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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Thank you Matt. Celiac Kryptonite - love it! Especially as it was the end slice, so not just pastry on the edges, but on the side. The annoying thing is that I'd just been going through a bit of a good patch of health and I had to go and ruin it. I actually did take a photo of the shelf to send to M&S to say they oughtn't put their scrummy ordinary...
  2. cristiana
    Hi Jmg An old thread but I just wondered, when you say you have delayed reactions - is this still the case? I was dx'd back in 2013 and have really tried very hard to stay away from gluten. But a couple of weeks back my hubby bought me a gluten free pork pie from M&S. Except.... it wasn't! Oh, and I can tell you it was delicious. I should...
  3. cristiana
    Thanks, Wheatwacked. I think you are right to be careful about the long term use of inhibitors for this type of issue. I think sometimes, when used judiciously in short term, they can nip something in the bud before it gets worse, though. Interestingly a friend of mine with wheat intolerance and gastritis has recently been told that there is move...
  4. cristiana
    I just wondered if anyone else suffers from burning pain in their stomach, just to the left of my sternum, when stressed and when hungry. Normally when I relax the pain goes and I rarely have difficulties with it at night. I've recently had a normal biopsy with no sign of active celiac disease, gastritis or ulcer. A normal ultrasound of my abdomen too...
  5. cristiana
    Hi Plumbago Thanks so much for your post and for your tips - and the link. I must confess I am now a member of the "Go to Emergency with heart attack symptoms - leave with a DX of costochondritis" Club! That happened to me back in February when I had some bad pain in my ribs. At that time the cartilage between my ribs was very, very painful -...
  6. cristiana
    An update for those interested - in case it helps. Just to say that after about a year of the pain I described in my first post, the pain dwindled and almost went. At its worse I had itchy pain in my lef ribcage and also it started a few weeks later on my left hip area/sacroiliac joint/referring to groin. One doctor said shingles without the rash...
  7. cristiana
    Echoing knitty kitty above - check B12, and also ferritin. I suffered something similar when my levels were low, which brought on severe anxiety. I found reading At Last a Life and the Anxiety No More website helped too and equipped me to deal with depersonalisation, and the anxiety that was causing it.
  8. cristiana
    A relative of mine is a GP and he recently told me that he has diagnosed so many celiacs recently that he is sure that it just has to be more than 1%.
  9. cristiana
    Hi everyone! Thank you all so much for responding. You have given me much to think about. I do think that the way forward is the Demis Roussos kaftan for me. I'm beginning to wonder if, like your Mum, cycling lady, I'll ever be able to find a bra that actually doesn't cause pain. I bought a new one on Tuesday and have been in so much pain since...
  10. cristiana
    Hi Trents - and thanks. Shingles was suggested but I was told it was odd to have it on more than one dermatome - the pain does major along two of them, at chest and hip level. I've had MRIs of my spine and brain since DX and nothing appeared to be amiss. It is odd how it goes into remission. Someone rang me the other day to say her daughter...
  11. cristiana
    Hi Gemini I do sympathise - a very close relative in my family has dementia, osteoporosis, is losing weight, etc etc and as a close relative should have been tested for coeliac at my DX. I told her at my DX to ask the doctor to be tested. As far as I know nothing was done as there were no obvious gastro symptoms. It is so frustrating! I really...
  12. cristiana
    Hi flowerqueen I've had a bad year with gastric symptoms which presented as gastritis. This gastritis was treated with omeprazole and zanatc for some months. Anyway, although my gastro was giving me regular blood tests - liver function, iron, B12, folate, full blood count, etc, he had not been testing my celiac specific readings for years. I...
  13. cristiana
    I don't know if I'm putting this in the right category as I'm not sure if it is a celiac thing, but I wondered if anyone else suffers from pain with waistbands or anything that is at all constrictive around the abodomen/torso. This is something I never suffered from before my diagnosis, but I get it all the time now - anywhere there is any pressure,...
  14. cristiana
    Hi there Just chiming in because I too have left sided pain, a lot around my lower ribs. I have just been diagnosed with costochondritis. My cartilage in my ribs is inflamed, I dug around a bit yesterday trying to figure out which - looking at an image of ribs on the internet - and discovered it is the cartilage in my 5th and 6th ribs. What a mistake...
  15. cristiana
    Thank you so much for your replies. Ennis - I took your advice and played some of my favourite music from years back (I have odd taste - I love music from the 30s and 40s) and I have to say that Fred Astaire, etc, helped - so thank you for that! I haven't played it in ages - perhaps it took me back to the time I wasn't feeling ill, so it was a bit...
  16. cristiana
    Most of the people I know who have been diagnosed and follow a gluten free diet have never looked back. However, for me, since diagnosis, it has been one thing after another. The thing is, I realised today one of the biggest things that has changed in the past few years is that I have become so unmotivated. I have recently been diagnosed with...
  17. cristiana
    Victoria - this is such a good question. I say that, because I have been wondering it myself! Over the summer my 'gastritis' may have been gastritis, but it may have also been my coeliac disease, as my autumn ttg figures were high. There had been CC and I'd also been taking Floradix instead of Floravital. But the only other thing that went through...
  18. cristiana
    Really interesting point Kareng. In fact, my ttg went up this autumn (November), depressingly, and I saw a nutritionalist earlier this month and she doesn't want to retest til March. She felt it was too soon for those figures, too.
  19. cristiana
    https://www.twinings.co.uk/hot-chocolate-coffee-other-drinks/hot-chocolate-and-malt-drinks/twinings-swiss-chocolate-drink Have discovered this drink - it's great, labelled gluten free and is also fortified. I can't drink too much milk as I get bloated, but find it tastes really nice even made mostly with hot water and just a small amount of milk. ...
  20. cristiana
    Having had a horrid time with a sore tongue recently, I can pass on a bit of advice from one consultant. It is good to ensure that one's ferritin is up to at least 40 to deal with sore areas in the mouth. Might be worth getting a blood test. Also, B12 is another one to watch.
  21. cristiana
    Hi there KeriMary I think iron is something worth looking into on this one, too. My teenage daughter has been looking pale recently and has started using the wrong words for things - something that I do when my iron is low. It made life interesting when I used to have to give talks. One evening the audience was joining in as I tried to...
  22. cristiana
    A quick update for anyone who gets these odd readings with their coeliac disease. My ttg was elevated - significantly - in November (86) and the LFT/LET they ran showed my immunglobulins are up yet again - three points above normal. So it seems to be that my liver gets angry when I get gluten in my diet. Two gastrenterologists didn't even mention it...
  23. cristiana
    That's a great link Jmg. I often wondered. I have a funny feeling in 100 years, because language is ever changing, the 'o' will have dropped out of the English version. Like now it's all right to write alright, etc etc.
  24. cristiana
    Might be worth a TTG test, Icey?
  25. cristiana
    Interesting... I've just seen an incredible hospital nutritionalist about my recently elevated numbers. I thought I had gastritis with burping and upper bloating and burning over the summer. But it was gluten all along as my TTG went up to the 80s, and yet I thought I was being sooo good. Just goes to show. She reckoned a few glutenings in the autumn...
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