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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Low weight can cause periods to stop. I bet your daughter’s will come back when she gains some weight.
  2. RMJ
    What the article says is that the Allergy Dye Free LiquiGels are tested to be gluten free, the other Benadryl isn’t tested but doesn’t have gluten containing ingredients.
  3. RMJ
    Benadryl Allergy Dye Free LiquiGels are supposedly gluten free. The ingredients certainly look fine. I don’t see anything directly from the manufacturer that says they are but the writer of this article supposedly called them: Benadryl For generics, one would have to evaluate each one since the ingredients may differ from manufacturer to manufacturer. ...
  4. RMJ
    Budesonide has generics available, so probably no help from the manufacturers. I was able to find some coupons. I’ll put links to several. You’ll need to make sure it is the form you need (3mg capsules, NOT an inhaler or rectal foam!), since there are multiple budesonide formulations, set the amount you need, and set your location to find the pri...
  5. RMJ
    It only works as a laxative when taken by mouth, not via TPN. It isn’t absorbed well and causes water to be retained in the lumen of the intestines.
  6. RMJ
    Are you thin? I sometimes have a lump in my low right abdomen. It was there once when I was seeing a doctor and he said that it is part of my intestine, which can be felt in thin people.
  7. RMJ
    Wow, that sounds very distressing. It sounds like a panic attack waking you up from sleep is possible: Nocturnal panic attacks I hope you’re able to figure out how to stop the episodes.
  8. RMJ
    The risk is increased in those with active celiac disease but doubling or tripling a tiny risk is still a tiny risk. The risk decreases once the gastrointestinal tract has healed. Here is a good article: Celiac disease and lymphoma
  9. RMJ
    The Gliadin DP IgA test measures IgA antibodies against deamidated gliadin peptides. The peptides are derived from the gliadin portion of gluten. The Gliadin DP IgG tests measures IgG antibodies, a different class of antibody, against the same peptides. The TTG IgA test measures IgA antibodies against tissue transglutaminase. This is the autoimmune...
  10. RMJ
    A lot of people are in denial when they get a diagnosis. You’re calculating positive predictive value for one test. You had two positive antibody tests, and two equivocal antibody tests. I don’t know how to put that into a calculation, but I’d think it would up the chances of your having celiac disease.
  11. RMJ
    I didn’t have typical celiac digestive symptoms - I was tested because there is a possible link between celiac and migraines. However, once I went gluten free and my antibody levels normalized I just felt better. Your celiac may cause issues that you don’t realize are due to celiac or even problems.
  12. RMJ
    After 6 months or more on the gluten free diet, you can see if the antibody levels decrease. If they do, that would be another indicator that you do indeed have celiac disease.
  13. RMJ
    Hopefully Imaware will say the sample is fine, but if not, redo it when you can ship on a Monday or Tuesday. Then if there is a delay it still won’t sit somewhere over a weekend. This is an old trick used for shipping samples during clinical trials!
  14. RMJ
    Missing one day should be fine, you haven’t “lost” the previous 3 weeks. Antibodies don’t decline that quickly.
  15. RMJ
    The company should have data saying how long the sample can be stored. Too bad they don’t have a phone number. I hope they email you back early Monday morning with an answer!
  16. RMJ
    When I first saw my current gastroenterologist two years ago he shot down the idea of taking something to handle gluten contamination. Today he volunteered that studies were ongoing for something that might be taken to deal with gluten contamination. He was hopeful that it would be available in a few years. He emphasized that it would NOT be in place of...
  17. RMJ
    Here is an interesting study on gluten in barium sulfate suspensions: study
  18. RMJ
    The Vanilla Silq barium sulfate package insert does not include a full listing of ingredients. It just says emulsifiers and thickening agents. The safety data sheet talks about proprietary blends. Having worked in the pharmaceutical and medical device industry for several decades, this amazes me! Investigating further, they won a court case saying it should...
  19. RMJ
    If you have smooth dishes and utensils and they are visibly clean you should be fine. Things like wooden spoons and scratched plastic are what could be a problem because they are hard to get genuinely clean. My husband who eats gluten has his own dishes and utensils because we don’t have a dishwasher and I can often see/feel some bits of residue on h...
  20. RMJ
    This is certified gluten free: Country Life Maxi-Collagen I just went to the GFCO (Gluten Free Certification Organization) website, which certifies products as being gluten free, and put collagen into the search box. There were quite a few listings. GFCO product finder
  21. RMJ
    I would not call 37 significantly higher than 36. If a lab ran the same blood sample 10 times they would sometimes get 36 and sometimes 37. Even so, it is frustrating that the level hasn’t decreased. Sometimes it can be difficult to find the hidden gluten that someone is exposed to.
  22. RMJ
    No, unfortunately if you eliminate gluten and then restart it can take weeks of eating gluten for the antibody levels to increase. The challenge does not get shorter by going without gluten for some time.
  23. RMJ
    Congratulations! I hope the biopsy confirms the good news from the antibody tests.
  24. RMJ
    The antibody tests aren’t actually approved by FDA for monitoring celiac disease after diagnosis - although many, many doctors use them that way. I would think another endoscopy/biopsy would be in order to see if his intestine is still damaged. Is he growing well? Does he have any unresolved symptoms? Or is the only issue the lab result?
  25. RMJ
    Here are some ideas: If you have DH you do NOT need to be tested for celiac disease, so perhaps a new gastroenterologist who understands this? One who would refer you to a celiac savvy dietician to look at everything you’re eating? Try the “Fasano elimination diet” described in this paper: Indications and Use of the Gluten Contamination Elimination Diet ...
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