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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @Dee4825 and welcome to the forum! I echo @Scott Adams statement about eating out - it really is an important factor to consider. Although most caterers have a better grasp of catering for coeliacs today, mistakes slip in - only this summer I was given a plate of gluten free food, a Ploughmans Lunch, and the baguette was normal bread! Now...
  2. cristiana
    From Shar's UK website, if of interest to UK readers: https://www.schaer.com/en-uk/a/codex-wheat-starch
  3. cristiana
    Thanks, Scott. Interestingly I've seen another post on another forum stating Vitamin C helped someone. I've tried some /c supplements and whether it is just the sudden improvement in the weather here or Vitamin C it really works, but the inflammation has definitely improved. I'll look into turmeric more, and thanks for the advice re: blood thinning and...
  4. cristiana
    Hello all A question from a Mod this time! We have a lot of arthritis in our family, to date this has been diagnosed as osteoarthritis. There may also be rheumatoid arthritis, but as far as I know no-one has been diagnosed with that so far. Anyway, my question is, there are a lot of advertisements in the UK press about the benefits of supplementing...
  5. cristiana
    I felt worse before I felt better... it took a while. Soy containing products hurt my stomach - that took about a year to right itself, and dairy made me feel bloated and very uncomfortable. (Damaged villi can cause temporary lactose intolerance, once they are healed often dairy no longer causes problems.) I also found certain foods containing fibre hurt...
  6. cristiana
    Baz, you could be talking about me. I too used to feel absolutely fine, going about my business, then this very alien feeling would hit me. I remember often it would be just when I was sitting in front of the TV (not watching anything scary!) It sounds like you are experiencing something very similar. As I say, I am not medically qualified, but perhaps...
  7. cristiana
    Hi @Eldene My experience is yes, albeit in my case, I think it was due to low B12 and low iron. In particular I found that when I drank anything with B12 in it at that time, my anxiety left me within a few hours. Are your B12 or iron levels low? That said, it is worth bearing in mind that non-coeliacs get depression and anxiety, so it...
  8. cristiana
    Hi Baz I am not medically qualified, I ought to say that first! But my B12 was considered borderline normal by UK standards at diagnosis and reading around the subject at the time other countries set their limits higher. I read on this site that 500 is a better level, and that is the Japanese normal (but please do check up on this, I am afraid...
  9. cristiana
    Hello @Baz. LIke you I'd never suffered anxiety in the form I had it prior to diagnosis, and in the months after. In my case it was debilitating and so alien to me I didn't know what it was at first. It is not uncommon in coeliacs. In my case I think it was to do with low B12 and low iron. You need to be tested for deficiencies in these, if you haven...
  10. cristiana
    Hi @Niki Svik Welcome to the forum! I am afraid I have not ever visited Malta, hopefully someone else will chime in about that. However, I've read a lot of posts on this forum about Italy and it seems that for the most part, the Italians are very good at catering for coeliacs. In Italy they look after their own coeliac population very well...
  11. cristiana
    So strange you should post this today, @Karen Allott Malkin, as this lack of clarity affected a purchase today. I went into an old fashioned sweet shop on the coast, near where we live. They sell sweets in jars and had put blue stickers on the jars containing gluten free sweets. I asked them to double check the Walkers Nonsuch Chocolate Toffee...
  12. cristiana
    @MzMillz Hello again. As it sounds that you are dealing with an allergy as opposed to Coeliac Disease (although there may be a chance that you have both) I think you might be best to contact the Allergy UK helpline for further advice and support and to find out what sort of help you can get in this country. I have not used their services but they...
  13. cristiana
    Hi @trents. I think I should have also worded it 'less than'. I didn't know this difference existed, thanks for the clarification.
  14. cristiana
    Back again - hubby has gone upstairs to do something so I thought I'd just check your post. It is tough what you are going through. All I can say is try when on holiday keep eating whole foods that are naturally gluten free; make sure to wash any vegetables or fruit that might have been stored near gluten (or make sure catering staff are aware). Make...
  15. cristiana
    My friend who has an allergy has experienced huge problems trying to find out what she was allergic too, and then finally being able to find someone qualified and affordable who could test her. She felt yeast was a problem, he confirmed it. But as has been your experience, she's really had to go down this route without the support of a GP and it took a...
  16. cristiana
    Thanks for the reply, I can see how confusing this all must be. A wheat allergy is certainly a whole different ball game to coeliac disease. Did this allergy suddenly present itself? Or is it something that has been building over the years? It might be helpful to know if you have ever been tested for coeliac disease, too. Sorry for three...
  17. cristiana
    Hi @MzMillz and welcome to the forum. I am a UK coeliac. I hope I might be able to help as a UK coeliac who is conversant with the NHS system, and have a friend who whilst isn't a coeliac had to try to work out what was causing an allergy through the private health route in the UK. But first, I agree with @trents that it would be good to know if...
  18. cristiana
    H @Staci19 I agree with Trents. Also, 'google' healthy fats and buy these products if you can (such as tinned fish, nuts, advocado, cheese). If you can tolerate dairy products, consume full fat versions. When your weight increases, you should see a difference in your figure. For myself, I am currently trying to lose some weight, having lost a lot...
  19. cristiana
    If coeliacs follow a strict gluten-free diet, the villi begin to heal and function again properly. However, this article may be of interest it contains research findings that show the process can be long and in some people incomplete. https://www.verywellhealth.com/celiac-disease-when-will-your-small-intestine-recover-562341
  20. cristiana
    Hi @milo2007 I think I'd like some of my fellow mods to come in at this point to see if they have any thoughts. Will keep an eye on this thread over the next few days and see what they say. The thing is, you could try going on a gluten free diet right now to see if you start to put on weight, but I'd like to hear from them in case they think...
  21. cristiana
    Mmm... not the most helpful reply there from your consultant. Actually, you raise something there, if insufficient biopsies were taken something could have been missed. Sorry - going back to gluten, were you eating it prior to the tests?
  22. cristiana
    I have had two friends with colitis and I know that at times they have struggled greatly with their diet. One seems to be doing well now, but I know the other had huge issues with fruit and veg. For myself I have been diagnosed with coeliac disease and IBS and between them I rarely find my gut is in 'a good place'. I can have days of things working well...
  23. cristiana
    Hello @milo2007 and welcome to the Forum! I see from the the tests you have no damage to your gut, so in terms of whether gluten has a part to play in this, can I ask were you consuming gluten every day before the tests, and if so, how much and for how long? The reason I ask is if you had been on a gluten free diet prior to the tests, then your gut might...
  24. cristiana
    @trents makes some good points. Yes, I had the symptoms you mentioned. and they improved after I went gluten free, although it took some time However, the cough was something that occurred after I had been diagnosed with coeliac disease and was following a gluten-free diet. It turned out to be related to reflux. I adopted a reflux diet, tried...
  25. cristiana
    HI Sabrine I am so sorry, you are having to cope with such a lot. This news must be overwhelming. However, one thing to bear in mind is something I learned when I was first diagnosed. I spent a lot of time reading people's experiences of Coeliac Disease and found that sometimes all sort of strange and seemingly unrelated symptoms can improve...
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