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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Unless your oats are labeled gluten free, they would be the most likely due to contamination. I hope elimination of a few foods takes care of your antibody levels. Before starting steroids, I would think a biopsy, and if that is positive, perhaps a visit with a registered dietician skilled in celiac disease would be suggested. First to be sure there...
  2. RMJ
    If you’re only on day 10 and could have the blood tests done within the next few days the results would probably be accurate. For most people it takes longer than 2 weeks for the antibodies to return to normal. If you got a positive result you’d know you had the celiac antibodies. However, if you got a negative result, you couldn’t be sure if it was due t...
  3. RMJ
    Can I like this article 10 times?
  4. RMJ
    Perhaps your doctor can refer you to a registered dietician with experience with celiac to help you with an elimination diet. To be really thorough foods are introduced more than once to be sure the reaction is truly due to the food and not by chance.
  5. RMJ
    Is there anything in your diet that changed prior to the antibody increase? Different brand of something, etc.? I’m glad you’ll be getting another biopsy. There are specific things that can be seen in a biopsy that indicate refractory celiac. I hope they aren’t seen in yours!
  6. RMJ
    A few thoughts: I can understand what your nutrition specialist means - there is a point where ANY calorie is better than nothing. I’ve always been skinny, and when trying to gain weight I have to eat multiple small meals whether I am hungry or not. If I just eat to satisfy hunger I lose weight. I also find that nuts and peanut butter help b...
  7. RMJ
    Your diet doesn’t sound like it provides a whole lot of nutrition. Is it possible to work with the equivalent of a U.S. registered dietician in your country?
  8. RMJ
    Here’s one from Harvard: https://www.health.harvard.edu/diseases-and-conditions/celiac-disease
  9. RMJ
    What type of information source might she respect the most? Would she believe doctors, scientists, social media... I could find you articles on celiac from doctors/scientists at universities like Harvard, or a registered dietician on social media (Facebook)...
  10. RMJ
    It also seems obvious to me that parents who don’t want their children to be in a room with a number of other unvaccinated children shouldn’t have to send them to school. In other words, I’m not for forcing anyone to be with those who are unvaccinated when there is another option!
  11. RMJ
    To me it seems so obvious that those working in education should be vaccinated before they are required to be around groups of unvaccinated students. I’m glad you have had your second dose and will soon have your full immune response.
  12. RMJ
    I’ve never been diagnosed with an eating disorder but I think I was very close in college. I can well imagine that adding in the requirement to be gluten free would be overwhelming. Did you have professional help during your recovery when you were in high school? Perhaps renew that association? Or see an understanding registered dietician who specializes i...
  13. RMJ
    This paper discusses a case report of one patient with celiac, thrombosis and ascites. Celiac Disease Presenting as Budd-Chiari Syndrome A Google search on Celiac and ascites brings up some hits. They are mainly case reports - descriptions of individual patients. So it is possible, but not common.
  14. RMJ
    Different labs use different units of measure for celiac antibodies, so part of a difference could be that rather than a real difference. The way the tests work, within a lab, a higher value should mean more antibodies. However, the level of antibodies does not necessarily correlate with the degree of damage in the intestines or with symptoms.
  15. RMJ
    The reference ranges for the celiac antibody tests can be different from lab to lab because the units of measure are different and arbitrary. It is not that one lab thinks more antibody is needed to call it positive. If you ran the same sample at labs with different reference ranges, you’d get different numbers. For example, a 19 at a lab where the normal r...
  16. RMJ
    Here is info from the CDC from a few days ago. Please note death after vaccine is NOT necessarily death due to vaccine. “Over 189 million doses of COVID-19 vaccines were administered in the United States from December 14, 2020, through April 12, 2021. During this time, VAERS received 3,005 reports of death (0.00158%) among people who received a COVID-1...
  17. RMJ
    I am currently listening to the CDC meeting discussing the thrombotic (clotting) side effects seen with the J&J vaccine. Headache (severe), leg pain and shortness of breath are three of the symptoms of the new problem. Please call/see your PCP, especially if you are a female between 18 and 48. The new side effect includes both clots and low platelet...
  18. RMJ
    Immunoglobulin A, Serum, is a test for total IgA, not celiac-specific IgA. It is performed because some people have low total IgA and for them the IgA tests for celiac may not be accurate. High total serum IgA is NOT indicative of celiac disease despite the other negatives. There are other blood tests for celiac disease which can be done. If you still...
  19. RMJ
    I didn’t have any typical celiac symptoms. I was tested because of migraines. Once my antibody levels returned to normal I just felt better, less fatigue.
  20. RMJ
    I’m so glad that you are getting good results by going gluten free! The COVID-19 vaccines do not alter your RNA. The Pfizer and Moderna vaccines contain messenger RNA. It remains in your arm muscle for a short time (hours) while it is “read” and the spike protein from the virus produced. Messenger RNA does not last in the body for very long - it i...
  21. RMJ
    Yes >2500 is exceedingly high. Your numbers are coming down very nicely, especially for just two months gluten free. Who knows how far above 2500 your values were when diagnosed! How long it takes to reach normal varies from person to person, and can also depend on how strict your gluten free diet is. The lab tests are not FDA approved...
  22. RMJ
    I’ve used Hershey cocoa for several years, ever since Ghirardelli added the “may contain wheat” statement to theirs. But I really liked the Ghirardelli I used to use and am very happy to be able to try a Ghirardelli cocoa product again.
  23. RMJ
    I found this page from Quest. It partly depends on the temperature at which your sample was stored and shipped. Keeping samples cool while shipping requires ice packs, which is more weight, thus more expensive, so it was probably shipped at room temperature. Look on the right, under Specimen Stability. Eight days is beyond their storage time frame...
  24. RMJ
    Wheat germ oil does exist, although if refined it should no longer contain gluten. That is the only oil I know of or can find online that might contain gluten. If the corn oil manufacturer doesn’t also make wheat germ oil the corn oil should be fine. If the corn oil manufacturer does make wheat germ oil on the same equipment but the corn oil i...
  25. RMJ
    There are no gluten-containing ingredients in Ghirardelli Majestic Premium Cocoa Powder and it does not say that it may contain wheat. Their other cocoa powders do say they may contain wheat. So I asked the following questions. Based on their answers (below questions) I’d say it is very safe. I’m looking forward to trying it! “Is Majestic Premium Cocoa...
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