Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,494

  • Joined

  • Last visited

  • Days Won

    45

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I would definitely want to get a copy of the pathologists’s report on the biopsies, not just the GI doctor’s summary of the report.
  2. RMJ
    Have your symptoms also come back? Or is it just the blood tests that back up.
  3. RMJ
    A pathologist may recommend clinical correlation instead of giving a definite diagnosis if they just are evaluating the biopsies and don’t know the rest of the medical history. There IS clinical correlation. There is a positive antibody test, and two possible symptoms (not growing as expected and constipation). One thing you can do is a repeat antibody t...
  4. RMJ
    An endomysial antibody IGA of 1:160 is definitely positive, not slightly positive. It is four dilutions away from the normal of 1:10. This test is very specific for celiac disease. Tissue Transglutaminase antibody of 17 with a standard range of 0-3 is also definitely positive - I don’t know where the “celiacs normally have over 40” comes from. The ...
  5. RMJ
    It was a last minute luncheon with coworkers who had just been laid off that day so I didn’t have time to prepare!
  6. RMJ
    I once just had white rice when going to lunch with coworkers at a Thai restaurant.
  7. RMJ
    Perhaps something from this website would help to convince her. Coeliac Australia Or here, which says after a positive test diagnosis is confirmed by a small bowel biopsy. Health Direct (from gov.au)
  8. RMJ
    Most of the studies in the literature are usually trying to see how short a gluten challenge can be, so they don’t look for what you’re interested in. Here is a paper that does look at 2 weeks vs 4 weeks of gluten challenge and it certainly hasn’t leveled off by 4 weeks (see figure 2). The figure only shows the average results. The ranges listed in th...
  9. RMJ
    Before I had an endoscopy (delayed for unrelated reasons) the diagnosis in my medical record was “abnormal celiac antibody panel.” Would a formal diagnosis like that be enough for a school to take it seriously? (They probably wouldn’t even know what it meant).
  10. RMJ
    Paris has several wonderful gluten free bakeries. I don’t particularly like croissants so don’t remember if they had them, but I had a wonderful eclair.
  11. RMJ
    No I can’t cheat. It would be like a booster shot, increasing the damaging antibodies again.
  12. RMJ
    Good question. Because gluten is still making my body damage itself, even if I don’t feel the damage. It is an autoimmune disease meaning I have antibodies against my own tissues. My endoscopy showed damage in my intestines.
  13. RMJ
    There are many possible symptoms for celiac disease but some people have celiac disease without any of the usual symptoms - it is called silent celiac disease. That is what I have. I was tested because I have the genetic markers and migraine headaches. What I’m trying to say is, just because your symptoms are different from your friend does not mean y...
  14. RMJ
    Does he eat oats? Some with celiac disease react even to gluten free oats because of the avenin protein.
  15. RMJ
    Here are four medical journal articles that outline how to diagnose celiac disease. They all recommend duodenal (NOT colon) biopsies after a positive TTG test. The American College of Gastroenterology guidelines say that the gene test isn’t terribly useful. Perhaps you could ask your doctor why she won’t refer you for an endoscopy when that is the...
  16. RMJ
    I haven’t read of any scientists doing this experiment with gluten in celiac patients (probably unethical) so I can only make an educated guess based on general immunology knowledge and my experience being responsible for antibody production in rabbits (for use in medical diagnostic tests). For a while, introducing more of an antigen will make the a...
  17. RMJ
    You absolutely need a different doctor. The standard of care is to do an endoscopy to follow up a positive TTG or DGP test. Colonoscopies are NOT used to diagnose celiac disease.
  18. RMJ
    Can you get a second opinion from another gastroenterologist? Your second test is also positive on deamidated Gliadin IgG, so two positives. Some people with celiac disease are positive on all four tests (me), some are only positive on one.
  19. RMJ
    It is great that your future in-laws took such good care of you. We get too many posts here from people whose families don’t believe their celiac diagnosis, try to get them to eat “just a little gluten,” etc. This was probably all very new for your fiance’s family. I would guess that next time they serve you gluten free food they won’t talk about it ...
  20. RMJ
    I looked in a great gluten free cookbook (from America’s Test Kitchen) which explains why they put in the ingredients they do. Here are some reasons they have for using almond flour in baking recipes: Less starchy. More “chew”. Add richness without greasiness (gluten free flours sometimes don’t absorb the fats as well as wheat flour)....
  21. RMJ
    You’ve probably already checked, but any chance one of the “Many new meds” has gluten in it?
  22. RMJ
    The item that worries me the most in your list is people baking with flour in a shared kitchen. Flour can easily become airborne and contaminate things.
  23. RMJ
    That actually sounds like a smart doctor! Some would just say “not celiac” and not give you any more assistance. You might try having her go completely gluten free and see if the antibody levels return to normal levels.
  24. RMJ
    It is difficult to tell exactly which celiac tests were done. tTG/DGP does include both types of tests, but it doesn’t say whether it was IgA or IgG and doesn’t give numbers so one can’t tell if it is very negative or just under the cutoff for positive. Saccharomyces is a type of yeast, and having antibodies to it as you do is a possible indicator of in...
  25. RMJ
    You can live as someone with celiac disease without a biopsy. I’d just tell future doctors I had celiac disease and wouldn’t even mention how it was diagnosed unless asked. I didn’t have a biopsy at first due to unrelated medical reasons. At first my diagnosis was just “elevated celiac antibodies.” Eventually my gastroenterologist said I had cel...
×
×
  • Create New...