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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. Raspberry - a friend (who isn't a celiac but has non celiac gluten sensitivity) and I (a celiac) have both have had all sorts of odd neurological symptoms and neither of us have given up dairy, although have gone gluten free. I have seen some improvement, she has seen huge improvement. I would say definitely try going gluten free but you may need to be...
  2. It's always nice to meet a fellow suffer - although I am sorry you have this problem! Also I used to get, when it was at its worse, wierd feelings in my fingers when I unscrewed a jam jar top, for example. Kind of pins and needles. That doesn't happen anymore. Now occasionally I find when I am washing my hands under hot water and wringing my fingers...
  3. It is interesting you have ulnar nerve issues. Me too, left and right. Starting really playing up just before diagnosis - I was always waking up with numb fingers, hands or lower arms. So I think gluten had a bearing. I had the tests and have a confirmed diagnosis for that one.
  4. Ironictruth, I think you could be onto something. Get him/her to check your sacroiliac joints too, they cause all sorts of referred pain. Cstark - I have had this sort of pulsating buzzing in my face in the past, it waxes and wanes. Doc thinks I have mild neuralgia. Triggers seem to be poor neck position and also cold wind on my face. Caffeine too...
  5. Hi Ironictruth I'm just wondering if this is nerve impingement? Any pain in your hip/back area?
  6. Hi Buckarett Can you describe where these tremors/vibrations are? Also, do you know what your B12 levels are? Sometimes a clinic will say you have normal B12 but by other countries' standards they would not be considered normal. It could be you are still deficient. That said, I would say it is just possible it is connected to anxiety. I...
  7. Hello Kitty Well I had chills in my first year post diagnosis, I remember two specific instances. On one occasion I was walking home along a path eating licorice allsorts - a type of English sweet - because I had read licorice had iron in it and it was good for anemia. Good excuse! I remember feeling chills and my shins itched. Got home and checked...
  8. Greetings to you all. Jmg - your comment about blaming things on gluten did amuse me. I am sitting here looking at a field of wheat beyond the garden and the sky above is steely grey. and it is raining. Is there a connection?!
  9. Hi frieze I have actually just had my latest result today. Latest installment is I am back to anemic, but this time the hemaglobin has finally tumbled too so whatever my current problem is it isn't too much hemaglobin - at least for a while. My awful perimenopausal symptoms are responsible, there can be no doubt in my mind. It seems to me that...
  10. (Trents, just an aside, I see you have been with this community since 2006. It is good to meet someone who has been with celiac.com since then!) What you say about B12, that is interesting. If you stop taking those supplements, do your hemaglobin levels go down, too? I took huge levels of B12 sublinguals at one point and I wondered if that was...
  11. That's interesting, trents. Do you supplement B12 too? I do wonder sometimes if I need to look at that again as I get tingling and find it responds quite quickly to a dosing of B12, but I'm now concerned to take that too as I imagine that can affect the hemaglobin, too?
  12. Not as far as I know. I gather that can be a factor - I had a chest X ray since I fell ill with possible pneumonia but nothing unusual detected.
  13. Hi All Just wanting to hear from anyone who has ever had/or who has high hemoglobin. I gather a lot of us celiacs have strange blood test results, particularly liver function (enzyme) tests, which often improve after going gluten-free. Thankfully mine have to date, all apart from one thing. I was anemic before DX and went onto iron supplements...
  14. A brave, kind lady. She helped so many people.
  15. Thanks so much, gluten-free, in my hypchondriacal panic I saw that website! It is good to have an endorsement from a celiac. I remember seeing quite a few reassuring stories in it along the lines that you describe. Funny isn't as because I now feel far less inclined to eat large amounts of carbohydrate now I have cut back a bit. It seems the more...
  16. Thanks! When I get a mo. I shall do some reading. Anything to get rid of these highs and lows. I must say a friend of mine who has done paleo is positively glowing now.
  17. Thank you both so much for your replies. I like the sound of what's on the menu, cyclinglady! I think I have definitely been straying down the cake aisle too often so will look out for more protein, GFinDC. Readjusting to fewer carbs is making me feel a bit weird - and from what I read this might be causing the thirst which thankfully is much better...
  18. Hi everyone. There is a lot in the press here in the UK about prediabetes and diabetes. I am an apple shape, as opposed to a pear, which I gather puts me more at risk. I have a lot of relatives with types 1 and 2 diabetes. I was diagnosed with celiac disease three years ago and the diet has been going so well that I am now putting on weight - I realise...
  19. Hi Anne I am sorry - I have only just read your post of nearly a week ago. You certainly sound as if you have been through the wars. A rotator cuff tear is supposed to be very painful. I wonder if the doctor was referring to costochondritis. I think that is interesting what you are saying about nerves in the neck/spine. I find when I am...
  20. Hi Anne I think it would be a very good idea to see your audiologist. I live in the UK and will always be grateful for the National Health Service but increasingly I feel doctors are under so much pressure we can help them a lot by connecting these dots for them - although some might not welcome it, others do. You could well be onto something as isn...
  21. My nutritionalist told me to say allergy because some people only understand that word. I can't quite bring myself to say it, though! I have never been asked the preference or allergy question myself - yet . I haven't dared eat out for months but now I am again and what I now find myself doing is ordering and then when everyone else has put their...
  22. Bartfull Thank you for all the help and encouragement that you have given so many people on this site. God bless you. xxxxxx
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