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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    There are two issues: What cereal to trust to be gluten free Does patient react to oats I personally have to use certified gluten free products to keep my antibody levels in the normal range. I sometimes eat Nature’s Path gluten free corn flakes which are certified gluten free although made on shared equipment. I went without oats u...
  2. RMJ
    Are the oats you are using labeled as gluten free oats? If not grown carefully or processed carefully they can be contaminated with wheat.
  3. RMJ
    I was originally tested for celiac disease because of my migraines. Some doctors feel they are related, some don’t. I do have celiac disease; eliminating gluten lessened, but didn’t completely eliminate, the migraines.
  4. RMJ
    Also, it is NOT the case that the same amount of antibody is being called positive at one lab and negative at another. The units are arbitrary, not absolute, set by each lab, and can’t be compared. A given amount of antibody might be measured as 4 lab A units and 20 lab B units.
  5. RMJ
    It depends on the range of your lab, which should be on the lab report. If it says high it is high.
  6. RMJ
    The normal range for TTG IgA depends on the manufacturer of the test. Some are 0 to 3, some 0 to 19... The units are arbitrary, not a specific unit of measure such as mg/dL, which is often, but not always, how total IgA is expressed.
  7. RMJ
    There are two ongoing phase 2/3 clinical trials that started in October. Preliminary results expected in May. Molnupiravir clinical trials
  8. RMJ
    It has not been proven one way or the other that vaccinated people can still spread the virus. It is a possibility that has not yet been fully studied. People are talking about it. It was discussed at the FDA advisory committee meeting. Pfizer plans to study it, I think Moderna is looking at it in their current trial. However, if everyone was vaccinated...
  9. RMJ
    I found a recent review article in a peer-reviewed journal discussing this subject. The only vaccine where there was a definite issue was the Hepatitis B vaccine. The other vaccines they reviewed seemed to work fine in celiac patients. Vaccinations and immune response in celiac disease
  10. RMJ
    It certainly sounds like celiac disease. European guidelines for diagnosing celiac in children allow skipping the biopsy if the TTG IgA is 10X the upper limit of normal range. https://www.espghan.org/dam/jcr:a82023ac-c7e6-45f9-8864-fe5ee5c37058/2020_New_Guidelines_for_the_Diagnosis_of_Paediatric_Coeliac_Disease._ESPGHAN_Advice_Guide.pdf Unfortunately...
  11. RMJ
    Fresh fruits and vegetables are considered safe, they don’t need to be labeled as gluten free. Just wash them thoroughly, especially during COVID times!
  12. RMJ
    1. People with celiac disease were not excluded from the trials, so with 18,000 vaccine recipients there were likely some with celiac disease. However, efficacy for them was not separated out. I doubt that they will be studied specifically by the vaccine sponsors. There are so many different diseases that people might have that they can’t look at every o...
  13. RMJ
    You might try the Gluten Contamination Elimination Diet, also called the Fasano diet, for a few months. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/ Also, to help with bowel troubles, you might want to give up milk and milk products. When villi are damaged they don’t make the enzyme lactase, so milk sugars aren’t digested and can cause dia...
  14. RMJ
    For an endoscopy to diagnose celiac disease you must be eating gluten. If you’ve been on a gluten free diet for a while your villi recover and the endoscopy/biopsy won’t see the damage. I don’t understand why doctors have trouble believing someone has celiac disease. One of my doctors was considering a scan (for something unrelated to celiac) which...
  15. RMJ
    Antibody tests are only approved by FDA to detect celiac disease, not to monitor progress on the gluten free diet. Still lots of doctors use it to monitor progress and it does appear to be useful. As a general rule, eating less gluten leads to lower antibody levels which means less chance of autoimmune damage.
  16. RMJ
    I wanted to clarify but can’t seem to edit my post. Antibody levels can be strange. I used to be responsible for antibody production in animals. Even highly inbred lab animals gave very different responses to the same dose of antigen. Then suddenly some animal’s antibody levels would go down, even with continued exposure to the antigen. For an ...
  17. RMJ
    There is probably a correlation within one patient, but not from patient to patient.
  18. RMJ
    Not necessarily. The immune response involves both B cells, which make antibodies, and T cells, which produce cytokines. Cytokines are the molecules which lead to the feeling of: “I’ve been glutened.” So the antibodies are only part of the immune response. Plus not all antibodies are equal. Some bind more strongly to their target (higher “affinity”), so t...
  19. RMJ
    You didn’t forget, I hadn’t mentioned it before. But it does explain why my posts tend to be technical!
  20. RMJ
    Absolutely, I will take it as soon as they’ll give it to healthy 65-year olds. I would not take it if I had ever had an allergic reaction to a vaccine until more is known about the allergic reactions seen in the UK. I have a PhD in pharmacology and have been following this whole subject very closely. I’ve read the FDA guidance and skimmed the Pfizer, Mo...
  21. RMJ
    It is hard to tell without the ranges or units. The IgA is probably total IgA. Total IgA is tested to ensure that the celiac specific IgA test is valid. Are the units mg/dL? That would be total IgA and if so yours is in the normal range. The TTG AB IGA being <2 is highly likely to be in the normal range, just because of the way it is stated...
  22. RMJ
    If you buy nuts in the shell and shell them yourself they should be gluten free. You could even wash them before shelling to be extra careful. If you react to nuts handled this way then it is likely the nuts, not gluten contamination, that is the problem.
  23. RMJ
    GFCO limit is 10ppm and they have two distinctive logos, the old one and a new one. GFCO
  24. RMJ
    If the TTG result goes down on the gluten free diet that would be another indicator that you have celiac disease.
  25. RMJ
    This paper doesn’t look at IgA/TTG, but does look at biopsies and says that oats can affect villi in sensitive people. Molecular basis for oat intolerance in celiac disease
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