Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,871

  • Joined

  • Last visited

  • Days Won

    71

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @milo2007 and welcome to the Forum! I see from the the tests you have no damage to your gut, so in terms of whether gluten has a part to play in this, can I ask were you consuming gluten every day before the tests, and if so, how much and for how long? The reason I ask is if you had been on a gluten free diet prior to the tests, then your gut might...
  2. cristiana
    @trents makes some good points. Yes, I had the symptoms you mentioned. and they improved after I went gluten free, although it took some time However, the cough was something that occurred after I had been diagnosed with coeliac disease and was following a gluten-free diet. It turned out to be related to reflux. I adopted a reflux diet, tried...
  3. cristiana
    HI Sabrine I am so sorry, you are having to cope with such a lot. This news must be overwhelming. However, one thing to bear in mind is something I learned when I was first diagnosed. I spent a lot of time reading people's experiences of Coeliac Disease and found that sometimes all sort of strange and seemingly unrelated symptoms can improve...
  4. cristiana
    PS Sorry @Sabrine, I missed your last point about fattening food. I was in this place at diagnosis, I've never lost weight so fast but I can tell you that now it has come back on, and more! 😂 These foods are full of good fats, and are naturally gluten free. Avocados. Cheese. Dark chocolate. Whole eggs. Fatty fi...
  5. cristiana
    Hi Sabrine I'm a UK Coeliac so thought I'd chime in. (and welcome to the Forum, by the way!) I would definitely encourage you to go for a proper diagnosis. In Britain, the medical community takes a diagnosis of Coeliac Disease very seriously, as there can be quite a few complications related to this autoimmune disease if a gluten free diet...
  6. cristiana
    Hello @Blue Roan Thank you so much for this encouraging update! I'm so pleased you are feeling better. I agree, the smallest things can impact the body in major ways. I wish you continued improvement. Tania
  7. cristiana
    Hi Matt I am based in the UK and find that that foods with the 'may contain' label more often than not DO contain gluten and I end up with symptoms. Here in the UK labelling has become incredibly strict, but that has to be a good thing. I think in time I am sure you will find gluten-free products you like that you will enjoy, it just takes a...
  8. cristiana
    Hi Amanda I had a friend whose father was a coeliac and he was the sort of man who would be very thorough and ring manufacturers if he was in any doubt about a product containing gluten. He made a point of buying Tesco's yeast extract. I've used it myself more recently as I missed Marmite which I do know can contain traces of gluten, and I haven't...
  9. cristiana
    I would try the rolled towel pillow, to put under your neck. It has helped me enormously, including addressing facial pain. I use a hand towel and put it under my neck at night when I am having issues. This is how to make one. Worth reading up about how to use it.
  10. cristiana
    @Blue Roan Hi Blue, sorry as this is going to have to be a bit of a rushed not properly edited post as I'm going on a trip for a few days but will try to check back on replies, if there are any, when I can. I have felt like you do (and still sometimes do) with arms and legs not being mine. It wa particularly bad following a neck injury (picking up...
  11. cristiana
    I've not baked bread for many years, but I had a look at a few websites and found this on Quora, as someone posted their bread had this problem. I really don't know if it will help, but it might help. https://www.quora.com/If-my-whole-wheat-bread-smells-like-alcohol-does-it-mean-that-I-undercooked-the-bread#:~:text=What makes yeast bread taste...
  12. cristiana
    I never eat pasta or pizza out, in a busy restaurant it's too easy to be served the wrong portion, as I've found to my cost.
  13. cristiana
    I'm so sorry you had this experience @GardeningForHealth. I've had this happen to me. Responding so violently to gluten as that (I'm the same) puts you off eating out. When we go on holiday this year I've decided I just can't risk being that ill so will be on a permanent gluten-free picnic, buying things which are certified gluten-free in stores and...
  14. cristiana
    Just to say I am the same as trents, and another friend of mine, too, diagnosed roughly at the same time as me. In the old days we felt unwell, now our reactions are very much worse if we are glutened.
  15. cristiana
    Another suggestion, from my mother-in-law, who lives in Italy. A tablespoon of blackcurrant jam with each meal. Make sure you are drinking enough, and moving enough too.
  16. cristiana
    @seameruok Any bowel movement changes that last more than a few weeks ought to be run past your GP. Although it could well be coeliac disease behind the issue, best to be sure. In women, it is worth remembering that there are certain gynecological issues that can cause constipation, too.
  17. cristiana
    Hello @Jessica Hoffman and welcome to the forum It is possible you are suffering from vitamin and mineral deficiencies - were any levels checked? If so, I wonder what your Iron and B12 levels are like, as being deficient in either could make you very tired. Of course, two other reasons for fatigue are Thyroid issues and also diabetes. Have you had...
  18. cristiana
    @Chris butcher As you are feeling so unwell, it might be worth requesting a cancellation appointment from your hospital. Perhaps worth ringing the hospital concerned and to speak to the booking team, to ask them to please contact you if anything comes through? Do you know how much longer you have to wait? But that aside, I think because you...
  19. cristiana
    @Chris butcher Having seen a lot of posts on this forum over the years, it is a very common worry. When one is feeling so unwell, it is not surprising one is thinking , "Can this just be coeliac disease?" I certainly thought that. But you know what, it could just be that, and if you have had it some time, it might take you a while to heal. However...
  20. cristiana
    I wonder if it is the same product in the States because, according to my gastroenterologist here in the UK and the NHS website, Gaviscon does help stop acid going up the throat. https://www.nhs.uk/medicines/gaviscon/#:~:text=About Gaviscon,-Gaviscon can be&text=The medicine works by forming,and reduces pain and discomfort. "Common...
  21. cristiana
    Hi @Chris butcher @trents is right, you probably are having pain in your oesophagus. Although I am on a strict gluten free diet, yes, I do get bouts of it from time to time. Mine appears to be related to reflux and/or gastritis. When it gets bad I try to go back to a very simple diet, eating food like white fish or really well cooked chicken...
  22. cristiana
    Hi Chris I am so sorry to hear you are in pain. For clarity, are you saying that you can eat gluten containing food without it upsetting you, but gluten free food causes you pain? Cristiana
  23. cristiana
    @trents Quite right. That is definitely worth noting. I am not sure if my local lab is still operating the old >100 cut off system, but for anyone whose antibodies creep over that level knowing the real number would be very helpful. To do one's best to keep to a strict gluten-free diet and still to find that after a few years my numbers stood...
  24. cristiana
    When I was diagnosed in the UK back in 2013, the lab cut off for TTG levels was an upper limit of 100, with normal levels being <15. My lab report simply read >100. I believe my numbers must have been sky-high at diagnosis because they took about eight years to normalise. I expect under the new National Institute for Health and Care Excellence...
  25. cristiana
    Hello Bran and welcome to the forum. The strange thing about coeliac disease is that people react to glutening in so many different ways. Some people know they have been glutened because they get gastric issues. Others find their symptoms are neurological - twitching, tingling and numbness, for example. Some individuals get both. YetI have one friend...
×
×
  • Create New...