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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @Lrgthrcl I am a Mod but haven't been on the forum for a while as I have a lot on at work, but saw you post. I think it is excellent that your daughter has been referred to paediatrics. However, if you do have private insurance, I'd definitely use it in your position as I suspect you will be seen much sooner. I agree that addressing...
  2. cristiana
    Thanks for posting this, Scott. Very useful to have this resource on the forum.
  3. cristiana
    This isn't uncommon in coeliacs - see this link, for example: https://www.cghjournal.org/article/S1542-3565(03)00313-6/fulltext In my own case my ALT was normal but I had a really weird reading in that my immunoglobulin levels were 41 instead of 35 max. This really worried my GP but when I saw my consultant he said, "Oh yes, it's unusual, but...
  4. cristiana
    My consultant has prescribed Fultium Vitamin D, but I also take Vitamin B and magnesium from time to time. I also take Boots jelly sweets for Skin and Hair, can't remember the name. Going back to pelvic pain, I did notice that coming off lactose for a while reduced lower quadrant bloating and that helped reduce the pelvic pain. I do consume dairy...
  5. cristiana
    You must have your own toaster (or own toaster bags); for "may contain" read as "does contain", and try to avoid eating out for a while. If small amounts of gluten are sneaking in, this will have knock-on effects and could be causing your constipation. If you take constipation of out of the picture, you may find that your other symptoms settle down.
  6. cristiana
    PS If you are perimenopausal and getting vulvodynia type pain, repeated bouts of cystitis or anything along those lines in that area, you may find using Ovestin cream worth trying first before attempting to take systemic HRT. I have a family history of breast cancer so am avoiding systemic HRT, but the small amount of Ovestin cream I've had to use has...
  7. cristiana
    Hello @EmilyKate and a big welcome to the forum! I didn't want to read and run but I do have to run soon - taking an elderly relative to a hearing test! But yes, it sounds like you are in the same boat. I'm so glad you've had the extensive testing to rule out gynae problems but I am not surprised that nothing was found. I've recently had...
  8. cristiana
    @Ruby89 Hello Ruby It is good to hear from you again. Thank you so much for the update. For many it takes a while to unpick what is a coeliac symptom, what might be another condition, or what might be a 'hangover' from damage (some of which will be reversible) caused by deficiencies. So what I'm saying here is that if you do have lupus (and...
  9. cristiana
    Well that sounds OK, I managed to take an iron supplement which did contain gluten so it does happen (a mix-up with the packaging of another similar but gluten free product). However, dining out is definitely something to stop for now.
  10. cristiana
    Hi gffoodie It took me a long time for my numbers to go down to normal levels, it is so frustrating. I wonder, are you taking any supplements or medication which could be a source? Cristiana
  11. cristiana
    This is an important consideration. Interesting how things vary in Europe, I think there are benefits to having a diagnosis in Italy as well as in Britain.
  12. cristiana
    Hello @badastronaut and welcome to the forum! Can I start by asking a couple of questions: when you were tested for celiac disease, did that include a biopsy? Sometimes it takes a biopsy to be 100 percent sure as a small percentage of coeliacs do not have positive blood tests. And for your previous blood tests, were you consuming gluten regularly...
  13. cristiana
    Hiya @LabLynnie My sympathies, this is such a thing for us coeliacs. Mine tend to be the aura variety these days but occasionally I still get the strangest migraine where I feel quite nauseous with generalised pain at the back of my neck, and light sensitivity. I've come to the conclusion that that type really responds well to lying down, if...
  14. cristiana
    I think getting your own pans may help. Good idea. It is great you are having an endoscopy as you should get some answers then. If it isn't gluten a problem like a hiatal hernia could be causing the issues, quite a common issue. Do keep us posted.
  15. cristiana
    @Sledwards I wouldn't worry unduly if the numbers are only slight, and don't keep rising - some people run at higher levels. Good to run past your doctor but as plumbago says, it could just be that you were dehydrated. @plumbago I think this topic was started by someone trying to find an association between polycythemia vera and celiac disease....
  16. cristiana
    Hello Becca and welcome to the forum It sounds like you have done the right thing to come off your PPI if it is causing tingling in your mouth. I have a dear friend who struggles with chronic gastritis and also the PPIs she's been prescribed over the years to combat it. Eventually she found relief with Ranitidine, a different class of drug, which...
  17. cristiana
    Hello there. I'm so sorry to hear you are suffering from these headaches, the throbbing type are horrible. Just one other thought - might be worth doing a food diary in case anything new that you have added to your diet as a substitute, such as gluten free bread for normal bread, contains an ingredient which is causing these headaches. Reading your...
  18. cristiana
    Hello @Dionysus and welcome to the Forum. I am so sorry to hear about all your issues. When you say you have seen a lot of specialists in the past, did that ever include a gastroenterologist or any other specialist who has run a coeliac panel, which would include these important blood tests: Total immunoglobulin A (IgA) IgA Tissue...
  19. cristiana
    @icelandgirl It will be interesting to see what the booster is like! Mine is in February so I'll beat you to it and will report back! @Scott Adams I agree, my experience of it is a burning pain along the lines of bad sunburn which interestingly sometimes comes back from time to time. I had it yesterday. Do you ever find it comes back, too?
  20. cristiana
    I ought to point out that many people find sensitivity does worsen, this isn't always the case. I have one acquaintance who never reacts and another whose brother was diagnosed with coeliac disease and for whatever reason now no longer reacts in an obvious way to gluten, so has gone back to eating it. However, this is not a good idea. Whether you can see...
  21. cristiana
    Vent away, @Roberta RabbitMum, and welcome to the forum! It is always good to hear the experiences of others. but I'm sorry you've had another bout of anxiety. The problem with coeliac disease is it seems to have so many manifestations, it is so easy for the medical community to misdiagnose. It is one of those diseases that has been called, "the...
  22. cristiana
    Good morning Risk Assessed and welcome to the forum. I am sorry to hear you are experiencing this but rest assured that you are not alone. Just one quick search of this forum has turned up this thread and others: Anxiety can arise following a glutening purely of itself, and/or perhaps, as in my case, another type can arise - a fear of what symptoms...
  23. cristiana
    Poor you, @trents, that sounds really tough. I am glad you have found something that helps you. Interesting, @RMJ Thanks for the tip, @knitty kitty. I never really thought about migraines being caused by deficiencies before.
  24. cristiana
    I didn't realise you had had shingles, Scott. Some years ago someone posted on this forum ( @Mimsy) that they had had repeated bouts of shingles as a child. I wonder if coeliacs are more prone to it? My first two suspected episodes did not have the accompanying rash (therefore it could have been zoster sine herpete) but during a third bout my doctor...
  25. cristiana
    Also re: migraines, oddly, although the painful ones left me I still get auras which affect my vision for about 15 mins, sometimes less, but I'll settle for those instead of the painful ones.
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