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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Came across this thread by accident. A little late to the party but I wanted to add that my consultant told me ten years ago, when I was diagnosed, that he had just diagnosed someone in their nineties! From memory, I think he said the patient was 96.
  2. cristiana
    Ah... yes... @knitty kitty. I forgot the all important magnesium. That's amazing stuff! I remember the most annoying eye twitches around the time of my diagnosis and a lot of people on this forum had posted about the wonders of taking magnesium for twitches. The twitching around my eyes led me to believe something really awful was going on, net result...
  3. cristiana
    @MaryJb Here You may wish to look into sacroiliac pain, and referred pain from sacroiliac issues (can affect thighs, hips, buttocks, groin) I had shocking sacroiliac pain around the time of my diagnosis and for some time afterwards. It has greatly improved but I still get it from time to time. I found bloating greatly exacerbated it, as well...
  4. cristiana
    Hi Raquel Yes, but when I was first diagnosed I had diarrhea when I consumed yoghurt, milk (strangely, even lactose free) and soft cheeses. However, cheddar cheese was fine, which is low in lactose but high in casein, or so I am led to believe. Now I am fine with all the above, but I still find that if I am a bit constipated a couple of lattes...
  5. cristiana
    Hello @knitty kitty and @Raquel2021 Yes... re: Dexa scans. Here in the UK these are normally offered by state medical care (the National Health Service) following a coeliac diagnosis. I think I had one shortly after my diagnosis (within the first year) and had another one perhaps five years later? A very straightforward test - you lie flat on...
  6. cristiana
    Hello Keith I am so sorry you are still experiencing these issues. The first port of call in situations like this is to be absolutely sure that no gluten is sneaking in. I had a 'relapse' some months after my diagnosis and it took me very long time to work out I was buying an iron supplement that had gluten in it. There is a gluten free iron and...
  7. cristiana
    Hi Carmen22 I'm so sorry you are still in so much pain. Apart from the great advice above, I would recommend temporarily you look into diets to relieve reflux and gastritis. I get both, normally after an episode of glutening but sometimes not. Generally speaking, such diets avoid spicy and fatty foodstuffs, citrus fruits, tomatoes, alcohol...
  8. cristiana
    Hello Mary I have family in Italy. My experience is that city supermarkets, and those of larger towns, contain a really good range of gluten free products, whereas in villages you may find the offer more limited to basics such as dry pasta and the most basic cookies (or biscuits, as we say in England, sorry, not sure where you are posting from). However...
  9. cristiana
    @STE9900 - Hi! How frustrating, I am so sorry you are going through all of this. This sort of thing is so difficult, often views differ between specialists on all sorts of things. I'm going through this with a different health issue at the moment here in the UK and I keep being told different things by different experts. If you have the funds...
  10. cristiana
    Chiming in here to say that if dermatitis herpetiformis and shingles are eliminated, one other thing it might be is adult onset eczema. I got it during one of the lockdowns, so I guess it must have been about 21/2 years ago. I had it first on my chest, then it went to my scalp, then my midriff. It seemed to be both sides too. My doctor thought at...
  11. cristiana
    This is a very interesting article but I am afraid I don't understand some of the terminology. For anyone who can, are they saying here that if a coeliac mother has a baby, the baby has a 11-14 per cent chance of having coeliac disease? I've read so many differing statistics. The one that has been bandied about here in the UK is that there is...
  12. cristiana
    Hi @TheSootyShow Love your name - I was a great fan of Sooty when I was little, and my children too! I'm in the UK so thought I'd chip in here. I know someone who had a private endoscopy with no positive blood tests - she had had a lot of gastric issues and just wanted to rule it out, and a private consultant was happy to do it. She didn't have...
  13. cristiana
    Another amazing Cornish product, the answer to everyone's dream who misses Mars Bars. Thank you Buttermilk, also for your fudge products. If only all chocolate and sweet manufacturers could keep gluten out of their recipes like you. https://www.buttermilk.co.uk/collections/dairy-free/products/caramel-nougat?gad=1&gclid=EAIaIQobChMI98L3yYj4gQMV...
  14. cristiana
    Also, meant to say - recovery from anxiety and depression can sometimes take a while. If you or I were to break a leg, no-one would expect us to be out running marathons the following week. Recovery takes time. I read in a book on depression (I think it was by a chap called Tim Cantopher, Depression, Disease of the Strong) that If your recovery was...
  15. cristiana
    Yes, I agree, B12 levels are so important. Low levels of this will not do your anxiety any good. When I was diagnosed my levels were just hovering around the low end of normal. Reading about B12 on this forum I came to realise that here in UK what is construed as a normal B12 level in other countries is thought to be a deficiency. I then started taking...
  16. cristiana
    Hiya Tanja I do think the line you are describing could be possibly to do with a hernia. However, do you know if you had diastasis recti during your pregnancy? This link describes it: https://blogs.bcm.edu/2022/08/24/abdominal-bulging-diastasis-recti-or-hernia/#:~:text=The main way to tell,discomfort and abdominal wall weakness. I am...
  17. cristiana
    So to summarise, on the one hand you have been told by your gastroenterologist that you don't have coeliac disease because your villi are in 'perfect condition', but on the other hand your report states, "The presence of increased lymphocytes with preserved villous architecture raises the possibility of potential/early celiac disease." I can see why...
  18. cristiana
    @Dawson123 Gastritis is a condition that affects many people for a host of different reasons. The National Health Service website here in the UK notes the principal causes: infection with a bacteria called helicobacter pylori (H. pylori) taking anti-inflammatory painkillers (such as ibuprofen) and aspirin drinking too much alcohol being...
  19. cristiana
    Hi @Dawson123 and welcome to the forum. I can quite see why you have questions. Interestingly, when I had my last biopsy (and I am a coeliac) my results came back with raised lymphocytes but no villous damage. I've been gluten free for a decade and my gastroenterologist said words to the effect that if I'd eaten nothing but rice and water all this...
  20. cristiana
    I was filling in a "special diet" section in a hospital form for an op I have to have in a few days time, as I have to probably stay over for 24 hours, and there was no section for gluten free/Coeliac Disease. 😟 However, the hotel I am staying at the night before offers a gluten free option for breakfast. Unfortunately because I can't eat that morning I ...
  21. cristiana
    My children are both terrified of being sick. I trace it back to a holiday in Italy when they were very young and both were very sick following a meal at a restaurant. Neither are coeliac, but I can imagine being a coeliac with a fear of vomiting could be a challenging thing to manage. I think one thing worth pointing out to your daughter is that not...
  22. cristiana
    I often mention a dodgy old dishwasher on this forum that we used to own. I frequently emptied plates from it that didn't feel squeaky clean. When we replaced it with a dishwasher that used clean water for the initial rinse cycle, my Ttg numbers improved. Could have been a coincidence though. I know a lot of people in the UK who wash up and never...
  23. cristiana
    No - so odd. But it feels as if it should be. It also feels as if I've been stung by a bee. No sting.
  24. cristiana
    Hi Trents. Thanks for coming back to me. Very puzzling - nothing to show for it at all. I can only think that it is either something else altogether, or the ulcer takes a while to show. Apparently sleeping on the affected side is how it can arise, but I seldom sleep on that side. I have read that cartilage injuries can take a long while to heal because...
  25. cristiana
    For nearly a week now I've been suffering from very unpleasant ear pain - it feels at times it is the cartilage, the very tip of my ear - like someone is pulling at it or it's been nicked by a pair of scissors at the barbers type pain, other times it feels like there's a bee sting at the side of my head. It hurts if I put pressure on the ear, or the side...
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