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RMJ

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RMJ last won the day on September 27

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Community Answers

  1. icon Wheatwacked reacted to a post in a topic: Options - 7 year old boy - Helicobacter pylori and serology
  2. RMJ started following Confused is an understatement , Options - 7 year old boy - Helicobacter pylori and serology , Implications of glutening after repairing villi and 7 others
  3. RMJ
    Most antibody tests for celiac don’t report a zero because of the way the tests work. The lowest reportable value is usually <# (# being the lowest quantifiable value for that particular lab’s test). Values can and should eventually decrease into the normal range. So for the lab used for your son, a 9 would be considered normal. A grain of ...
  4. icon RMJ reacted to a post in a topic: Refractory or super sensitive?
  5. icon knitty kitty reacted to a post in a topic: Lymph nodes in neck + thyroid issues
  6. icon Blue Roan reacted to a post in a topic: Lymph nodes in neck + thyroid issues
  7. RMJ
    It will not undo all of the healing. If it did, diagnosis of celiac disease would be much easier! To have enough damage to see on an endoscopy requires several weeks of gluten ingestion.
  8. icon Scott Adams reacted to a post in a topic: Lymph nodes in neck + thyroid issues
  9. RMJ
    I’ve had on and off swelling of a salivary gland below my jaw - sialoadenitis. It was very visible when it swelled though.
  10. RMJ
    I have long hair and tend to get it in my mouth so I make sure there are no gluten ingredients in my shampoo. I don’t worry about something that just goes on my skin, away from my mouth.
  11. RMJ
    I noticed that you said you eat oats. Are they labeled gluten free? Oats are often contaminated with wheat if special care isn’t taken. Also, some with celiac disease react even to gluten free oats.
  12. icon RMJ reacted to a post in a topic: Hi I’m Sammie
  13. RMJ
    I am a sensitive celiac and would not hesitate to take it.
  14. RMJ
    To manufacture polysorbate 80 requires multiple chemical reaction steps. Even if one of the chemicals used to make it was derived from wheat, it would be highly unlikely that any gluten would still be there at the end. Plus it is a partway down on the list of inactive ingredients in omeprazole, so there won’t be a huge amount of polysorbate 80 in each p...
  15. RMJ
    That is a test for total IgA, it is not a test for the IgAs related to celiac disease. As Trents said, since it is a bit low, the celiac IgA tests may give falsely low results.
  16. icon Dora77 reacted to a post in a topic: Am I overexaggerating or is it normal?
  17. icon Scott Adams reacted to a post in a topic: Potential diagnosis
  18. RMJ
    With the range and units it does not make any sense for that test to be for Tissue transglutaminase IgA. That normal range would be very logical for total IgA. Please ask your GP when you see him/her.
  19. RMJ
    Based on the normal range and units, that looks like a test for total IgA, not a celiac specific test. Were any other tests run?
  20. RMJ
    Some certified gluten free foods are made on shared equipment. presumably they have excellent cleaning procedures that have been tested. So safety for celiacs is really going to vary from one manufacturer to another,
  21. icon knitty kitty reacted to a post in a topic: Blunted villi almost 4 year after diagnosis
  22. RMJ
    Do you have the actual biopsy results (pathology report) or just the statement that biopsies were negative? You may want to ask for the actual report to see if it shows any MILD signs of celiac disease.
  23. RMJ
    For my biopsy the pathologist didn’t indicate a Marsh scale, but my gastroenterologist was able to say what it was based on the biopsy results. It is typically recommended to take six biopsies to find celiac disease. I think that is just to have less chance of missing it. Damage can be patchy, and only one biopsy has to show celiac damage to say y...
  24. RMJ
    Be sure to eat plenty of gluten between now and your gastroscopy. Stopping gluten too soon can lead to false negative results. Plus, in case you do have celiac disease, you might want to eat all of your favorite gluten-full foods while you can!
  25. RMJ
    Celiac associations have some directories of physicians: National Celiac Association Pediatrics directory Celiac Disease Foundation searchable directory
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