cristiana
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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Cyclinglady... that's rather alarming about the OTC, prescription drugs and supplements, I didn't realise. Thank you so much for the heads up on that. We have a system in the UK where you can look for a product licence number on a pharmaceutical product and if there is one, it guarantees that the medication is gluten free. But now I am wondering? It...
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Thank you for posting this, but I'm so sorry you have had this problem for so long. Out of interest, did they say what caused your esophagitis? I've been googling causes and healthline direct (https://www.healthline.com/health/esophagitis#types) states that apart from reflux, it can be caused by eosinophils (what my gastro thinks I have) triggered...
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Yes... and oddly I did see your response and pretty sure I "liked" it - how bizarre. I wonder where it went. I think I need to really up the nutrition and supplements. I've now got a really bad sore throat caused by a virus (it's doing the rounds here) which has added pain to the mix. I have an endoscopy next week but it can't come soon enough! I...
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Knitty Kitty.... this is so so interesting. Some of my blood tests are suggestive of deficiencies. Pre-coeliac diagnosis I was eating bread and breakfast cereals with lots of added vitamins and sometimes iron. Now those same gluten-free foods that I eat have nothing added. There is a Spanish study that shows women with chronic coughs improved...
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Thank you so much ... will do. I've had the X-ray but because it was construed as non-urgent I'll have a couple of weeks to wait. But it is a relief to have just got it out of the way, I've been thinking about having one for many weeks but kept hoping the symptoms would go. It sounds as if you have been on a massive journey with your health. My...
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I totally agree. I have those days when I feel run down and ache all over. And I've been feeling this way on and off since my diagnosis at 45.
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Thank you so much for this, I have been wondering why my own doctors haven't ordered one as it has now been over two months that I've had this discomfort, itchy throat and occasional coughing fit. Your message has given me the confidence to request one today - thank you so much. And I really hope you will have all the answers you need soon. C
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I wonder if the OP is still following this website as I too have found there may be a link with dust/swallowing. My gastro now wants me to be tested for eosinophilic esophagitis. My symptoms have waxed and waned since October - in fact, they were pretty good over Christmas. But recently I've been doing some spring cleaning (panic cleaning!) prior to...
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Hi Carla I got a notification to say that posterboy linked my thread with yours. Sorry for the delay - sometimes things don't end up in my email in tray. How are you doing? I do commiserate, having anything that affects one's breathing/swallowing is distressing and rather depressing. An update... To cut a long story short I took...
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Hi mnburis... just checking if you are still looking at these posts as I'd be interested if there have been any developments in your own circumstances? My own update on this thread is my ferritin is still low (9) but haemoglobin 15.5. I was caught between two doctors and one wanted me to supplement ferritin, the other didn't, and now I'm at 15.5 I've taken...
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Thank you so much for this. I've not heard about that plan so will look it up. I do need to try to eat better myself, and my TTG hasn't been so good since a holiday in France where there was a lot of cc. As I don't feel like eating vast amounts I think this will help immensely.
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Trents... that's such an interesting thought. In fact the theory about the irritation being near the epiglottis and mimicking the "I've to got cough this up" sensation makes so much sense. When I first coughed and spluttered over dry toast, strawberry juice and tomato ketchup, it was in that region of the upper throat, suggesting that's where the irritation...
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Trents, thanks so much for coming back to me. I'm panicking a bit over this so it's good to have someone to talk to! I agree, I think an endoscopy is important. I can't see my gastroenterologist until third week of November but hopefully having one by the end of the month will be OK. I saw something really worrying on a website about a tickle in the throat...
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This is so strange. I didn't have a bad day cough wise, until my meal just now. I'm only on day two of my Nexium trial so I guess it's early days yet. So I sat down to eat. Three or four mouthfuls in there was this terrible internal itch behind my sternum. It's like the tickle keeps moving south, I'm sure it started a bit further up when I first...
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H Thank you GFinDC. I must admit I don't take it but I am finding it a bit stressful not knowing exactly what is going on, so I can't think what it could be doing to my BP. I do wonder if globus hystericus is perhaps an issue as I find when I don't focus on it too much it's not as bad. Interesting I don't cough when I sleep.
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Hi Posterboy Thank you for this advice. I shall follow it through... that's very helpful. It's so interesting that the article says: "It is thought that it takes approximately 3 months for true GERD-related cough to improve because the nerves involved in the cough reflex take time to return to normal function." I feel that my nerves...
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I don't take this but I do wonder if a hot lemon drink, which you can buy here in the UK - brand name Lemsip, but I'm having the supermarket's own brand - can dry the mucus in the throat and make the cough worse, as it happens to contain a decongestant. I like the idea of taking zinc, esp. as you haven't had more than a sniffle since 2004. Thanks for...
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Hi Trents I get heartburn when I'm having a bad coeliac flare (cc) but that's always when my tum feels like it has battery acid in it, too. I haven't felt that bad for a while, thankfully. I've had two scopes, the last 18 months ago said it the esophagus and stomach were all normal but I guess there may have been damage since then. If this PPI trick...
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That's so interesting. Yes, I'd been drinking a lot of coffee (I don't normally) before it happened. I do hope you are right about catching it early. And yes... I'm sure there is a coughing urge that needs to be suppressed - almost like the nerves become over sensitive, and to top it all the brain is also there looking for trouble! Hyper vigilance strikes...
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Hi everyone A couple of weeks ago, two weeks on from a bad cold, I was eating toast with a dry mouth and it irritated my throat and it triggered off a coughing fit. Since then tomato ketchup and strawberry juice have had the same effect on two separate occasions. Since then I notice that I end up coughing during and after meals and I don't look...
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Just to add to this... I had a holiday in France this year. There certainly are some gluten free products available with the crossed grain symbol on them in the larger supermarkets, and even in the smaller supermarkets. However, I did not find the range as comprehensive as the range we have in the UK. I did not eat out while we were away - I rarely do... -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Meet Up Room
You are very welcome! I'm just sorry when Easter ends because it means I can't eat Dairy Milk for another year ... I just wish Cadburys would make all their Dairy Milk chocolate gluten-free, not just their eggs! -
Still have symptoms, related to something else?
cristiana replied to ebutton's topic in Related Issues & Disorders
I second oats. Pure oats still cause issues for me, six years on. I had my blood tested a couple of years ago and despite what I thought were my best efforts, I found my ttg was at 87. So I met with a nutritionalist who encouraged me to stop eating out. Also, I redoubled my efforts in only choosing food that appears in the Gluten Free directory that... -
Question about antibodies
cristiana replied to seerwatch77's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for this cyclinglady. I'd forgotten that. I wonder how many coeliacs are beating themselves up about cc when in fact it has nothing to do with it. I've always had a suspicion that I'm not fighting just the one autoimmune issue. -
Have any of our lady members experienced this? I'd like to know more. A non-coeliac friend of mine has been experiencing this but I'm wondering how common it is. For myself, I do feel nauseous from time to time and wonder if actually it's hormonal rather than cc. It's too easy to blame everything on gluten! (Note: It's not actually being sick, just feeling...
