Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,494

  • Joined

  • Last visited

  • Days Won

    45

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    This is NOT the case in the US. Some certified gluten free products in the US are made in shared facilities with shared equipment (for example, Nature’s Path cereals). Certified products must use strict cleaning procedures and an outside company evaluates the procedures and does some testing of the products.
  2. RMJ
    Hi Ennis, how are you doing?
  3. RMJ
    I’m so sorry Ennis. Hope surgery and recovery goes smoothly.
  4. RMJ
    I couldn’t get bananas or carrots.
  5. RMJ
    Spicely has certified gluten free spices. https://www.spicely.com/pages/certification
  6. RMJ
    I don’t know about better in all cases, but it will certainly use ketones when glucose isn’t available. This article about ketones and the brain is interesting. https://blogs.scientificamerican.com/mind-guest-blog/the-fat-fueled-brain-unnatural-or-advantageous/
  7. RMJ
    In an emergency I wouldn’t feel bad about getting a lot of calories from sugar for a while. Sugar (specifically glucose, which is half of table sugar) is what the brain needs for fuel.
  8. RMJ
    My husband and I share a sink for washing dishes, although I use my own dish brush and dish towel. No problems here.
  9. RMJ
    I didn’t get the official celiac diagnosis until I had the biopsy. Before that my medical record just said that I had a positive antibody panel for celiac.
  10. RMJ
    There are four main blood tests for Celiac antibodies, TTG IgA, TTG IgG, DGP IgA and DGP IgG. Did you have all of them? Were they all positive?
  11. RMJ
    I was diagnosed almost 8 years ago at age 57 and am doing fine so far!
  12. RMJ
    A lot of doctors, including some of yours, don’t understand celiac disease. It IS an autoimmune disease. Doctor’s lack of knowledge can make the diagnosis process very long and frustrating. I mentioned to one doctor that I had celiac disease (I was asking how a drug he proposed would affect me since it accumulated in the intestines). His response was...
  13. RMJ
    Perhaps all the results aren’t in yet? That is a result for total IgA. It doesn’t say anything about whether or not you have celiac disease. It is used to see if the actual celiac tests are valid.
  14. RMJ
    I think I’d ask for the full panel of tests prior to having a biopsy, and stay on gluten until the tests are done. I’m guessing the nurse saw the slightly high total IgA and got that mixed up with a celiac test. The total IgA test is just a control to be sure that the TTG IgA test is valid.
  15. RMJ
    I think your TTG results are negative? It looks like yours is 1.7, with a normal range 0-10. Your total IgA is just barely high - no big deal. The complete celiac panel was not run, there are also DGP antibody tests available. Some people are positive on those but not TTG.
  16. RMJ
    Here is a link to the original manufacturer, they have contact information at the bottom of the page. However, it also comes in a generic version so it may not be made by this company. Do you know the manufacturer? It is usually on the container, although may be in code. You should be able to find out from the pharmacy where you got it. https://www...
  17. RMJ
    Which blood tests did you have? Not everyone is positive on all of them.
  18. RMJ
    I looked at the labeling on the manufacturer website. It says it is gluten free. I’m sorry you’re dealing with bladder cancer.
  19. RMJ
    Docaz, are you saying that your children’s blood antibody levels with gluten-free diet plus enzyme are lower than with gluten-free diet alone? Do they take them with every meal, or only if contamination is expected? My blood levels are normal, but one of them is just barely in the normal range. I’m wondering if the enzymes could improve that one. S...
  20. RMJ
    The California Pizza Kitchen procedures have been evaluated and the pizzas tested by the certifying organization. Pizzas have also been tested by the Gluten Free Watchdog. If any customer feels “violated” they can report it not just to the restaurant but also to the certifying organization (GIG) who takes complaints very seriously (I had to complain onc...
  21. RMJ
    The California Pizza Kitchen chain has certified gluten free pizza. Their regular pizza crusts are not made at the individual restaurants, so there is no flour floating around. The gluten-free pizzas are prepared and cut at dedicated stations. They are baked in the same oven, but on foil.
  22. RMJ
    My father lives in a facility for seniors. The menu used to have gluten free items, now they have gluten friendly. If I have to eat there I order the plainest “gluten friendly” things I can find on the menu because I don’t trust them.
  23. RMJ
    Eating meat, fruits and veggies is good, as suggested above. If you’re eating any packaged foods, begin by reading the labels. Search for those that say gluten free. That’s the safest. If you eat something that doesn’t say gluten free read the ingredients and look for the words wheat, rye, or barley and avoid those. Eating at restaurants isn’t...
  24. RMJ
    I think it could be possible - a major glutening could be like a booster shot for the immune system. Hopefully your antibodies will go back down again as quickly as they did the first time.
  25. RMJ
    That is not a celiac test result. Celiac results are NOT reported as mg/dL. It is most likely a total IgA result. Were there any other results?
×
×
  • Create New...