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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. Hi there, Do you have blood tests to compare TTG levels? My TTG antibodies were still high some four years gluten free (I think around 86). Unfortunately my specialist had omitted to give me that blood test since diagnosis so I don't know if it was temporarily elevated at 86 or whether they were coming down very slowly. At the time of diagnosis...
  2. Hi RMJ So interesting to know this... I thought I was the only one taking a long time to get down to normal levels. I don't know what my DGP IgA levels were though.
  3. Hi! It has taken a looong time for my ttg blood results to come down. As the cut off point is 100 here in the UK I have no idea how high it was at diagnosis, but I was quite ill, so possibly it was stratospheric five years ago. However, last year I was getting a lot of pain again (felt like gastritis) and it was discovered that my ttg was in the 8...
  4. Hi Ennis I've got some slippery elm that I used while I had gastritis so I'll start drinking it again, thank you. I'll look out for some marshmallow which is something I've not yet got in my arsenal! It's odd as I'm not really aware of a sore throat on the inside, it's just the pressure should I touch my throat right at the base of my neck. Also...
  5. Hi Cyclinglady It's so kind of you to reply so quickly - you know how much of a HA panicker I am! I think they were gluten-free, I'll check they had a product licence number they can only have if they are gluten free. (That's if I can still find the packet!) I'm so glad for you that the gastritis healed on its own. I remember you going through...
  6. Hello friends I got reflux which burned my throat and a terrible burning pain in my stomach about three weeks ago due to some antibiotics I was taking (Trimethoprim). This all blew up over the weekend so couldn't see my GP but the pharmacist gave me some Nexium and told me to take them while I finished the course, which I managed to do. I have...
  7. Hi Mooo I'm sorry you are going through this... I just wanted to chime in to say that I had about 9 months of gastritis like symptoms in the last year or so and when it all started I was getting heartburn that made my throat sore. I went to see more than one doctor and eventually one did a TTg test and found it was in the eighties. I was both disappointed...
  8. My iron levels vary a lot and I hover just above anemic quite often. My ferritin got better at one stage, rising to 40, and then dropped 20 points literally overnight because of 'women's issues' so I guess it depends on several factors, and also how far you were off being anemic in your last blood test. If your diabetes test it turns out to be normal...
  9. This is great advice from Trents, we can easily cause all sorts of imbalances by drinking too much. I have had several episodes of feeling REALLY thirsty in the last few years. But to date my blood tests and urine tests have been normal. Whilst I've been reading up about this, I read in several places anemia can cause thirst, too, and my blood iron...
  10. Hendersons Relish if you are in the UK. Not sure if it sells overseas... https://www.hendersonsrelish.com/
  11. Hello Harvest Moon Welcome to the forum. I'm so sorry that you have experienced this. Just a suggestion but please check it out first with a pharmacist or doctor. I know a couple of people who have to take drugs of that ilk that upset their stomach. I understand their doctors get them to take an omeprazole capsule/tab first, waiting for a...
  12. Hi Matt, and welcome to the forum! I'm so sorry you are going through this. I have had arm and hand numbness at night and was diagnosed with ulnar compression. When it struck, it took a few moments for my hands to feel normal after waking. This started about six months before I was diagnosed with celiac disease. It comes back from time to...
  13. Thanks so much, Posterboy!
  14. That's a great tip. I've stopped taking it so I'll give it another try!
  15. Yes - seeing close up is what brings on my one eye aura. I went to the doctors and the opticians and they seemed to think that as I am predisposed to migraines it was just another type. I've had a few MRIs in the past but they didn't offer me one on this occasion. Perhaps they felt as I was a migraine veteran I didn't need to have further tests, but as...
  16. Hi Cathylinds Have you suffered from any type of migraine before? I seem to have had all sorts through the years. Pain and nausea, often starting in my neck, then auras both eyes, and after going gluten free a rapid improvement, only to get what they think is an aura in my right eye when I peer at black and white print which started after about...
  17. Thank you Matt. Celiac Kryptonite - love it! Especially as it was the end slice, so not just pastry on the edges, but on the side. The annoying thing is that I'd just been going through a bit of a good patch of health and I had to go and ruin it. I actually did take a photo of the shelf to send to M&S to say they oughtn't put their scrummy ordinary...
  18. Hi Jmg An old thread but I just wondered, when you say you have delayed reactions - is this still the case? I was dx'd back in 2013 and have really tried very hard to stay away from gluten. But a couple of weeks back my hubby bought me a gluten free pork pie from M&S. Except.... it wasn't! Oh, and I can tell you it was delicious. I should...
  19. Thanks, Wheatwacked. I think you are right to be careful about the long term use of inhibitors for this type of issue. I think sometimes, when used judiciously in short term, they can nip something in the bud before it gets worse, though. Interestingly a friend of mine with wheat intolerance and gastritis has recently been told that there is move...
  20. I just wondered if anyone else suffers from burning pain in their stomach, just to the left of my sternum, when stressed and when hungry. Normally when I relax the pain goes and I rarely have difficulties with it at night. I've recently had a normal biopsy with no sign of active celiac disease, gastritis or ulcer. A normal ultrasound of my abdomen too...
  21. Hi Plumbago Thanks so much for your post and for your tips - and the link. I must confess I am now a member of the "Go to Emergency with heart attack symptoms - leave with a DX of costochondritis" Club! That happened to me back in February when I had some bad pain in my ribs. At that time the cartilage between my ribs was very, very painful -...
  22. An update for those interested - in case it helps. Just to say that after about a year of the pain I described in my first post, the pain dwindled and almost went. At its worse I had itchy pain in my lef ribcage and also it started a few weeks later on my left hip area/sacroiliac joint/referring to groin. One doctor said shingles without the rash...
  23. Echoing knitty kitty above - check B12, and also ferritin. I suffered something similar when my levels were low, which brought on severe anxiety. I found reading At Last a Life and the Anxiety No More website helped too and equipped me to deal with depersonalisation, and the anxiety that was causing it.
  24. A relative of mine is a GP and he recently told me that he has diagnosed so many celiacs recently that he is sure that it just has to be more than 1%.
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