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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @Jessica Hoffman and welcome to the forum It is possible you are suffering from vitamin and mineral deficiencies - were any levels checked? If so, I wonder what your Iron and B12 levels are like, as being deficient in either could make you very tired. Of course, two other reasons for fatigue are Thyroid issues and also diabetes. Have you had...
  2. cristiana
    @Chris butcher As you are feeling so unwell, it might be worth requesting a cancellation appointment from your hospital. Perhaps worth ringing the hospital concerned and to speak to the booking team, to ask them to please contact you if anything comes through? Do you know how much longer you have to wait? But that aside, I think because you...
  3. cristiana
    @Chris butcher Having seen a lot of posts on this forum over the years, it is a very common worry. When one is feeling so unwell, it is not surprising one is thinking , "Can this just be coeliac disease?" I certainly thought that. But you know what, it could just be that, and if you have had it some time, it might take you a while to heal. However...
  4. cristiana
    I wonder if it is the same product in the States because, according to my gastroenterologist here in the UK and the NHS website, Gaviscon does help stop acid going up the throat. https://www.nhs.uk/medicines/gaviscon/#:~:text=About Gaviscon,-Gaviscon can be&text=The medicine works by forming,and reduces pain and discomfort. "Common...
  5. cristiana
    Hi @Chris butcher @trents is right, you probably are having pain in your oesophagus. Although I am on a strict gluten free diet, yes, I do get bouts of it from time to time. Mine appears to be related to reflux and/or gastritis. When it gets bad I try to go back to a very simple diet, eating food like white fish or really well cooked chicken...
  6. cristiana
    Hi Chris I am so sorry to hear you are in pain. For clarity, are you saying that you can eat gluten containing food without it upsetting you, but gluten free food causes you pain? Cristiana
  7. cristiana
    @trents Quite right. That is definitely worth noting. I am not sure if my local lab is still operating the old >100 cut off system, but for anyone whose antibodies creep over that level knowing the real number would be very helpful. To do one's best to keep to a strict gluten-free diet and still to find that after a few years my numbers stood...
  8. cristiana
    When I was diagnosed in the UK back in 2013, the lab cut off for TTG levels was an upper limit of 100, with normal levels being <15. My lab report simply read >100. I believe my numbers must have been sky-high at diagnosis because they took about eight years to normalise. I expect under the new National Institute for Health and Care Excellence...
  9. cristiana
    Hello Bran and welcome to the forum. The strange thing about coeliac disease is that people react to glutening in so many different ways. Some people know they have been glutened because they get gastric issues. Others find their symptoms are neurological - twitching, tingling and numbness, for example. Some individuals get both. YetI have one friend...
  10. cristiana
    Hi Emily I'm a coeliac based in the UK, and was diagnosed eleven years ago. My mum was diagnosed with breast cancer on my son's fifth birthday, two years before. The strange thing is that I have never put two and two together, but perhaps it added to my health anxieties post-diagnosis, of which there were many. I had a lot of odd symptoms running...
  11. cristiana
    Hi, @Blanco Yes, I missed the Northern Lights too. Although my sister tells me there are some more due soon, I think this coming week. Maybe we'll see them next time, hope so, I felt quite cross that I was asleep in front of the TV when the last lot happened! I agree with Trents, now you have your official diagnosis you won't be expected to keep...
  12. cristiana
    That's a very good idea to speak to PALs, I'd do that. That's an incredible wait... four months. I
  13. cristiana
    Hi @ceslater I'm here in the UK. I am so sorry you are having these issues. With regard to your results, we've been in a similar sort of situation but for a different condition, a few years ago. My daughter had issues with a knee problem and we waited months and months for a follow-up appointment with an orthopedic surgeon. We assumed it was...
  14. cristiana
    Re: cheese. Here a food diary is helpful. Some people who are lactose intolerant, temporarily or otherwise, can often eat hard cheeses like cheddar in moderation, because these it is low in lactose. So is butter and cream, by the way. However, milk can cause issues. Worth remembering before you cut out everything. If you have a casein intolerance,...
  15. cristiana
    I think that is very true, Trents, and suspect that's why my bloating is a lot worse when I take Gaviscon and Omeprazole. I had a friend who was taking large doses but wasn't adjusting her diet, and was still drinking strong coffee, etc. It really pays to try a gastritis/reflux diet.
  16. cristiana
    Hi @DynamoCappo I nearly posted this in my first post to you and should have: I find that taking Gaviscon and Omeprazole actually made me really gassy in my stomach and added to the sensation of pressure in my chest and so I rarely take them together for long. Iron supplements also made make me very bloated in the same area. I remember once when...
  17. cristiana
    Hi @DynamoCappo Your post caught my eye as I, too, have found myself in the Accident and Emergency Department, as we call it in the UK, with pain between my shoulders, and awful burning pain in my chest, where the stomach lies just under the ribs. Those pains come in particular when I have gastritis/reflux. I find taking a few days Omeprazole...
  18. cristiana
    Great news, @elthomp! Thanks so much for the update.
  19. cristiana
    Absolutely, it takes about that long with me - in the early days when I took a few risks and ate a places I would never eat today, I usually found the symptoms struck me in the car park on my way home, or at home. Anyway, hopefully others will chime in but if you hear from the wine producers do let us know what they say.
  20. cristiana
    Yes, that does sound as if there might be a link. I would think it might be worth sending an email to the producers and asking them if there is any involvement with wheat, barley or rye in the wine's manufacture. It can happen (see link below). However, nothing to do with wine, but on three separate occasions I have had what I can only explain glutening...
  21. cristiana
    Hi @June Jackson and welcome to the forum I am just wondering if you have had this problem on more than one occasion with this wine? Cristiana
  22. cristiana
    V. interesting. I was away a couple of weeks ago and I had a couple of days where I just couldn't find the right words, I couldn't finish sentences or if I did, frequently it was completely the wrong word. It has happened to me for decades, pre- and post diagnosis. That said, I was not conscious of having been glutened. Do you find you still get these...
  23. cristiana
    I was hit with debilitating anxiety about six months prior to my diagnosis - so alien to my life until that time, it took me a while to realise that it was anxiety. It took about eighteen months to completely go. My blood tests showed very low ferritin and B12 levels, which I think can be contributing factors.
  24. cristiana
    PS If you get pain that goes down the left of your lower abdomen that too can be bloating. I got that for a while, but it went after I gave up lactose for a few weeks. While you are healing, you may be temporarily lactose intolerant, and that can cause gas and bloating. I had a sigmoidoscopy just to be sure that pain wasn't anything to worry about as...
  25. cristiana
    @ruthbrown89 Welcome to the forum! Your post caught my eye because that's a familiar pain to me, and I've had clear endoscopies and colonoscopies over the years. I remember once when it was particularly bad I showed an ultrasonographer where the pain was and she said, "That's your stomach!". I feel that in my case the pain is caused either...
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