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RMJ

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RMJ last won the day on December 1

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Community Answers

  1. RMJ
    Soap, water and scrubbing won’t “kill” gluten, but it will physically remove it if done well if you also add a thorough rinse step.
  2. icon Scott Adams reacted to a post in a topic: Being a burden to family/friends
  3. icon knitty kitty reacted to a post in a topic: Being a burden to family/friends
  4. RMJ started following Lymph nodes in neck + thyroid issues , Being a burden to family/friends , Is this safe for someone with celiac disease? and 7 others
  5. RMJ
    I’ve been to restaurants for lunch with people from work and not eaten anything. One time I just had a bowl of white rice. The restaurant didn’t care and nobody made any nasty comments. It took some bravery on my part to do that but it turned out fine. I just tell people I’m there for their company, which is more important to me than the food.
  6. RMJ
    I am also asymptomatic. Not everyone with celiac disease reacts the same way to the same amount of gluten, so it is impossible to say for you whether or not such small traces of gluten would be safe. I am tested for tTG-IgA and DGP IgA and IgG annually. My DGP IgA went up once when I was using a certain brand of supposedly gluten free flour, it went...
  7. RMJ
    Great investigation!
  8. RMJ
    The only good part I see in their response is the gluten free facility.
  9. icon Scott Adams reacted to a post in a topic: What might this EMA result mean?
  10. RMJ
    g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
  11. RMJ
    Have you considered eating plenty of gluten from now until your capsule endoscopy? If you truly have celiac disease that would increase the chances of damage being seen.
  12. RMJ
    Vitamin K is also thought to help bone health, although not all scientific studies agree.
  13. RMJ
    I’ve been taking oral alendronate for 4 years. I haven’t had any doctors be concerned about it. My dentist recommended against the related iv medications because of potential adverse effects on the bones in the jaw - osteonecrosis. Supposedly rare side effect but he had seen it several times. I originally had the same concern as @trents - slowing res...
  14. icon RMJ reacted to a post in a topic: Preliminary diagnoses via blood test in 2009; Is biopsy confirmation worth the contamination required?
  15. RMJ
    I love to bake and have discovered that the brand of gluten free flour used can make a big difference in the result. I find that the recipes developed for a particular brand of flour work best, and a lot of the companies that produce gluten free flours have recipes on their websites.
  16. icon knitty kitty reacted to a post in a topic: Contaminated cooking oils
  17. RMJ
    You can search here for certified gluten free olive oil GFCO productfinder
  18. icon Wheatwacked reacted to a post in a topic: Options - 7 year old boy - Helicobacter pylori and serology
  19. RMJ
    Most antibody tests for celiac don’t report a zero because of the way the tests work. The lowest reportable value is usually <# (# being the lowest quantifiable value for that particular lab’s test). Values can and should eventually decrease into the normal range. So for the lab used for your son, a 9 would be considered normal. A grain of ...
  20. icon RMJ reacted to a post in a topic: Refractory or super sensitive?
  21. icon knitty kitty reacted to a post in a topic: Lymph nodes in neck + thyroid issues
  22. icon Blue Roan reacted to a post in a topic: Lymph nodes in neck + thyroid issues
  23. RMJ
    It will not undo all of the healing. If it did, diagnosis of celiac disease would be much easier! To have enough damage to see on an endoscopy requires several weeks of gluten ingestion.
  24. icon Scott Adams reacted to a post in a topic: Lymph nodes in neck + thyroid issues
  25. RMJ
    I’ve had on and off swelling of a salivary gland below my jaw - sialoadenitis. It was very visible when it swelled though.
  26. RMJ
    I have long hair and tend to get it in my mouth so I make sure there are no gluten ingredients in my shampoo. I don’t worry about something that just goes on my skin, away from my mouth.
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