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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Trent, I’m confused. Crestor and Lipitor are medications to lower cholesterol, they’re not proton pump inhibitors (PPIs).
  2. RMJ
    It’s so great that you’re supporting him in his efforts to eat gluten free. I know some teenage boys need to eat a lot. We never had leftovers when my brother was that age. Some ideas to fill him up and/or get calories into him: Potatoes, perhaps baked with butter and cheese. Hamburgers, although no bread crumbs in it and no bun. Fresh fru...
  3. RMJ
    All four tests positive certainly is a good indication for celiac disease. I’m a little surprised you got the levels down to normal in 5 months, but my surprise may be because it took me 6 years to get deamidated gliadin IgA in the normal range. Has something changed in your diet around the time that symptoms started again? Or a change in medication? ...
  4. RMJ
    This looks like the most recent attempt in Congress to pass a law requiring labeling of medications with respect to gluten, although it didn’t make it through. HR2435 The National Celiac Association advocates for this type of labeling. National Celiac Association Perhaps write to your congressperson and ask them to introduce such legislation o...
  5. RMJ
    This is not one of the standard tests for celiac disease. This tests looks for antibodies against gluten. The celiac tests look for antibodies against either deamidated gliadin peptides or tissue transglutaminase. Here is some information about your test: IgG gluten test
  6. RMJ
    Just to clarify so that you get the information you need: is that LA meaning Los Angeles? Because LA is also the state code for Louisiana.
  7. RMJ
    I am also a fairly silent celiac. I’ve just had to go by the blood tests. After going gluten free I did discover that I had one symptom - nausea (that my doctor discounted). However it isn’t a matter of eat gluten and get immediate nausea. After enjoying a time relatively nausea-free I started to feel nauseated more often when I started baking wit...
  8. RMJ
    My TTG IgA came down pretty quickly, but my DGP IgA took six years to get into the normal range. I found that using foods labeled gluten free isn’t enough for me, it has to be certified gluten free.
  9. RMJ
    I’m not sure what Lysol wipes would do. Gluten can’t be inactivated with Lysol. It has to be physically removed. As for your glass and stainless pieces washed in shared dish water, with sponges, as long as they’re rinsed well afterwards with clean water and there is no visible residue left they should be fine. The washing/sponging loosens any g...
  10. RMJ
    I’m glad you’re feeling better and gaining weight! That’s great. I see from a previous post that your original level was >700. If that is how it was stated, greater than a number, you don’t know if it was actually 701 or 7500. If 7500 it could decrease by 90% and still be over 700! So until you get into a range with an actual number rather than be...
  11. RMJ
    I’ll start with the easy category: Anything metal or ceramic that can be thoroughly cleaned so no residue is visible (not a lot of nooks and crannies) is ok. Sanitizing will not remove/destroy gluten. It has to be physically removed. I’d replace the cutting board if it has any visible scratches.
  12. RMJ
    How wonderfully supportive to have the whole household gluten free!
  13. RMJ
    It says your stomach is normal.
  14. RMJ
    If you stop gluten prior to the endoscopy and no celiac damage is found you won’t know whether it is because she doesn’t have celiac disease or because you stopped gluten. If you don’t have a clear diagnosis of celiac disease from the doctor it can be harder to convince others (relatives, schools, and your daughter herself when she is older) that your ...
  15. RMJ
    With symptoms, family history and positive TTG and Endomysial antigen tests it is likely she has celiac disease. It would be best NOT to remove gluten from her diet now as that could affect any additional testing by the gastroenterologist. While celiac disease isn’t fun, it can be completely taken care of with a gluten free diet, and if she has it, ...
  16. RMJ
    As long as the final product tests under 20ppm the FDA allows this, and it is labeled correctly per FDA regulations. I still probably wouldn’t eat it.
  17. RMJ
    I would ask for a copy of the pathology report for the biopsy to see exactly what was said.
  18. RMJ
    It might, since barley is one type of cereal grain. In the US it would say what types of cereal, meat and seeds so I’m guessing you’re not in the US. I don’t know what the labeling rules are for pet food in other countries.
  19. RMJ
    I agree. I used to be responsible for production of antibodies in rabbits. The antibodies are used in medical diagnostic tests. We’d give the exact same dose of an antigen to a number of highly inbred rabbits and they’d produce widely varying amounts of antibodies.
  20. RMJ
    Does it contain barley? I’ve noticed that a lot of pet food contains barley and barley contains gluten. If no wheat or barley it should be ok.
  21. RMJ
    The rate of decline (which is calculated as a “half-life”) will be the same so if the antibody level after glutening is lower than your original level when diagnosed it will take less time to get back down to normal.
  22. RMJ
    Normal mucosa viewed visually during an endoscopy doesn’t rule out celiac. Whether or not celiac damage can be seen during endoscopy depends on the magnification of the endoscope used.
  23. RMJ
    I will second what @trents said. Eating gluten right before a test will not affect the antibody levels. Antibodies aren’t created that quickly. I also thought I was a silent celiac. Once I went gluten free I just generally felt better.
  24. RMJ
    Allergist definitely wrong. The 261 is not celiac antibodies.
  25. RMJ
    When I was diagnosed I didn’t think I had any symptoms. Turns out I did, and I feel better gluten free.
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