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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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I'm so glad you are making such good progress. It sounds like you'd make a good detective - sometimes the cause of symptoms can take so long to work out it is not surprising people give up trying to find the cause. I thought I'd post a progress report. I believe I am now in my third week sans Zantac. I came off my 75mg pretty much cold turkey but...
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Ttg at one year....waiting.
cristiana replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Glad you are feeling so much better! I am also in the waiting room for ttg results. Believe it or not, for some reason my usual consultant hasn't been giving me an annual test - although he has always tested liver enzymes which were wonky at diagnosis. I saw another guy who thought it was high time to have the test again and so now I'm waiting - I... -
SORRY! I have just posted something under a new topic - Floradix/Floravital. I've just discovered that I've been glutening myself taking Floradix. There is a gluten free version I should have been taking insted called Floravital - make sure that if you have this range in your country that the version you are taking is gluten free. I'm sorry for any confusion...
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I can't believe I've been diagnosed for nearly five years and have managed to gluten myself for weeks without realising it. Completely my fault as one should always read the labels and I didn't. Here in the UK I've been buying an iron supplement from the Floradix range and taking it daily, not realising that it contained gluten. Only yesterday I realised...
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New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Meet Up Room
Thank you. I think I am now on the road to recovery but it is strange, my system still feels not quite right when I'm hungry. It is a different version of 'feeling sick because I am hungry' than I had before. I don't know, perhaps it's nothing to do with the gastritis, probably old age. Nowt a mince pie and some Hendersons Relish won't fix!! As regards... -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Meet Up Room
Ahh... mince pie season again. I had a very pleasant experience at our local hospital the other day. I was waiting to see the gastroenterologist and decided to call in at the hospital Costa for a mint tea (still being careful having had gastritis all summer) and couldn't resist something to eat. When one recovers from gastritis, one shouldn't have an... -
Ferritin levels and celiac?
cristiana replied to Breezy1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mine was 6 at diagnosis and has been as high as 40 since, but has recently gone down to 12. I've had gastritis over the summer so have been staying away from supplements as iron hurts my stomach. I wonder if you have any symptoms? I find that my hair thins when my iron reserves are low. I also get itchy skin, and a sore tongue. A consultant said... -
A friend of mine had some serious neurological symptoms going on. She also had a rash. I don't think anyone ever thought the problem might be gluten (apart from me!), but she is a great baker and spent a few months baking stuff for a friend who was told to go gluten free. So she kept this friend company, eating all this stuff. All the symptoms went away...
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Its interesting you should say that. I don't normally drink alcohol, I've always felt it tasted like medicine - no idea why! - but drank some sparkling wine recently out of politeness. Oh the pain! At my last appointment my gastroenterologist had asked me if I drank - she never told me why, but if that's what alcohol does to people with gastritis it should...
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Hello everyone Thank you so much for all your contributions and tips, I'm sorry for my absence but I've had a big project deadline to complete. Over all, I think things are on the mend for me too. I was quite cynical at the doctors' approach at first. I'd have much rather had a scope to find out what was happening, instead of being prescribed three...
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Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also, carrying heavy weights. Try not to! I find heaving heavy shopping bags, especially carrying them on one side, causes dreadful pain. It is difficult but if you possibly can try not to carry heavy weights. I even find if my handbag (purse) gets over-stuffed with heavy things it can set things off. x -
Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Victoria Looking back, I've had it for years too. To be honest, magnesium, vitamin D (fish oil capsules), B12 and iron are the only supplements I take on a regular basis. I think if you get a diagnosis of SI problems you may be able to find some exercises that will help. Oddly enough one big thing that happened which reduced the pain... -
Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi - your pain sounds very familiar. A chiropractor will probably be able to confirm whether you have this problem or not because there is an area, sort of at hip level, either side of the spine, that often huts if you press down on it when you have this problem. When I get referrred pain and wonder what on earth is going on I press this area and - BINGO... -
Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have pain in my lower back, groin, thigh, glute - it was eventually diagnosed as sacroiliac pain. You might want to look it up. Apparently it is quite common in celiacs. As referred pain charts will show you, the pain is far from localised. Mine can be so tight at times it is difficult to walk. It burns when I have been sitting around too much... -
High Incidence of celiac disease in Long Term Study
cristiana replied to cyclinglady's topic in Publications & Publicity
This is all so interesting! I have thought the incidence must be far higher than 1% for a long time -' we' seem to be everywhere. Today the shop assistant serving me was a celiac. The landlady at my holiday cottage is a celiac. Several of my friends are celiacs... The vicar is a celiac. My hairdresser is a celiac. People keep telling me their sibling... -
Whitepaw, I'm so glad you have had this breakthrough. It is really good to know that something as simple as corn could be exacerbating things. The cookbooks look really promising and I will see if I can buy at least one of them. I think you are doing really well on your journey and I'm so grateful that you have been here holding my hand all these weeks...
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Nope. Whitepaw, all I can say is I hope you are doing better than me! I had a really bad afternoon six days ago. I went out to tea at this posh hotel with my family and made the mistake of just drinking boiling water and watching them eat scones, jam, cream and by five I had that awful burning under my sternum and then that awful bubble sensation...
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I struggle with iron - even taking ferrous glucanate can sometimes cause symptoms. This summer I have been struggling with gastritis caused by, I believe, a combo of aspirin damage, iron and stress. I think things are slowly improving but I am still taking Zantac. I desperately need iron as I was borderline anemic a few months ago. I've managed to get...
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Chest tightness only symptom of being glutened?
cristiana replied to Noobette's topic in Coping with Celiac Disease
I had to comment as although I don't think I've had this reaction to glutening, I have had it when I have had to take iron and also now with ongoing suspected gastritis. I figure it is bloating, and get some relief when I drink hot water or mint tea. All the pressure is under my rib cage and I recall once crossing the road in town wondering if I'd actually... -
Henderson's Relish - don't leave Yorkshire without it!
cristiana replied to cristiana's topic in Meet Up Room
Eeh bah gum, ta JMG! I find it fascinating that it has almost the same (or is it the same) colour label as Lea and Perrins? I wonder which came first? Hopefully they have moved from the building in the photo as they are selling so many bottles that they need bigger premises. Funny though - I thought you'd sent me a picture of a pub when I first... -
Just in case anyone is visiting Yorkshire in England, don't leave without buying a bottle of Henderson's Relish, which is Gluten Free! I am sure it can be bought elsewhere in the UK, but I have never seen it where I live, so I bought a couple of bottles when I was last in Yorkshire. It is quite delicious and a good Lea and Perrins substitute, plus it...
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Isn't it bliss to be able to eat normal food again! And yet - things can't be right yet, as like you, I pay for it later. The sparkling wine was a real surprise to me: I don't like alcohol normally and I drank it to be sociable - if alcohol has this affect on others with gastritis, I now understand why the last consultant I saw asked if I drank. She was...
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How are you doing, Whitepaw? Are you GI symptoms continuing to improve? How is the rash? I'm feeling bloated, a mild discomfort still under my left rib some of the time, and although I thought my tum was better when I had a third of a glass of sparkling wine at a party the other day that burning pain came back for the afternoon. Hope you are faring...