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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @OhDeer and Welcome to the Forum The diagnostic journey varies enormously, depending on where you live. In my own case, and I am posting from England, from memory I think I got the positive blood test results back in March and then had a biopsy in May. However, this was over ten years ago and pre-COVID, and waiting lists in gastroenterology may...
  2. cristiana
    Just to let UK Coeliacs know that today I was given part one of the two part Shingrix Vaccine and was told it was because I was a coeliac. I am in my mid-fifties, had I not had coeliac disease I would have had to wait until I was 65. I wondered if any other UK coeliacs reading this have been offered Shingrix? I cannot say whether this is now standard...
  3. cristiana
    You are more than welcome - happy reading! But without wanting to sound biased, as I am a Mod, I think this website was just as helpful, if not moreso, so stick around! 😉
  4. cristiana
    I bought a book called "Celiac Disease for Dummies" when I was first diagnosed. Found it very helpful. We're going back ten years now, so I expect it's been revised since then. I'm in the UK - but pretty sure the authors were Americans. Sometimes celiacs suffer from Anxiety and/or Depression at the time of diagnosis. I did and found The Depression...
  5. cristiana
    Sorry - we say this in the UK, put food into a blender, or put a hand held blender into food, to make a puree. Probably an new application of a word we used a lot in WWII, although I wasn't there at the time!😄 I am sorry as I am short of time so I can't read this thread properly, @Always-Hungry-Kate. But certain foods affected me around the time I ...
  6. cristiana
    I have had bouts of nausea when I have accidentally ingested gluten, and when I was first diagnosed. It was pretty miserable at first. I've since concluded that gastritis-like symptoms related to gluten is an issue for me. Worth looking into the symptoms and if you think it could be an issue for, look up some of the gastritis threads in this forum. ...
  7. cristiana
    "Patients with iron deficiency anemia - Affects approximately 1 in 31 celiac disease patients" When I asked a doctor recently if my father could be tested, I was told, words to the effect, 'no point' as he was not iron anaemic it was unlikely he had coeliac disease. But this study would seem to indicate otherwise. However, I am truly astounded...
  8. cristiana
    Congratulations @koreanresto on this venture, I wish you every success. I am from the UK. In this country, as a result of some tragic cases where a number of people have been taken ill or worse due to nut and sesame allergies, food standard regulations regarding the preparation of food have tightened up significantly to protect the customer. ...
  9. cristiana
    I once took 2 weeks to recover from an episode of diarrhea caused I think by food poisoning before I was diagnosed with coeliac disease. It was during my first pregnancy, around the time when I was beginning to get all sorts of strange symptoms which I now attribute to coeliac disease, such as mouth ulcers and aura migraines. Quite often, even now...
  10. cristiana
    Definitely try your utmost with the NHS, even if it means asking to see another GP within the practice for a second opinion if needs be. There are huge benefits in this country from obtaining a proper NHS diagnosis. I wish you all the very best. Do come back to us if you have any questions.
  11. cristiana
    You may be pleasantly surprised. Through a GP brother-in-law I've been made aware that in recent years there has been a real drive to educate health professionals,. The "Think Coeliac!" is one initiative that comes to mind - have a google and see the material that has been put together expressly to inform medical professionals. Coeliac disease affects...
  12. cristiana
    Hello @Fsmith and welcome to the forum I think you are very wise to consider the possibility of coeliac disease. Often people think coeliac disease = diarrhea, but in fact for some people the opposite is the case and constipation is an issue. The symptoms you mention there could certainly point to coeliac disease. Definitely approach your GP...
  13. cristiana
    I remember my gastroenterologist saying to me once, when I was complaining of generalised itching, "Coeliacs get itchy skin". Our appointments aren't long so I never asked him why. However, at the time I got the impression that he wasn't talking about Dermatitis Herpetiformis, but generally itchy skin. He will have seen many hundreds, if not thousands...
  14. cristiana
    See link, and extract from it, below. If this is anything to go by, it would appear that exposure to wheat could cause issues. https://www.ncbi.nlm.nih.gov/books/NBK538209/ "Deterrence and Patient Education It is essential to determine the triggers for a patient with atopic dermatitis. Reduction or elimination of these triggers is an important...
  15. cristiana
    I ought to add, if you think it is possible you will need an endoscopy afterwards do make sure you continue to include gluten in your diet. The recommended amount is 2 slices of normal i.e. gluten containing bread or the equivalent until the test date.
  16. cristiana
    You are more than welcome. It could be that things are a bit slower at this time of year with the uptick in hospital staff off with various winter illnesses but you should get your result soon. I would say it is worth chasing if you hear nothing after three weeks. Do come back to us once you have the results if we can help any further. Cristiana
  17. cristiana
    Hello Sassybear, Good to have you on board! I'm posting from the UK. It seems to me that this varies a lot and could well depend on your local NHS waiting times, or your private clinic's lab. I tend to see my consultant once a year for a review. My bloods tend to be taken on the Thursday and are back in time for his clinic the following...
  18. cristiana
    @icarumba Try emailing them - I used to work for a company called Goodman Fielder Wattie back in the day in London, assume it's the same people. They had an office in Piccadilly. https://wonder.com.au/contact
  19. cristiana
    Thank you RMJ, that makes sense. I think the cut-off point for Hb levels at the lower end haven't changed since my blood was first tested pre-celiac diagnosis ten years ago, but the higher levels have been adjusted down, certainly in my area. I suspect this is possibly a WHO revision, or similar. It might explain why perhaps the doctors who have been...
  20. cristiana
    I've just had an operation and the hospital ran some blood tests before I went into surgery. My Haemoglobin was flagged as just above range (15.2 - normal lab values for women cut off at 15) and my Red Blood Cell Count was 5.18 (normal lab values for women cut off at 4.8). Looking at my coeliac blood tests over the last eleven years I've noticed...
  21. cristiana
    I've just done some detective work and discovered the thread on Mumsnet where this discussion originally appeared. I am really surprised to read the negative comments about gluten-free cakes. The gluten-free cakes I buy or make are to my mind at least just as good, I really can't taste the difference. I also googled the photograph - hoping there...
  22. cristiana
    A UK perspective: I make gluten free cakes all the time with Dove Gluten Free Flour. They tend to be what the French call "Quatre-Quarts" cakes - you weigh the eggs, then use the same weight of gluten free self-raising flour, fat and caster sugar. Put all the ingredients in together, so easy, with of course the necessary flavourings.. I use the same...
  23. cristiana
    Hi Aaron Yes, worth reading some articles about the permanency of this condition it but having done so myself, I came away concluding adult eczema is something that I will need to learn to live with. Oddly enough, I when I wrote my post to you I was thinking "I haven't had a flare in ages" - only to be awoken last night with unbelievable itching...
  24. cristiana
    Hi Aaron I sometimes have extreme itchiness, where I can't see anything on my skin. At times it has felt like I've been bitten by mosquitoes bodywide, or sometimes it has been just patches of skin, like the nape of my neck, round my waistline, chest, back etc. When I have a flare changes of temperature makes the itching worse, and the itching does...
  25. cristiana
    Don't worry, @Aaron2018, it isn't always easy to see esp. as it had just been reopened. 🙂 An old thread but I thought seeing as it's live again I'd add another thought. In the UK a lot of students are choosing to take up apprenticeship schemes over college and uni. An apprenticeship scheme in a gluten free catering establishment could be a great wa...
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