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RMJ

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RMJ last won the day on December 30 2024

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Community Answers

  1. icon RMJ reacted to a post in a topic: Waiting on biopsy results but wanted opinion on bloodwork
  2. RMJ
    Wow. Thanks for following up on this. Paperwork and one test? I used to think that gluten free certification meant something.
  3. icon Aleda D reacted to a post in a topic: Blunted villi almost 4 year after diagnosis
  4. RMJ
    That is strange. Other pages talk about testing. The one thing I like about GFCO is that the handbook for their certification process is available on their website. I may not agree with the whole process, especially the reduced testing, but at least I can see what the process is. I wish the other certifying organizations would publish their processes...
  5. RMJ
    GFCO does not require testing of each lot, so the “periodic laboratory analyses” fits their requirements. They say testing is done by certified bodies. I’m not sure what that means for an Italian company. The GFCO requirement is less than 10 ppm. Other gluten-free certifying companies may use other limits.
  6. RMJ
    From their email: “rely on analyses that confirm gluten is not detected” This means that they do testing.
  7. RMJ
    The GFCO handbook for the certification process requires testing, at least at first. After a certain number of gluten free batches they can reduce testing. So something doesn’t make sense here. Maybe oil is difficult to test and they made an exception? If so, they should be clear about that. Could it be that they test it at some other stage, rather t...
  8. icon Scott Adams reacted to a post in a topic: Being present in same room as gluten pasta cooking
  9. RMJ started following A year and a half of test confusion... , 3 years with Celiac, now I appear fine. , Being present in same room as gluten pasta cooking and 4 others
  10. RMJ
    Did you have any celiac antibody blood tests? Or just the gastroscopy/biopsy?
  11. RMJ
    Good idea! We don’t have a range hood/exhaust fan so I didn’t think of that.
  12. icon Scott Adams reacted to a post in a topic: Being present in same room as gluten pasta cooking
  13. icon knitty kitty reacted to a post in a topic: Being present in same room as gluten pasta cooking
  14. RMJ
    Scientist here: Actual steam shouldn’t contain gluten - the gluten molecule is too large and heavy. In distillation the larger/heavier molecules stay with the liquid. However a quick google search shows plenty of people who say they react when pasta is cooked. Vigorously boiling pasta water could also create droplets that are larger than steam droplets t...
  15. icon knitty kitty reacted to a post in a topic: Is this safe for someone with celiac disease?
  16. icon Dora77 reacted to a post in a topic: Is this safe for someone with celiac disease?
  17. icon Scott Adams reacted to a post in a topic: Is this safe for someone with celiac disease?
  18. RMJ
    Soap, water and scrubbing won’t “kill” gluten, but it will physically remove it if done well if you also add a thorough rinse step.
  19. icon Scott Adams reacted to a post in a topic: Being a burden to family/friends
  20. icon knitty kitty reacted to a post in a topic: Being a burden to family/friends
  21. RMJ
    I’ve been to restaurants for lunch with people from work and not eaten anything. One time I just had a bowl of white rice. The restaurant didn’t care and nobody made any nasty comments. It took some bravery on my part to do that but it turned out fine. I just tell people I’m there for their company, which is more important to me than the food.
  22. RMJ
    I am also asymptomatic. Not everyone with celiac disease reacts the same way to the same amount of gluten, so it is impossible to say for you whether or not such small traces of gluten would be safe. I am tested for tTG-IgA and DGP IgA and IgG annually. My DGP IgA went up once when I was using a certain brand of supposedly gluten free flour, it went...
  23. RMJ
    Great investigation!
  24. RMJ
    The only good part I see in their response is the gluten free facility.
  25. icon Scott Adams reacted to a post in a topic: What might this EMA result mean?
  26. RMJ
    g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
  27. RMJ
    Have you considered eating plenty of gluten from now until your capsule endoscopy? If you truly have celiac disease that would increase the chances of damage being seen.
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