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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Makoa23 From the UK there is this info for asthma sufferers that might help: https://www.asthma.org.uk/advice/triggers/coronavirus-covid-19/ I would have thought that asthma alone could be an important consideration for you, but in case it helps, here also is a link just posted on the Coeliac UK website: https://www.coeliac.org.uk/information...
  2. cristiana
    Notme! That's great news, much needed at the moment. You have given me hope that one day oats will be back on the menu again. I really miss them!
  3. cristiana
    Couldn't agree more about oats. I used to eat them for England before my diagnosis. Now I get a burning sensation that feels like gastritis (my standard reaction to gluten, too) when I eat more than a few grams, but in my case this is true of pure oats. Apparently some coeliacs react to the avenin which is a protein in oats. Here's some more info from...
  4. cristiana
    Off topic, but I saw something that made me laugh today that I thought I'd share. Well, I suppose it is has a tenuous link as not only have bananas and toilet rolls disappeared. So have summer holidays. It was published in The Times online and someone was posting about post-corovavirus travel. The poster said that he had given his wife a dart, and...
  5. cristiana
    I can't really offer much advice as I've got no qualifications to do so but I just wanted to say hi. Are you in an area which has been badly hit by this yet? I've had to visit a dentists twice and a surgeon in a hospital setting recently. One practitioner wasn't wearing a mask and was coughing away during my consultation.. ? I felt sure I would have...
  6. cristiana
    Well done, glad you got your toilet roll! I managed to pick up four myself! Just one query - is everyone wiping down their groceries when they get home? Because I'm not the only shopper in the house this isn't being done by everyone. I'm wondering how long this virus can stay on bananas, or anything else for that matter. My fear is trying to wipe...
  7. cristiana
    Here in the UK there was a huge amount of panic buying at first but at least in some parts of the country now the toilet rolls and bananas and baked beans are back in the shops and aren't disappearing quite so quickly. So hopefully this will happen where you are. Over here we are being asked to stay indoors, and to only go out if we need to walk the...
  8. cristiana
    If you are also getting a burning stomach, see below an old thread that I began when I had what I thought were gastritis symptoms in 2017. https://www.celiac.com/forums/topic/118711-gastritis-or-glutening-slippery-elm/ Since then, I've had gastritis and reflux at the same time caused by a course of antibiotics for a UTI. The antibiotics felt...
  9. cristiana
    That is interesting. Certainly, my own consultant told me I was immunocompromised as a coeliac (and I believe him in my own case, because I've had a lot wrong with me since long before my diagnosis and even since adopting a gluten-free diet) but I've read so much to the contrary ever since that I'm completely confused. I'm not medically trained so I...
  10. cristiana
    Hi Jim! Thanks for posting that. (My grandmother here in England was a great fan of your programme! I never thought I'd be talking to you like this!) It does sound as if we are not at a severe risk. I know, though, that I don't feel as well as I did before I first fell ill with coeliac disease which makes me wonder if my immune system isn...
  11. cristiana
    This is the latest advice from Coeliac UK, emailed to members today. https://www.coeliac.org.uk/information-and-support/coeliac-disease-and-coronavirus-covid-19/ It seems reduced spleenic function is an important factor affecting up to 30 per cent of us - but as this isn't really tested routinely among coeliacs, it seems we are being encouraged...
  12. cristiana
    I wonder what to make of this? (follow the link and it takes you to vaccinations) https://www.coeliac.org.uk/about-us/media-centre/news/coeliac-disease-and-coronavirus-update/ For the first time this year I was offered the pneumoccal vaccine, alongside my flu vaccine by my National Health Service nurse on the grounds I was a coeliac. I didn't...
  13. cristiana
    This is a great video - thank you. I have to say I feel deeply uneasy in crowded places, so I'm hoping that the UK government will act soon to stop mass gatherings and all those who don't need to commute will stay at home, to help those who still need travel.
  14. cristiana
    From the British Coeliac UK website. https://www.coeliac.org.uk/about-us/media-centre/news/coeliac-disease-and-coronavirus-covid-19/ I would think if it is easy to do so, it would be worth getting this vaccination. Things are just taking off here in the way they did in Italy a month ago.
  15. cristiana
    Hi Laura I'm so pleased you found answers. This is very encouraging. Seven years on from my own diagnosis I wish I could have some vitamin and mineral screening, I'm sure I'm still deficient. Cristiana
  16. cristiana
    Hi Posterboy Thanks so much for posting these helpful links. I do think that PPIs dished out at a drop of a hat here in the UK, but it's important to find out if they are really needed. There have been a few instances when I've been given a PPI prescription. Once I was prescribed omeprazole when I had very sore, burning stomach pain but it turns...
  17. cristiana
    Just by way of conclusion, folks, tests revealed nothing (endoscopy, chest X-ray) so it has been concluded I have silent reflux. Very relieved, but also surprised at how much trouble it has caused! I have actually met someone recently who has been coughing up blood, had all the tests, and she too has had a diagnosis of silent reflux! I've found that...
  18. cristiana
    How funny! I was just online and this notification came up! I'd even forgotten I'd posted it! It's taken over a year for someone to respond - but thank you!☺️ I don't think it can have lasted very long as I'd forgotten all about it. However, my friend has had it for years and now says HRT has helped. I do get sick headaches occasionally and...
  19. cristiana
    Hi RMJ Anyone can have one - the pharmacies provide them - but if you want a free one, paid for by the National Health Service, you have to meet certain criteria: https://www.nhs.uk/conditions/vaccinations/who-should-have-flu-vaccine/#flu-vaccine-for-people-with-medical-conditions The NHS is brilliant, but under great pressure, so a lot of...
  20. cristiana
    Thank you all, things are a lot clearer in my mind now.
  21. cristiana
    I've just found this... it looks as if Coeliac UK are saying the need for flu jabs should be decided on an individual basis. Perhaps rather than assess people on an individual basis, it's just easier to give all us coeliacs the injection! However, there is an interesting bit of information included in this which discusses reduced splenic function ...
  22. cristiana
    Thank you so much everyone for responding. As I see it, then, coeliacs are no more at risk than any other health individual of catching flu? But if that is the case, I wonder why we are given flu shots in the UK, along with diabetics, the elderly, etc? I'm still a bit confused.?? Oh... but just editing this as I have only just seen the info about...
  23. cristiana
    Hello everyone I'm very confused... maybe someone can help?! I'm given flu shots and even this year was offered a pneumonia vaccine because I'm a coeliac and presumably considered to be more vulnerable. When I asked about this the NHS doctors said to me, being a coeliac is an excellent reason to have these injections. And yet this report (it dates...
  24. cristiana
    I'm finding the same - at the beginning I was taking it as and when I needed it which was not what the doctor instructed. She told me to take it four times a day, two puffs each time, and now I'm finding it is really helping. I have bought a wedge which I sleep on but I find I end up slipping off it at night, and sleeping in that position triggers...
  25. cristiana
    It is amazing that your are seeing these results. Great news! I am awaiting biopsy results from my endoscopy to see if there is some sort of allergic reaction going on. I guess if they don't find anything in my esophagus they will need to look at my respiratory tract. I'll keep you posted.
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