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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @brian1 I'm a UK based Moderator here on the forum. If you are British, you may find that in your region you might be able to get certain gluten-free food (usually staples like bread) on prescription. I recommend you ring Coeliac UK for the most up-to-date advice on this. https://www.coeliac.org.uk/home/ There is some advice here for...
  2. cristiana
    Back in 2013, prior to diagnosis, I had been quite unwell so my GP ran several blood tests and the tests for coeliac disease just happened to be some of them. I have no idea what my precise numbers were, but the cut-off was 100 for the TTG test and mine was over 100. I remember both my GP and I were delighted when I went to see her as finally we felt we...
  3. cristiana
    If you are prepared to self-fund, it is sometimes possible to self-refer to a private gastroenterologist in the UK. My friend did. To see a gastroenterologist through the NHS, you typically need a GP referral or a referral from another consultant (for example, a gynaecologist who suspects someone has in fact a gastric problem can refer them onto gastroenterology...
  4. cristiana
    Good afternoon @Blanco! It's always good to see a British coeliac on the forum. Coeliac UK, the British coeliac charity, is a fabulous organisation (worth joining it just for the gluten-free food guide app, by the way) but the one thing it doesn't have is a forum, so we do get quite a few British people posting here. One of the things that stood...
  5. cristiana
    Several of us on this forum have found ourselves in this situation - anxiety is often common in coeliacs around the time of diagnosis. Although it is written to help people with depression, I found Dr Steve Llardi's book (link below) really helped my anxiety. You might wish to take a look at it. He suggests making some lifestyle changes, all natural...
  6. cristiana
    I've sometimes found it hard to attribute flares to a particular cause but it could just be that gluten is sneaking in somewhere? That aside, another thing that can affects my tinnitus and neuropathy is stress. Have you been anxious about anything of late?
  7. cristiana
    Hello @elthomp and welcome to the forum! I am sorry to hear you have ongoing problems with tinnitus and neuropathy. In my own case, neuropathy got a lot better once on a gluten free diet but it was one of the last symptoms to recover. A good year or so, and even today I get tingling in my arms and legs sometimes. My tinnitus remains to some extent...
  8. cristiana
    Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve. I read that sometimes a damaged trigeminal...
  9. cristiana
    Hi Tibaked If you are diagnosed with coeliac disease, you may find that all sorts of symptoms will be alleviated by a gluten free diet. GERD and lactose intolerance can be greatly reduced if not eliminated once the gluten-free diet is adopted. However, if you want to be tested and officially diagnosed you will need to have been consuming gluten until...
  10. cristiana
    This is similar, we call this Apple Crumble in the UK. As I understanding, fruit crumbles became popular during WWII when ingredients were scarce. There aren't many traditional pubs where a crumble doesn't appear on the puddings menu to this day. Bramley Apples are sour apples used for cooking in the UK, hence the need to add sugar. If you are using...
  11. cristiana
    Hi @Lenabeana Welcome to the forum, but I am sorry to hear you are in this situation. However, I agree with Trents, this is definitely a case where you need to take one step at a time. I am not sure where you live so I can't claim a knowledge of your national employment legislation, but re: your boss firing you because of an allergy, have there...
  12. cristiana
    Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated. That pain was what troubled me most after the operation, far more than the operation site. It took a few days to really settle down, I was quite badly bruised. It was taking so...
  13. cristiana
    This wonderful, Anne. I think you have a point about why people disappear off forums. I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal). However, once my antibodies were back within normal range...
  14. cristiana
    Hi @Patsul I had the very same issue with gas, it affected me at first in my mid abdomen, then moved to the lower left quadrant, so I sympathise! My gastroenterologist recommended that I went dairy free for a little while. He suggested giving it 2-3 weeks. It worked a treat. Coeliacs are often temporarily lactose intolerant at diagnosis, because...
  15. cristiana
    @trents That's really interesting, thank you for the update. On this side of the Atlantic it seems Coeliac UK are still with the old system - will keep an eye on their website for changes.
  16. cristiana
    Hi @beeboschmeebo82 It is always good to meet another British person on this forum - there are quite a few of us! Certainly, a small percentage of coeliacs have negative blood tests, your GP may or may not be aware. So, to properly diagnose coeliac disease, or to rule it out, people often have to take on the role of self-advocate in these circumstances...
  17. cristiana
    Hello @Lrgthrcl I am a Mod but haven't been on the forum for a while as I have a lot on at work, but saw you post. I think it is excellent that your daughter has been referred to paediatrics. However, if you do have private insurance, I'd definitely use it in your position as I suspect you will be seen much sooner. I agree that addressing...
  18. cristiana
    Thanks for posting this, Scott. Very useful to have this resource on the forum.
  19. cristiana
    This isn't uncommon in coeliacs - see this link, for example: https://www.cghjournal.org/article/S1542-3565(03)00313-6/fulltext In my own case my ALT was normal but I had a really weird reading in that my immunoglobulin levels were 41 instead of 35 max. This really worried my GP but when I saw my consultant he said, "Oh yes, it's unusual, but...
  20. cristiana
    My consultant has prescribed Fultium Vitamin D, but I also take Vitamin B and magnesium from time to time. I also take Boots jelly sweets for Skin and Hair, can't remember the name. Going back to pelvic pain, I did notice that coming off lactose for a while reduced lower quadrant bloating and that helped reduce the pelvic pain. I do consume dairy...
  21. cristiana
    You must have your own toaster (or own toaster bags); for "may contain" read as "does contain", and try to avoid eating out for a while. If small amounts of gluten are sneaking in, this will have knock-on effects and could be causing your constipation. If you take constipation of out of the picture, you may find that your other symptoms settle down.
  22. cristiana
    PS If you are perimenopausal and getting vulvodynia type pain, repeated bouts of cystitis or anything along those lines in that area, you may find using Ovestin cream worth trying first before attempting to take systemic HRT. I have a family history of breast cancer so am avoiding systemic HRT, but the small amount of Ovestin cream I've had to use has...
  23. cristiana
    Hello @EmilyKate and a big welcome to the forum! I didn't want to read and run but I do have to run soon - taking an elderly relative to a hearing test! But yes, it sounds like you are in the same boat. I'm so glad you've had the extensive testing to rule out gynae problems but I am not surprised that nothing was found. I've recently had...
  24. cristiana
    @Ruby89 Hello Ruby It is good to hear from you again. Thank you so much for the update. For many it takes a while to unpick what is a coeliac symptom, what might be another condition, or what might be a 'hangover' from damage (some of which will be reversible) caused by deficiencies. So what I'm saying here is that if you do have lupus (and...
  25. cristiana
    Well that sounds OK, I managed to take an iron supplement which did contain gluten so it does happen (a mix-up with the packaging of another similar but gluten free product). However, dining out is definitely something to stop for now.
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