  5. cristiana
    JaneWhoLovesRain - great name! (Do you really love rain? I do, most of the time, but here in England we could do with a bit more sun at the moment!) Thank you so much for taking the time to send this in. Until I started this thread, I assumed that people with DH always had it, and it was the rash that finally led to their diagnosis. And as I had...
  6. cristiana
    This is so interesting. "At long last, we finally knew why her numbers had dipped briefly in the aftermath of her diagnosis before climbing back up again—it was because we'd reintroduced her to dairy. Either because of the destruction in her gut from the gluten, or because it was something else she'd been born with, this intolerance to dairy had b...
  7. cristiana
    Hello friends I was DX'd with celiac disease back in 2013 and have been following a gluten-free diet as religiously as I can since then, with a few mistakes along the way. I was v. badly glutened before Christmas and I now have a very itchy rash come up, just on the nape of my neck and just under the hairline. I think it's dermatitis and to do with...
  8. cristiana
    Hi CMCM It's a pattern and yes, my stomach area starts to feel really sore/burn about 2-3 weeks after, although it can be sooner. Thankfully a few days on omeprazole seems to sort it. Very odd.
  9. cristiana
    Hi Scott Thanks so much for sending these really helpful tips. My husband reminded me that I got gastritis type pain about 2-3 weeks after my last major glutening and it's happening again, so very timely. Happy New Year to you too! Cristiana
  10. cristiana
    Hi Kate! Thanks so much for asking about us here in Britain. 😊The scientists announced this evening that they consider 1 in 50 people now have the virus, and of course we have a new mutation that is really driving the numbers through the roof. Sadly for a very long time a sizable minority have been flaunting the rules left right and centre and that ha...
  11. cristiana
    On the gluten front, I have a feeling of being at sea when I am glutened which lasts a good couple of weeks or so after the event. It makes me feel mildly sea-sick, or like when you have been travelling too long in a car, kind of car-sick, and is related to eye movement often. It usually catches me unawares. Sometimes it is mildly nauseating but other...
  12. cristiana
    Happy New Year Friends! A quick question - I was very badly glutened with a slice of cake containing normal flour just before Christmas, served up to be my mistake. My symptoms were really severe this time albeit shortlived. In the early days post-DX a glutening would make me feel sick, with chills, then D, and then I would slowly recover with a...
  13. cristiana
    Do you eat oats (even the "pure" ones, which haven't been contaminated with gluten)? Quite a few celiacs react to the protein avenin - and I'm one of them. If I eat them I'll end up with gastritis-like symptoms and an upset stomach for two to three weeks.
  14. cristiana
    Hello there! I'm just wondering (sorry if I have missed something in your post) if you have been drinking any alcohol? I get gastritis-like symptoms (burning stomach just under sternum, left side of ribs) when gluten sneaks into my diet. I had terrible burning there for months a while back and realised after some time my iron supplement contained gluten...
  15. cristiana
    Perhaps we could try to keep this thread updated as I'm hoping if there are any other similarly affected celiacs they will get in touch and who knows, someone might look into it in more depth. I'm going to ask my gastroenterolgist when I see him for my review if he's ever seen any other cases. Thanks, Scott, and a very Happy Christmas to you, too!
  16. cristiana
    Hi Scott Thank you for posting this. It is strange that you mention supplements as I have been wondering about those myself. I take B12 - just before I was diagnosed my levels were appalling and the difference that supplementing made on nerve issues and anxiety was extraordinary - night and day, totally transformational, so I have continued...
  17. cristiana
    This is an old thread, but as I contributed a while back on this thread, for anyone interested I can definitely confirm that chills (hot, cold, sweats, plus dizziness) is how I react to major gluten exposure (as opposed to cross contamination on a small scale which gives me gastritis like pain). I've now had this happen three times - once when I ate...
  18. cristiana
    I completely missed that one. I just wish I'd insisted my mother had been tested. Thanks so much for sharing.
  19. cristiana
    Wow Scott, that is an astounding statistic! I had no idea. My mother had osteoporosis and was a very anxious type. But of the generation where you "just got on with it" as we like to say here in the UK. I told my parents to get tested when I was tested but nothing came of it.
  20. cristiana
    Charlotte As you say... wise after the event! And you also mention another symptom I had - fainting! I'd forgotten that one. I too was worried about going to the doctor about my anxiety. I did go eventually, but I wish I'd gone sooner. While I was ill like this, physically and mentally, I actually looked unwell so people were asking me how I...
  21. cristiana
    Charlotte Sorry, I think your question was directed at Trents but I thought I'd chime in too! Just to say that my most troubling symptom prior to diagnosis was severe anxiety of the likes I have never known before - my mind would not stop racing, coupled with really disturbing thoughts - plus worsening tingling, twitching and numbness which had been...
  22. cristiana
    Hi Charlotte I am not sure about iron tests outside the NHS. However, one avenue worth exploring may be attending an accredited nutritionalist - we have a very highly qualified one living in our area and she did an additional blood test for me and found my D levels were far from ideal, something the NHS had overlooked. She copied my GP in on the results...
  23. cristiana
    PS.... these symptoms took a while to clear, months in some cases, and during that time I was very anxious which seems only to exacerbate the issues. So try not to panic if there isn't an instant fix, these things take time to heal. Incidentally I spoke to my nutritionalist that I was concerned about MS and she told me she had had a patient who had...
  24. cristiana
    I wonder if you are having problems with all types of nut, or whether it is a particular type of nut that might be causing symptoms? I have to bake a carrot cake once a year for a relative's birthday (I refuse to do it more often as the recipe involves grating vast quantities of carrots!). I have found that when I eat this cake, my stomach burns like mad...
  25. cristiana
    Hi Kyleweber I must admit I felt exactly like you around the time of diagnosis as I was exhibiting and had been for some time some very odd 'nerve' type issues. Waking up with dead arms (pins and needles), muscle twitching, fizzing sensations in my left calf, odd visual disturbances, and other things. I think for me it was to do with massive vitamin...
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