cristiana
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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Just by way of conclusion, folks, tests revealed nothing (endoscopy, chest X-ray) so it has been concluded I have silent reflux. Very relieved, but also surprised at how much trouble it has caused! I have actually met someone recently who has been coughing up blood, had all the tests, and she too has had a diagnosis of silent reflux! I've found that...
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How funny! I was just online and this notification came up! I'd even forgotten I'd posted it! It's taken over a year for someone to respond - but thank you!☺️ I don't think it can have lasted very long as I'd forgotten all about it. However, my friend has had it for years and now says HRT has helped. I do get sick headaches occasionally and... -
Hi RMJ Anyone can have one - the pharmacies provide them - but if you want a free one, paid for by the National Health Service, you have to meet certain criteria: https://www.nhs.uk/conditions/vaccinations/who-should-have-flu-vaccine/#flu-vaccine-for-people-with-medical-conditions The NHS is brilliant, but under great pressure, so a lot of...
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Thank you all, things are a lot clearer in my mind now.
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I've just found this... it looks as if Coeliac UK are saying the need for flu jabs should be decided on an individual basis. Perhaps rather than assess people on an individual basis, it's just easier to give all us coeliacs the injection! However, there is an interesting bit of information included in this which discusses reduced splenic function ...
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Thank you so much everyone for responding. As I see it, then, coeliacs are no more at risk than any other health individual of catching flu? But if that is the case, I wonder why we are given flu shots in the UK, along with diabetics, the elderly, etc? I'm still a bit confused.?? Oh... but just editing this as I have only just seen the info about...
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Hello everyone I'm very confused... maybe someone can help?! I'm given flu shots and even this year was offered a pneumonia vaccine because I'm a coeliac and presumably considered to be more vulnerable. When I asked about this the NHS doctors said to me, being a coeliac is an excellent reason to have these injections. And yet this report (it dates...
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I'm finding the same - at the beginning I was taking it as and when I needed it which was not what the doctor instructed. She told me to take it four times a day, two puffs each time, and now I'm finding it is really helping. I have bought a wedge which I sleep on but I find I end up slipping off it at night, and sleeping in that position triggers...
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It is amazing that your are seeing these results. Great news! I am awaiting biopsy results from my endoscopy to see if there is some sort of allergic reaction going on. I guess if they don't find anything in my esophagus they will need to look at my respiratory tract. I'll keep you posted.
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I remember being told once that, words to the effect, celiac disease is a lot more complicated than people realise, and about the "intricacies of a gluten free diet". Now, seven years down the line, I cannot believe how complicated a journey it has been. I don't think the doctors could afford to spend the time explaining the half of it to us! Thank goodness...
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Wow... it sounds like you are getting somewhere! I had to google the condition as I wasn't sure what it was, then I realised that in the UK we call it Glandular Fever. It would explain so much of what you are going through. You must be so relieved to be getting some answers. Thank you so much for your update. I will certainly discuss this with...
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Next question... Still on this thread, assuming that my problems are caused by GERD, when all the websites say avoid chocolate, tomatoes, onion, garlic etc... is this because said ingredients actually irritate an alread irritated esophagus when you swallow them, or is it because they cause extra acid after you have swallowed them? I'm a bit confused...
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Thank you for the tip on zinc. Funnily enough, I was wondering if anything might coat the mucus membranes to help against viruses and infections - you've answered this question. It's also good to know that synthetic A, E and folate can cause cancer. I really need to put some research into decent supplements, and improved nutrition.
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Cyclinglady... that's rather alarming about the OTC, prescription drugs and supplements, I didn't realise. Thank you so much for the heads up on that. We have a system in the UK where you can look for a product licence number on a pharmaceutical product and if there is one, it guarantees that the medication is gluten free. But now I am wondering? It...
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Thank you for posting this, but I'm so sorry you have had this problem for so long. Out of interest, did they say what caused your esophagitis? I've been googling causes and healthline direct (https://www.healthline.com/health/esophagitis#types) states that apart from reflux, it can be caused by eosinophils (what my gastro thinks I have) triggered...
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Yes... and oddly I did see your response and pretty sure I "liked" it - how bizarre. I wonder where it went. I think I need to really up the nutrition and supplements. I've now got a really bad sore throat caused by a virus (it's doing the rounds here) which has added pain to the mix. I have an endoscopy next week but it can't come soon enough! I...
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Knitty Kitty.... this is so so interesting. Some of my blood tests are suggestive of deficiencies. Pre-coeliac diagnosis I was eating bread and breakfast cereals with lots of added vitamins and sometimes iron. Now those same gluten-free foods that I eat have nothing added. There is a Spanish study that shows women with chronic coughs improved...
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Thank you so much ... will do. I've had the X-ray but because it was construed as non-urgent I'll have a couple of weeks to wait. But it is a relief to have just got it out of the way, I've been thinking about having one for many weeks but kept hoping the symptoms would go. It sounds as if you have been on a massive journey with your health. My...
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I totally agree. I have those days when I feel run down and ache all over. And I've been feeling this way on and off since my diagnosis at 45.
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Thank you so much for this, I have been wondering why my own doctors haven't ordered one as it has now been over two months that I've had this discomfort, itchy throat and occasional coughing fit. Your message has given me the confidence to request one today - thank you so much. And I really hope you will have all the answers you need soon. C
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I wonder if the OP is still following this website as I too have found there may be a link with dust/swallowing. My gastro now wants me to be tested for eosinophilic esophagitis. My symptoms have waxed and waned since October - in fact, they were pretty good over Christmas. But recently I've been doing some spring cleaning (panic cleaning!) prior to...
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Hi Carla I got a notification to say that posterboy linked my thread with yours. Sorry for the delay - sometimes things don't end up in my email in tray. How are you doing? I do commiserate, having anything that affects one's breathing/swallowing is distressing and rather depressing. An update... To cut a long story short I took...
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Hi mnburis... just checking if you are still looking at these posts as I'd be interested if there have been any developments in your own circumstances? My own update on this thread is my ferritin is still low (9) but haemoglobin 15.5. I was caught between two doctors and one wanted me to supplement ferritin, the other didn't, and now I'm at 15.5 I've taken...
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Thank you so much for this. I've not heard about that plan so will look it up. I do need to try to eat better myself, and my TTG hasn't been so good since a holiday in France where there was a lot of cc. As I don't feel like eating vast amounts I think this will help immensely.
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Trents... that's such an interesting thought. In fact the theory about the irritation being near the epiglottis and mimicking the "I've to got cough this up" sensation makes so much sense. When I first coughed and spluttered over dry toast, strawberry juice and tomato ketchup, it was in that region of the upper throat, suggesting that's where the irritation...
