Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,494

  • Joined

  • Last visited

  • Days Won

    45

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    That sounds miserable. I hope the specialist can help.
  2. RMJ
    I eat rice cakes every day with no problem. I like crunchy stuff!
  3. RMJ
    If you feel you would be helped by a dietician or nutritionist, be sure to find one experienced in celiac disease.
  4. RMJ
    I think I edited my post AFTER you liked it! I went back and looked at information from your other posts, which make it more likely that you do have celiac disease or a gluten issue.
  5. RMJ
    It is possible that you don’t have celiac disease, especially if the only positive test was gliadin IgA and not deamidated gliadin peptide IgA (DGP). The gliadin IgA test is older and not considered as accurate as the DGP test. You could try to get the test for DGP IgA. However, I looked at your other posts. Your mother has celiac disease, and your p...
  6. RMJ
    I’m sorry that you don’t have a cause for your health troubles. I hope your doctors will keep looking. I doubt that anyone will feel you have wasted their time - we are pretty sympathetic to difficult-to-diagnose health problems.
  7. RMJ
    I got my biopsy results in just a few days. It was surprisingly fast. It does take some time to process the samples so they can be observed under a microscope.
  8. RMJ
    I hope the biopsies give you a clear answer!
  9. RMJ
    To keep yourself healthy I would either tell the restaurant that you have celiac or a wheat allergy. It isn’t an allergy but the term is one that restaurants seem to understand.
  10. RMJ
    Info from FDA: Wheat starch is an ingredient made from wheat that has been processed to remove gluten. However, the use of this ingredient must result in under 20 parts per million gluten in the finished food for the food to be labeled “gluten-free.” When both the terms “wheat” and “gluten-free” are declared on the same food label, the word “w...
  11. RMJ
    If the sunscreen stays on your skin it shouldn’t be an issue. However, sometimes lotions put on skin can accidentally get into one’s mouth. The only ingredient that might be a problem is the tocopherols (vitamin E). Sometimes they are derived from wheat germ oil, although not always. Even if derived from wheat germ oil, the oil would be highly refined and...
  12. RMJ
    Some of the Mission and Mission Organic tortilla chips are certified gluten free.
  13. RMJ
    - National Domestic Abuse Hotline: 1-800-799-7233 - National Domestic Abuse Chat (if you can’t talk on your phone): https://www.thehotline.org/what-is-live-chat/
  14. RMJ
    I think it’s great that your doctor admits that damage might be missed during an endoscopy based on where they could take biopsies. Sounds like he knows his stuff with celiac disease. I don’t remember if you’ve started eating gluten free or not. If you’ve decided to go gluten free you can see if that makes the antibody levels go down by retesting in abou...
  15. RMJ
    How are cutoffs decided? A company gets a panel of serum samples from people with known celiac disease and people without celiac disease. They run them in the test they are developing. Then they choose a cutoff value that puts the most samples on the correct sides of the cutoff. Sometimes they will adjust the value up if they don’t want false positives, ...
  16. RMJ
    There are other antibody tests for celiac disease; antibodies to DGP (deamidated gliadin peptides). Some people are only positive on those tests, not on the TTG tests. So yes it is possible to test normal on the TTG tests and still have celiac disease on biopsy.
  17. RMJ
    One still must watch out for ingredients added after distillation.
  18. RMJ
    It is not certified gluten free. On the Bailey’s website the only allergen they list is milk and milk products. That would indicate no wheat, but doesn’t say anything about rye and barley. Irish whiskey is made with barley, but the gluten should be removed by the distillation process.
  19. RMJ
    The small bowel is where the damage is seen in biopsies due to the antibodies attacking self. Biopsies of the large bowel are not used to diagnose celiac. As all of us with celiac know, and as you have said, the effects are far more widespread than just the small bowel.
  20. RMJ
    Histologic conditions are those that are seen in a biopsy under a microscope.
  21. RMJ
    Anti-gliadin is not anti-avenin but antibodies aren’t 100% specific - they may bind, with less affinity, to proteins that aren’t their main antigen. When working with antibodies in a laboratory, a lot of the work is finding an antibody that doesn’t cross react. Some of the research that says people with celiac react to oats may be due to contamination of oa...
  22. RMJ
    When I finally was sufficiently gluten free to have normal antibody levels I was not eating oats. I asked my GI if I could eat oats. She said to try pure (gluten free) oats for six months, then we’d retest antibody levels. Six months of oats didn’t affect the levels so now I can eat pure oats. There have been some research studies looking at celiac rea...
  23. RMJ
    Are your oats labeled gluten free? If not carefully processed, oats can be contaminated with wheat because of how they are grown and transported. One can buy “pure” oats, but even then about 10% of people with celiac disease react to oats in the same way that they react to wheat. Perhaps stop eating oats and see if that helps. Have you had your ant...
  24. RMJ
    The higher numbers do not necessarily correlate with a higher degree of damage in the intestine. What is the normal range for those lab results? Different labs use different units so the normal range varies from lab to lab. In Europe, if children have antibodies that are more than ten times the upper limit of the normal range and EMA (endomysial...
  25. RMJ
    In the US there is an organization that “certifies” foods as being gluten free. To differentiate these (<10ppm) from regular gluten free (<20ppm) there is a special symbol on the packaging. Hydrogenated starch hydrolysate is highly processed but MIGHT be manufactured from wheat starch and thus MIGHT have small amounts of gluten. It also might be ...
×
×
  • Create New...