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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. Hi Emily I'm a coeliac based in the UK, and was diagnosed eleven years ago. My mum was diagnosed with breast cancer on my son's fifth birthday, two years before. The strange thing is that I have never put two and two together, but perhaps it added to my health anxieties post-diagnosis, of which there were many. I had a lot of odd symptoms running...
  2. Hi, @Blanco Yes, I missed the Northern Lights too. Although my sister tells me there are some more due soon, I think this coming week. Maybe we'll see them next time, hope so, I felt quite cross that I was asleep in front of the TV when the last lot happened! I agree with Trents, now you have your official diagnosis you won't be expected to keep...
  3. That's a very good idea to speak to PALs, I'd do that. That's an incredible wait... four months. I
  4. Hi @ceslater I'm here in the UK. I am so sorry you are having these issues. With regard to your results, we've been in a similar sort of situation but for a different condition, a few years ago. My daughter had issues with a knee problem and we waited months and months for a follow-up appointment with an orthopedic surgeon. We assumed it was...
  5. Re: cheese. Here a food diary is helpful. Some people who are lactose intolerant, temporarily or otherwise, can often eat hard cheeses like cheddar in moderation, because these it is low in lactose. So is butter and cream, by the way. However, milk can cause issues. Worth remembering before you cut out everything. If you have a casein intolerance,...
  6. I think that is very true, Trents, and suspect that's why my bloating is a lot worse when I take Gaviscon and Omeprazole. I had a friend who was taking large doses but wasn't adjusting her diet, and was still drinking strong coffee, etc. It really pays to try a gastritis/reflux diet.
  7. Hi @DynamoCappo I nearly posted this in my first post to you and should have: I find that taking Gaviscon and Omeprazole actually made me really gassy in my stomach and added to the sensation of pressure in my chest and so I rarely take them together for long. Iron supplements also made make me very bloated in the same area. I remember once when...
  8. Hi @DynamoCappo Your post caught my eye as I, too, have found myself in the Accident and Emergency Department, as we call it in the UK, with pain between my shoulders, and awful burning pain in my chest, where the stomach lies just under the ribs. Those pains come in particular when I have gastritis/reflux. I find taking a few days Omeprazole...
  9. Great news, @elthomp! Thanks so much for the update.
  10. Absolutely, it takes about that long with me - in the early days when I took a few risks and ate a places I would never eat today, I usually found the symptoms struck me in the car park on my way home, or at home. Anyway, hopefully others will chime in but if you hear from the wine producers do let us know what they say.
  11. Yes, that does sound as if there might be a link. I would think it might be worth sending an email to the producers and asking them if there is any involvement with wheat, barley or rye in the wine's manufacture. It can happen (see link below). However, nothing to do with wine, but on three separate occasions I have had what I can only explain glutening...
  12. Hi @June Jackson and welcome to the forum I am just wondering if you have had this problem on more than one occasion with this wine? Cristiana
  13. V. interesting. I was away a couple of weeks ago and I had a couple of days where I just couldn't find the right words, I couldn't finish sentences or if I did, frequently it was completely the wrong word. It has happened to me for decades, pre- and post diagnosis. That said, I was not conscious of having been glutened. Do you find you still get these...
  14. I was hit with debilitating anxiety about six months prior to my diagnosis - so alien to my life until that time, it took me a while to realise that it was anxiety. It took about eighteen months to completely go. My blood tests showed very low ferritin and B12 levels, which I think can be contributing factors.
  15. PS If you get pain that goes down the left of your lower abdomen that too can be bloating. I got that for a while, but it went after I gave up lactose for a few weeks. While you are healing, you may be temporarily lactose intolerant, and that can cause gas and bloating. I had a sigmoidoscopy just to be sure that pain wasn't anything to worry about as...
  16. @ruthbrown89 Welcome to the forum! Your post caught my eye because that's a familiar pain to me, and I've had clear endoscopies and colonoscopies over the years. I remember once when it was particularly bad I showed an ultrasonographer where the pain was and she said, "That's your stomach!". I feel that in my case the pain is caused either...
  17. I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage...
  18. HI @Kirbyqueen That's great news your insurance will be kicking in soon. Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
  19. This might be helpful - from Coeliac UK. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=Usually%2C a biopsy of the,more about diagnosis of children.
  20. Hi @Richard1973 and welcome to the forum. I did go through a period of feeling thirsty all the time and my first thoughts went to asking my GP to test me for diabetes. Have you had a test for this condition as if not I think that would be the first thing to rule out? If you were suffering from diabetes, either Type I or Type 2, I've read that...
  21. Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot. It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
  22. I am not a medically qualified person, but I think in your shoes I would do the same. If you are in the UK, there are some really good gluten-free aisles now. The largest range near where I live, currently, appears to be in Tesco's.
  23. Hi Katie I am so sorry you had two miscarriages in the past. Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP. Is it possible that you can speak to your midwife in the meantime for a chat? Cristiana
  24. @Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all...
  25. @Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list! Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something...
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