Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,494

  • Joined

  • Last visited

  • Days Won

    45

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    The optimal numbers depend on the manufacturer of the test because the units in which they’re reported are not standardized. Optimal results are whatever gives a result described qualitatively as negative. You are still positive for DGP IgA and IgG, but due to different test manufacturers, it is impossible to tell if your numbers are going down or not. ...
  2. RMJ
    I hope the strict gluten free diet leads to improvement!
  3. RMJ
    This cocoa powder sounds good! I wrote to Ghirardelli to ask if it is gluten free. I’ll try to remember to post their response here.
  4. RMJ
    Ghirardelli is very good about putting “may contain wheat” statements on their products if made on shared equipment. The statement would be under the list of ingredients. A lot of their hot cocoa powders say may contain wheat. I found a picture of the label of their Majestic cocoa powder online and it only said that it may contain soy and milk. I’d c...
  5. RMJ
    Has your wife had her celiac antibodies retested? Are they now in the normal range or still high? If not back to normal, that would indicate more care is needed with the gluten free diet.
  6. RMJ
    An antihistamine wouldn’t help with typical COVID or other vaccine side effects. Allergic reactions are IgE mediated, celiac antibodies are IgA and/or IgG. This is assuming you don’t have anaphylactic reactions and don’t carry an EpiPen. I don’t know if people with celiac have stronger immune reactions in general, or just reactions to the wrong thing (...
  7. RMJ
    I’m not sure why celiac disease would mean you have a compromised/fragile/suppressed immune system? If anything, the immune system in celiac patients is a bit too active, attacking self. Some people with other autoimmune diseases do have suppressed immune systems but because of medications taken to treat their diseases. I’ve had both shots of the Mod...
  8. RMJ
    Was the oral contrast agent barium? It has a rare side effect of bloating. Barium sulfate side effects
  9. RMJ
    Some, but not all, vaccines do in fact prevent infection - they produce sterilizing immunity.
  10. RMJ
    It looks like two positive tests! Luckily, the treatment for celiac disease (strict gluten free diet) doesn’t require a doctor. It sounds like it would be worth trying a strict gluten free diet for six months - knowing that symptoms may go up and down for a while.
  11. RMJ
    It sounds like you’ve done a good job being gluten free and no longer have damage, but what you say the doctor said makes no sense. Can you get a copy of the original pathology report from the first endoscopy that did show damage? There should be a record from a pathologist who read the microscope slides from the biopsies. It is normal to be visible i...
  12. RMJ
    I get acetaminophen (generic Tylenol) and ibuprofen (generic Advil) from Target because some (not all) of theirs are labeled gluten free.
  13. RMJ
    Something doesn’t make sense here - perhaps because of your family history? Steroids are not typically given for newly diagnosed celiac disease. Colonoscopies are not performed as a followup for celiac disease either - wrong end of the gastrointestinal tract.
  14. RMJ
    I understand your dilemma. I was also diagnosed without having digestive symptoms. I was tested because I have the genetic predisposition plus migraines. The only way I can tell if I’m being careful enough is through follow-up blood testing every 6 to 12 months. I started by reading labels/menus and avoiding obvious gluten. My antibody levels went d...
  15. RMJ
    Maltase is not malt. Maltase is an enzyme that digests the sugar maltose. As to their using barley and the purification process - yes it is possible to separate different types of proteins during purification, but they don’t give enough information to evaluate whether all gluten from barley is removed. For example, it would be nice to know if they t...
  16. RMJ
    Some people with celiac disease have a normal TTG antibody test but abnormal/elevated DGP antibodies (DGP=deamidated gliadin peptides). If that wasn’t part of your 2nd test you might try to have that done.
  17. RMJ
    Spicely has certified gluten free spices.
  18. RMJ
    Glad you got through it and that everything was benign!
  19. RMJ
    You could stick with the gluten free diet and have some of the blood tests redone in 6 months. If the Deamidated gliadin peptide AB went down that would indicate that gluten was an issue for you.
  20. RMJ
    A doctor saying “You probably don’t have that”. My response: The biopsy I had last week said that I do.
  21. RMJ
    Sucrose is just sugar, the type you might put into your coffee or tea. Is this a typo and there is another ingredient you’re worried about?
  22. RMJ
    I give them away, although that’s pretty easy since my husband eats gluten! When I was working, anything he didn’t want I took to work to give away. Someone gave my dog a very large biscuit for Christmas that not only had wheat flour but “vital wheat gluten.” My dog isn’t gluten free but I still didn’t want crumbs from that around so I gave it to ...
  23. RMJ
    I had a dream last night where I ate a regular (gluten-containing) cookie, something I would never do in real life. I was so upset, especially because I realized in my dream that I wasn’t at home and thus didn’t have any GliadinX available!
  24. RMJ
    To the FDA, the terms “gluten-free” or “no gluten” on a label are equivalent so the products are supposed to have less than 20ppm gluten. See “inside the regulation”
  25. RMJ
    Item 3: The FDA is used to reviewing new technology, it is part of their job. It is not at all uncommon to see new side effects (such as allergic reactions) once a drug is out of clinical trials and in a larger, less defined population. The NIAID is not going to more or less redo Pfizer’s trials. They’re going to look at a few hun...
×
×
  • Create New...