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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I’m so glad you’re having such success with a gluten free diet! 🙂 I hope the bad days become less and less frequent until they’re just a memory.
  2. RMJ
    The follow-up test was the EMA. Where my labs are done, it isn’t performed unless the TTG-IgA is positive. Sometimes this is called reflex testing. The lab would use the same blood sample, a new blood draw wouldn’t be needed. Was there a value for the EMA? It would be in the format 1:5, or 1;10, or 1:20, or 1:40 etc.
  3. RMJ
    Looking at the ingredients in your link, it is VERY unlikely that any of them are derived from wheat. Hydroxypropyl cellulose is usually derived from wood or cotton (per Glutenfreedrugs). There is always a chance that an ingredient could be contaminated, but again that is unlikely. Here is contact info for Mallinckrodt generics. You could contact...
  4. RMJ
    Here is some more information about brewer’s yeast from a dietician who advocates for proper gluten free labeling. Per her advice it would be ok because it is labeled gluten free. However, some companies mislabel their food, not knowing where gluten can hide. Brewer’s yeast and gluten
  5. RMJ
    Yes, it is possible to have only one antibody test positive and still have celiac disease. If someone with celiac disease stops eating gluten, the antibody levels typically come down. You might have had more/higher positives if you had been eating the recommended amount of gluten prior to testing.
  6. RMJ
    Does eating everything hurt your stomach? Or just some things? Smaller, more frequent meals might help. You can minimize the chances of accidentally getting gluten by concentrating on whole foods that don’t have labels to read - meat, fresh fruits and vegetables (maybe cooked so easier to digest). Rice is inherently gluten free if there are no flavorings a...
  7. RMJ
    You could go gluten free for 6 to 12months and have the deamidated gliadin IgG retested. If it was lower or normal it would certainly indicate that your body has a problem with gluten. Also you could see if you feel better when gluten free. Luckily a doctor’s prescription is not needed to go gluten free!
  8. RMJ
    Please keep eating gluten until your endoscopy so you get accurate results!
  9. RMJ
    PhD Pharmacologist
  10. RMJ
    If you go by Mayo clinic reference levels, your 5 year old is within the total IgA range. I found another site that had 1-5 year olds 20-152 mg/dL, so your 5 year old is just barely above that. Pediatric antibody reference levels
  11. RMJ
    Total IgA was measured and was a little high. IF it had been low, then the TT IgG antibody test would have been done (reflex). It was high, so the TT IgG antibody test was not done. So the only question is why the total IgA was a little high. Lab normal ranges for total IgA tend to vary a bit, so that slight elevation of total IgA is probably not...
  12. RMJ
    That test is for diabetes mellitus, what about diabetes insipidus? Diabetes insipidus
  13. RMJ
    Excellent idea, knitty kitty.
  14. RMJ
    It sounds like you’re not dehydrated but over-hydrated. Too much water can lead to the symptoms you list. Urine should not be colorless. If drinking less water makes you feel better, why not just drink less water? Too much water intake
  15. RMJ
    Looking at the prescribing information (see section 11 in link) CREON does not have any ingredients that would be expected to contain gluten. The ingredients are all pretty refined and thus also unlikely to be contaminated. If the enzymes were produced by bacteria one would have to look into the media the bacteria were grown in, but this is NOT the case...
  16. RMJ
    If the NSAID is a COX-2 inhibitor it shouldn’t have the typical adverse effects on the gastrointestinal system that COX-1 inhibitors have. Sucralfate is another drug that is sometimes taken to protect the gastrointestinal tract from NSAID effects. It works by forming a protective layer.
  17. RMJ
    My TTG IgA antibodies came down to normal in a year. My DGP IgA antibodies took six (yes, 6) years! I think you’re doing well.
  18. RMJ
    If you order the labs yourself, and do it now, you also don’t have to worry about a doctor giving up on a possible celiac diagnosis if tests are negative, because you can do the gluten challenge and order them again.
  19. RMJ
    If you don’t have a doctor or insurance, how are you going to get the blood test? I ask because if you’ve only been off of gluten for about two months and you do have celiac disease you MIGHT still get a positive antibody test now. You wouldn’t be able to believe a negative because of two months gluten free, but you could believe a positive. I don’t...
  20. RMJ
    What are the results of your endoscopy? Were biopsies taken? There are other possible blood tests for celiac disease - deamidated gliadin peptide (DGP) IgA and IgG. Some patients only show positive on one of those.
  21. RMJ
    If it is the name brand Lexapro, the other ingredients besides escitalopram are: talc, croscarmellose sodium, microcrystalline cellulose/colloidal silicon dioxide, magnesium stearate, hypromellose, titanium dioxide and polyethylene glycol. The croscarmellose sodium, microcrystalline cellulose and hypromellose are all derivatives of cellulose, usually...
  22. RMJ
    SSRi stands for Selective Serotonin Reuptake Inhibitor. By inhibiting reuptake of serotonin it increases the level in the brain - thus acting as an antidepressant.
  23. RMJ
    Escitalopram is the generic name of the drug. To look up exact inactive ingredients one needs the name of the company who manufactures the drug, which you would have to find out from your pharmacy. It is usually on the container with the prescription, although sometimes abbreviated. Abbvie or Allergan manufacture the brand name Lexapro. There are a...
  24. RMJ
    You said you took Lexapro last year and it helped - if you didn’t have side effects perhaps consider taking it again? From what I can find online the ingredients should not have any gluten in them. If you post the name of the generic manufacturer here I can try to look up those ingredients for you. Stress/anxiety can definitely affect the bowels. I...
  25. RMJ
    I would ask to see the actual pathologist’s report of the biopsies rather than rely on what a nurse said on a phone call.
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