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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I was unable to have a biopsy when I first found out I had high celiac antibodies. I had no symptoms that I was aware of. I decided that it wasn’t a good idea to have my body making antibodies against myself, so I went on a gluten free diet. I finally had a biopsy several years later and did have blunted villi, so they were probably worse prior t...
  2. RMJ
    I looked at the amount of gluten peptides found in urine - the amounts are very, very, VERY tiny. Far less than is needed to cause troubles in even the most sensitive people with celiac disease (nano- or micro-grams vs milligrams). I don’t think you need to worry at all.
  3. RMJ
    You could go gluten free and see if the antibody levels go down to normal ranges and your symptoms go away. That would be a good indication that you do have celiac disease.
  4. RMJ
    In the comments below the recipe the author doesn’t recommend it when someone asks if it can be made into a loaf: ”I don’t think so. The inside would be too gummy, like undercooked. How about turning this into a focaccia or flatbread? – Sophie”
  5. RMJ
    I’m glad that the Mayo clinic is in your network! One less thing to worry about. I hope they can give you some answers. Did you get the MRI to look at your brain? I just reread this whole thread. You have serious health issues and I worry about your getting a lot of advice here from people who are very caring but not medical professionals. I’m not...
  6. RMJ
    I am gluten free and very sensitive to gluten but my husband is not, so our kitchen is not gluten free. He and I have separate food preparation areas. We have separate shelves in cupboards, refrigerator and freezer, with his below mine so his food can’t fall into mine. We have separate dishes, but that is only because we don’t have a dishwasher and...
  7. RMJ
    The results you posted are negative for celiac disease. It included the tests most doctors seem to request, but it was not the full panel. There is also a DGP test for deamidated gliadin peptides, and both TTG and DGP tests can be done with IgA and IgG antibodies. Hope this helps!
  8. RMJ
    That doesn’t sound like celiac disease. Could it be “floaters”?
  9. RMJ
    You could have your blood tests repeated after 6 months of being strictly gluten free and see if they return to normal levels. If they do, that would be another indication that you have celiac and that gluten isn’t good for you.
  10. RMJ
    In your original test you only tested positive on the DGP antibodies, not TTG. In the second test, they only tested the TTG antibodies, which were negative - like they were in the first test. So your results are consistent, just an incomplete panel for the second test. There are several different antibody tests for celiac disease. You don’t have t...
  11. RMJ
    Although lactase deficiency is the most common, there are other disaccharidases required to break down other sugars, such as sucrose, and to complete the breakdown of more complex carbohydrates. Have you spoken to your doctor about the results? Hopefully he/she/they can give you more information about what it means and what foods to avoid, enzymes...
  12. RMJ
    I’m not sure what “low disaccharides” means. Could it have been low disaccharidase? That would be the enzymes that breaks down lactose and other disaccharide sugars. When not broken down the sugars can lead to digestive troubles.
  13. RMJ
    Celiac disease can cause neurological issues in some people. I’m glad you’ve got a referral to a neurologist and hope you can get an appointment soon. It must be very difficult wondering what is going on in your body.
  14. RMJ
    The longevity of antibodies is measured using a concept called the half life - the length of time it takes for half of the antibodies to disappear from the bloodstream. Estimates for TTG antibodies are 2 to 6 months. This means they would remain pretty stable from day to day. However, there is another reason one might not get the exact same test results...
  15. RMJ
    Sounds interesting,thanks.
  16. RMJ
    Different people with celiac disease react to different amounts of gluten. Cross contamination is definitely something to think about. If not in control of her food, she might consider taking the enzyme GliadinX with meals that could be contaminated. It is only meant to help with contamination, not a full gluten meal.
  17. RMJ
    There does appear to be some association between ITP and celiac disease. I hope that going gluten free can help with your daughter’s ITP. Increased Frequency of Immune Thrombocytopenic Purpura in Coeliac Disease and Vice Versa: A Prospective Observational Study
  18. RMJ
    In case anyone else has this question - I tried a different brand of lactose free milk - Horizon. It is MUCH better. It is a little sweeter than regular milk, to be expected since the lactose is now galactose+glucose. But no weird/awful taste that remains on my tongue afterwards.
  19. RMJ
    I have “The How Can It Be Gluten Free” cookbook from America’s Test Kitchen. Some of the procedures seem really weird compared to traditional baking but the results are great. I’ve also had pretty good luck with recipes from the King Arthur Flour website (they make several certified gluten free flours).
  20. RMJ
    I am trying a FODMAP diet and purchased Lactaid fat free milk. I think it tastes awful. It isn’t just sweeter, I can detect that and don’t mind that. There is a weird additional taste that stays in my mouth. Has anyone else noticed this? Do all brands of lactose free milk taste the same or might I have better luck with another brand? I will admit tha...
  21. RMJ
    It is absolutely possible to have celiac disease without deficiencies or even without typical symptoms - like me! I’m so glad that your original doctor referred you to a gastroenterologist. I hope you get a clear answer when you have your endoscopy/biopsy.
  22. RMJ
    I once asked a doctor if a drug required for a test he recommended would affect my celiac disease. He said I probably didn’t have celiac disease. I replied that it had just been diagnosed via biopsy and that ended the conversation. I don’t know why some doctors are so anti-celiac! Was the doctor who told you the positive test did not indicate cel...
  23. RMJ
    I am sorry for the loss of your child due to a genetic condition. I did the 23andMe genetic testing because I like to know what my genetics has in store for me. Before I got the results, I asked my brothers if they wanted to know if I got any results indicating susceptibility to serious conditions. Neither wanted to know. It is recommended that...
  24. RMJ
    Unfortunately having just one positive test does NOT eliminate the possibility of celiac disease.
  25. RMJ
    Another question for the manufacturer - what media is used to grow the bacteria. Sometimes that media can contain gluten.
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