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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    I don't know if I'm putting this in the right category as I'm not sure if it is a celiac thing, but I wondered if anyone else suffers from pain with waistbands or anything that is at all constrictive around the abodomen/torso. This is something I never suffered from before my diagnosis, but I get it all the time now - anywhere there is any pressure,...
  2. cristiana
    Hi there Just chiming in because I too have left sided pain, a lot around my lower ribs. I have just been diagnosed with costochondritis. My cartilage in my ribs is inflamed, I dug around a bit yesterday trying to figure out which - looking at an image of ribs on the internet - and discovered it is the cartilage in my 5th and 6th ribs. What a mistake...
  3. cristiana
    Thank you so much for your replies. Ennis - I took your advice and played some of my favourite music from years back (I have odd taste - I love music from the 30s and 40s) and I have to say that Fred Astaire, etc, helped - so thank you for that! I haven't played it in ages - perhaps it took me back to the time I wasn't feeling ill, so it was a bit...
  4. cristiana
    Most of the people I know who have been diagnosed and follow a gluten free diet have never looked back. However, for me, since diagnosis, it has been one thing after another. The thing is, I realised today one of the biggest things that has changed in the past few years is that I have become so unmotivated. I have recently been diagnosed with...
  5. cristiana
    Victoria - this is such a good question. I say that, because I have been wondering it myself! Over the summer my 'gastritis' may have been gastritis, but it may have also been my coeliac disease, as my autumn ttg figures were high. There had been CC and I'd also been taking Floradix instead of Floravital. But the only other thing that went through...
  6. cristiana
    Really interesting point Kareng. In fact, my ttg went up this autumn (November), depressingly, and I saw a nutritionalist earlier this month and she doesn't want to retest til March. She felt it was too soon for those figures, too.
  7. cristiana
    https://www.twinings.co.uk/hot-chocolate-coffee-other-drinks/hot-chocolate-and-malt-drinks/twinings-swiss-chocolate-drink Have discovered this drink - it's great, labelled gluten free and is also fortified. I can't drink too much milk as I get bloated, but find it tastes really nice even made mostly with hot water and just a small amount of milk. ...
  8. cristiana
    Having had a horrid time with a sore tongue recently, I can pass on a bit of advice from one consultant. It is good to ensure that one's ferritin is up to at least 40 to deal with sore areas in the mouth. Might be worth getting a blood test. Also, B12 is another one to watch.
  9. cristiana
    Hi there KeriMary I think iron is something worth looking into on this one, too. My teenage daughter has been looking pale recently and has started using the wrong words for things - something that I do when my iron is low. It made life interesting when I used to have to give talks. One evening the audience was joining in as I tried to...
  10. cristiana
    A quick update for anyone who gets these odd readings with their coeliac disease. My ttg was elevated - significantly - in November (86) and the LFT/LET they ran showed my immunglobulins are up yet again - three points above normal. So it seems to be that my liver gets angry when I get gluten in my diet. Two gastrenterologists didn't even mention it...
  11. cristiana
    That's a great link Jmg. I often wondered. I have a funny feeling in 100 years, because language is ever changing, the 'o' will have dropped out of the English version. Like now it's all right to write alright, etc etc.
  12. cristiana
    Might be worth a TTG test, Icey?
  13. cristiana
    Interesting... I've just seen an incredible hospital nutritionalist about my recently elevated numbers. I thought I had gastritis with burping and upper bloating and burning over the summer. But it was gluten all along as my TTG went up to the 80s, and yet I thought I was being sooo good. Just goes to show. She reckoned a few glutenings in the autumn...
  14. cristiana
    Just a thought... I had ongoing tingling etc and I think it was when I mentioned this to my gastro he added a folic acid test to my slew of bi-annual blood tests. It turned out I was borderline normal. I seem to recall, too, that someone posted on this forum who had these symptoms and it was caused by too much B6. So maybe a couple of other...
  15. cristiana
    Hi Paigey Pants I've not tried it yet but I intend to, once the Christmas gluten-free treats are finished. Probably a couple of days into the new year. I'm going to go down this road as I have recently been tested and have elevated TTG, yet I thought I was being good enough. I can see stuff is probably sneaking in from my shared kitchen; in the...
  16. cristiana
    Hello there I was diagnosed in 2014 after experiencing a period of dreadful anxiety (phobias, mind racing in the small hours of the night, a feeling of impending doom etc, inability to function during the day, brain fog). Before I was diagnosed it was discovered I was low in iron (ferritin) at level 6, and just above normal B12. Supplementing...
  17. cristiana
    RMJ - this is great. Thank you. Documented on another thread, I too have had the disappointing news that I wasn't doing enough because after four years of what I thought was being super strict it was not enough. I take heart that at least my numbers are on a downward trend. Come the New Year I'm going to do exactly what you are saying.
  18. cristiana
    Happy Christmas from another corner of England to all my friends on this forum.
  19. cristiana
    Well, having trawled through mountains of mince pies I have concluded Sainsburys and Costa deserve joint first prize for the standard type; Sainsburys for the iced type. But the problem is the latter sold out days before Christmas. I didn't get to eat a Morrissons pie, nor an Asda one (if they do them). What do you think, JMG?
  20. cristiana
    Trents - G'day and thank you. I've been on gastritis meds this summer but then the pain was to the left. All this trouble started with glutening, iron supplements, a virus and aspirin (I know, stupid) in July plus a shedload of stress. I have been 'out of kilter' since. the doctors prescribed omeprazole, then ranitidine. I came off these at the end...
  21. cristiana
    Hello again Does anyone know whether my current elevated TTG status (in the 80s) would lead to burning pain. It seems worse when I start eating, and also when I get hungry. It is just under my right ribs, about an inch or two down from the sternum, almost along the ridge of where the ribs end. It woke me last night, a couple of times. I've...
  22. cristiana
    I'm not sure if this will help but I've had quite a few issues with my mouth over the years with a sore areas and canker sores, burning and tingling. The specialist that saw me about one particular lump this year told me I was vulnerable because my iron was low, and wrote in a follow-up letter to my gastroenterologist that I should aim to have ferritin levels...
  23. cristiana
    Hello again friends - still on the subject of TTG but a slightly different question. How quickly do TTG figures go up and down? If mine are 86, and I go on the Fasano diet in the New Year (before then I'll try really hard to be strict, too, but will probably eat certified gluten free food as it is Christmas!), should the figures have halved within...
  24. cristiana
    A very helpful post. Thank you, I'm going to try this.
  25. cristiana
    What a lovely group of friends you all are. Thank you! I was devastated at this news yesterday as for nearly five years I've been living under the delusion that all was well. Several of you on this website have mentioned the annual TTG test but I trusted my consultant implicitly, and thought that testing was just the American system. Alarm bells...
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