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cristiana

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Everything posted by cristiana

  1. cristiana
    Hi Marina One can have coeliac disease without the antibodies, and that is why sometimes people pursue testing by endoscopy. A friend of mine had symptoms very suggestive of coeliac disease. Her blood tests were negative but she decided to have an endoscopy as her father was a coeliac. In the end the endoscopy was negative too, so she was diagnosed...
  2. cristiana
    If gastritis is part of your problem (I have it as well as coeliac disease) the pain can really be exacerbated by alcohol. C.
  3. cristiana
    I'm not so sure about that, Scott. Each time I play Cluedo (Clue in America?) it comes up a lot as a possible cause of death, in the Kitchen.
  4. cristiana
    Here in our part of olde Englande I dread to think what the Victorian plumbing around us might contain!
  5. cristiana
    I'm having the second Oxford Zeneca vaccine tomorrow and I'm so grateful. My husband still has to wait for his second one (us Coeliacs get preferential treatment here in the UK!) and then we're not sure but we think teenagers may be given a shot in the autumn. They are already saying vulnerable people will need a booster for the new strains come the autumn...
  6. cristiana
    I agree... and I find it all quite confusing. And I learned on my last trip to France... seems a lifetime away now... that things seem much more relaxed in their labelling. With the larger supermarkets in the UK, such as Sainsbury's or M&S, I find if gluten isn't on the label, it's safe. Any chance the food is processed in a factory alongside nuts...
  7. cristiana
    Yes, I've often wondered what the different phrases mean. One other variation we get in the UK is "free from gluten containing ingredients."
  8. cristiana
    Hi Wendy This is an interesting subject. When in doubt, it is always wise to contact the manufacturer. In more recent times I have started to suffer from what my doctor thinks is eczema, but I'm beginning to think that it gets a lot worse after consuming certain foods. I stay off gluten religiously, but it seems to be when I eat too many manufactured...
  9. cristiana
    I seem to recall having had a similar thing happen to me - I am sure I read in my letter following endoscopy that everything looked normal but was told in the same letter the results from the samples would not be known for a while. I had very high tTG so coeliac was suspected, and of course when the samples came back they showed I had coeliac disease....
  10. cristiana
    Hi Smitty I have a feeling in the UK Coeliac UK has an app which alllows you to scan a bar code and it will tell you whether the product contains gluten - or something along those lines. You may wish to have a look at Coeliac UK's website. Cristiana
  11. cristiana
    Hi Marina I've had some very odd neck issues and when I had an MRI once, even to my non-medically trained eyes, I could see my neck was in a right mess! Vertebrae all over the place. My consultant seemed to think that was whiplash related - perhaps so. But now you mention it, long before the whiplash injuries (I've been rear shunted by vehicles twice...
  12. cristiana
    I agree, Trents. And it isn't for want of publicity. One of my relatives is a doctor and he has had lots of information about it sent to him, I guess the problem is doctors have so much else to read and to do. However, I think once a doctor has seen such a case first hand it can make a difference. My own GP never thought of coeliac disease when I...
  13. cristiana
    Hi Marina Oddly enough, I had a similar situation in that my GI issues didn't start for a while after my neurological issues manifested, which were migraines, tingling extremities, numb arms on waking and seeing odd things on waking. I got diarrhea eventually though and that's what led to the tests which led to my diagnosis. It is frustrating as my...
  14. cristiana
    Thanks so much for sending this link, Russ, that's very helpful.
  15. cristiana
    Hello Russ Welcome to the forum. It certainly sounds as if coeliac disease is a real possibility. Over time I've had all but no. 8 of the symptoms you mention. When you say you have not been offered a helpful diagnosis, have you been offered any tests whatsoever? Cristiana
  16. cristiana
    Hi Marina You may wish to check with your doctor but when I was officially diagnosed coeliac in the UK back in 2013 I was told that an official diagnosis would allow me access to a nutritionalist on the NHS as well as regular check-ups (incl. an annual blood test) to check my coeliac numbers, liver function etc, again on the NHS. I don't think I would...
  17. cristiana
    I had to give up milk for a while when I was first diagnosed. I am now able to tolerate it in moderate amounts. While I was healing I was told to try lactose free which of course is cows milk but it didn't help. I couldn't find anything with a similar taste but I tried various replacements and found that I liked almond milk the best, particularly with...
  18. cristiana
    Hi Josh I think quite few of us can relate to that happening - it's SO frustrating being told something, only for the doctor/consultant to be called off somewhere and one is left with a head full of unanswered questions! Trents is absolutely right - not everyone has positive blood tests. I am glad you have a follow-up in ten days' time....
  19. cristiana
    Hi NLR That's really interesting, that sounds so much like the pain I get. And my coeliac friend, similar age, told me she has been having that random sensitivity too. For me, it isn't really that "Ouch, I've eating something cold" like they show in the Sensodyne ads here in the UK. It's a pain that sometimes can be triggered caused by biting onto...
  20. cristiana
    Thanks knitty kitty. I had to go back to see the dentist and it seems it's TMD/TMJ - depending on your nationality. Very odd as I could have absolutely sworn it was my teeth. It felt like appalling dental pain but the weird thing is it was moving around my mouth. He says I have got sensitive teeth already but the jaw issue is just adding to it. ...
  21. cristiana
    Hello everyone I wonder if anyone has had experience of bouts of tooth or gum pain which they think may be related to coeliac disease? I have heard coeliac disease can impact upon our dental health but I'm wondering if actually it is a nerve problem that I have rather than dental. I do have mild neuralgia on the right side of my face which is...
  22. cristiana
    Yes... that 44% rings a bell. But whatever - it definitely worth getting tested. My poor mother had a bad time with her health in later years and she never got tested.
  23. cristiana
    Hi GFinDC That is a very good point. Not meaning to hijack this thread, but do you know what the latest is on chances that a first degree relative has it? When I was diagnosed back in 2013, I was told 1 in 10, but I'm not sure if that still stands? Cristiana
  24. cristiana
    Hi Renee Welcome to the forum! Unfortunately this isn't all that uncommon. There is a lot of ignorance surrounding this condition. I have people in my own circle that have said, in the past, some ridiculously insensitive or ignorant things. However, I've noticed over time they have stopped - partly because I've tried explaining things very sensitively...
  25. cristiana
    Hi there, I agree with everything trents has posted. One other thing - do you if his haemaglobin levels are high? I suffered from phlebitis in my left leg in my teens, most unusual for a teenager apparently, and I was told I had sticky blood. Since then I've had blood tests that reveal just beyond high normal readings for haemaglobin, which most...
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