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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I thought some forum members, especially those with neurological symptoms, might be interested in this free webinar, put on by the National Celiac Association and the Celiac Research Program at Harvard Medical School. Title is “The Intersection of Neurology and Celiac Disease.” September 30 webinar registration
  2. RMJ
    To see my notifications I don’t click on the right hand corner (which gives me what you show in the photo), I click on the “bell.”
  3. RMJ
    In most states in the US one can go online and order some blood tests, including those for celiac disease. You place the order online, then go in to a lab to get the blood drawn. One is www.MyMedLab.com, but there are others. They don’t all do a full celiac panel.
  4. RMJ
    Here is the abstract of a more recent paper (2020) that concludes in the discussion that your results would mean you are not at risk. Looks like the debate is ongoing! Celiac disease risk stratification based on HLA-DQ heterodimer (HLA-DQA1 ~ DQB1) typing in a large cohort of adults with suspected celiac disease
  5. RMJ
    I think it would, so maybe you do have some risk. I do find parts of the article and part of Table 1 confusing, like the number of copies. The HLA molecule has multiple subunits which I think is confusing me. I don’t know where they got the “genetic risk” scores. I’ll see if I can find a reference for that.
  6. RMJ
    I just went and looked at the scientific journal article that describes all of this and I may have misled you a bit. I’m a scientist but not a geneticist! It looks like with just one copy of DQ 2.2 you don’t have a risk for celiac disease. You would also need a copy of DQ 2.5 or DQ7. So in your case having DQ 2.2, you would need another marker to dev...
  7. RMJ
    I’m surprised it was presented this way, but here goes an attempt at an explanation. When doing genetic testing, tests often look at SNPs, or single nucleotide polymorphisms. This means instead of determining the DNA sequence of the entire gene, nucleotide by nucleotide, they just look at the single nucleotide spots that commonly vary from person t...
  8. RMJ
    I would just tell your new doctor that your previous doctor diagnosed you with celiac disease. Unless asked specifically, I would not give any details that would give him/her an opening to question that diagnosis. Unfortunately there are many doctors who seem to be “anti-celiac.”
  9. RMJ
    Trents, thank you for saying that one study showed the 44% figure. High prevalence of celiac disease among screened first-degree relatives As a scientist, when people just state that first degree relatives have a 44% chance it irritates me. It was one study, only cited by four papers since then. Other studies show quite different, and usually...
  10. RMJ
    Trying again, it looks like I linked the same article twice, sorry. Can celiac disease be prevented?
  11. RMJ
    Scientists have studied the development of celiac disease in at-risk children, looking at things like when to introduce gluten and how much. Here are links to two recent journal articles. Unfortunately, the studies don’t all agree and the recommendations change from year to year. Can celiac disease be prevented? Effect of food and viruses to t...
  12. RMJ
    Five days for results sounds about right. My last celiac serology took three days to get results but it was not a cascade. Usually with the cascade they do some of the tests, and if there is a positive they then do more, so that could take longer. It could also take longer if they have to send the serum to a different laboratory, plus there could...
  13. RMJ
    As I think you figured out, celiac disease does not make one immune compromised, our problem would be better described as immune enhanced. Many doctors don’t understand celiac which may be why the urgent care doctor didn’t disagree with you. Animals can be tested for, and treated for, ringworm. It would be sad if you had to give them up. How did...
  14. RMJ
    I thought of something else - was the antibody test that you had designed to look for antibodies in people naturally infected, or people who were vaccinated? That might make a difference in the range that is considered high. The FDA authorized tests are intended to look for prior natural infection and are not recommended to look at vaccination status.
  15. RMJ
    It took me three years to get my TtG IgA to the normal range, and six years for DGP IgA.
  16. RMJ
    Glad you finally have an answer!
  17. RMJ
    I’d say high antibodies to the coronavirus spike protein is good! One of the boosters being studied is supposed to increase them almost 10-fold, which is considered to be a good thing.
  18. RMJ
    Just be aware that your GE may say that GliadinX is useless. Mine does, but I disagree. I have a PhD in Pharmacology and have read the original research papers on it. It is intended to take care of gluten contamination, and the research shows that it can do that. It is not meant to handle a full gluten meal. But because it isn’t meant to handle a full g...
  19. RMJ
    I’ve never heard of either, I just wanted to say I’m sorry you’re having a new pain.
  20. RMJ
    Country Life vitamins are certified gluten free. I take their vitamin D. Country Life
  21. RMJ
    That yellow would be from the riboflavin (B2)
  22. RMJ
    The T cell response was observed “in vitro” (in a lab, not in someone’s body) so it isn’t directly related to villous atrophy. What it does say is that in some patients their immune system did react to the protein avenin from oats. Most studies that did biopsies didn’t show villous atrophy, although some subjects had annoying symptoms. Here is one st...
  23. RMJ
    If you really want to dig into this topic, here is a scientific paper summarizing research available in 2019. Overall they recommend not adding oats back until symptoms have resolved. They note that the strain of oats (something a consumer would never know) may make a big difference. Unfortunately it isn’t clear in all the studies they summarize if the o...
  24. RMJ
    It is a protein in oats that is somewhat related to the gluten in wheat, rye and barley. It can cause issues similar to gluten in about 10% of people with celiac disease.
  25. RMJ
    Very true, for most oats. Some growers specifically avoid fields, silos, trucks, etc that have processed wheat and produce “pure oats” that are gluten free. I’m very sensitive but can eat those. Some with celiac still react to those because of the avenin.
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