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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I didn’t say it should be withheld, I just disagreed with worst case.
  2. RMJ
    I think the worst case is that someone will think that taking the enzyme means they can be less careful, and they eat more gluten which harms them.
  3. RMJ
    My story is similar. I showed my 23andMe results, which included elevated celiac risk, to my doctor, she knew I had migraines, and she suggested that I be tested for celiac.
  4. RMJ
    Smooth stainless steel pans can be cleaned. The concern is mainly scratched nonstick pans or other pans where gluten could remain in scratches or other rough spots.
  5. RMJ
    There is still a chance that when the biopsies are examined under a microscope the pathologist will diagnose celiac disease. Some newer endoscopes have better magnification than others and can see the villi during the endoscopy.
  6. RMJ
    It is quite possible for the intestine to look normal visually but show celiac when the pathology is done and looked at under a microscope.
  7. RMJ
    The National Celiac Association has some support groups in New Jersey. https://nationalceliac.org/celiac-disease-support-groups/
  8. RMJ
    Good! You should get an answer from those! Let us know how it turns out.
  9. RMJ
    Sounds like it could be celiac, especially when you have relatives that have it. What blood test(s) did you order?
  10. RMJ
    “To be clear, he’s not doing ANYTHING wrong by eating what he wants, but I’m angry and resentful about it despite my best efforts.” I’m not sure I agree. If he knows it really bothers you, he may be doing something wrong. Does he know it bothers you a lot? Is this a lot of foods, and thus a big imposition for him to avoid them? Or just a few thi...
  11. RMJ
    I was high positive on TTG IgA and IgG and DGP IgA and IgG. The one that took longest to get to normal was the DGP IgA. My doctor is stingy with ordering the tests so I was only tested once a year. DGP IgA started in the 140s (normal 0 to 19). After 1 year of reading labels and avoiding gluten ingredients DGP IgA was in the 50s. The rest were...
  12. RMJ
    I am also without symptoms, but my antibody levels didn’t come down to the normal range until I was super careful about possible contamination.
  13. RMJ
    Sounds like a good plan. I hope you can get a definitive answer one way or the other.
  14. RMJ
    You are right to be confused over those results. It is possible that your doctor is wrong and doesn’t know how to interpret the tests correctly, especially the total IgA. Can you ask “why do you say I have celiac when the only celiac specific test was normal?” I think you need a second opinion, preferably from a gastroenterologist. I wouldn’t want yo...
  15. RMJ
    I would go back on gluten and get further testing. Something about the results and your doctor’s interpretation doesn’t add up.
  16. RMJ
    That (46-287) is for the total IgA test, wasn’t there also a normal range listed for the Transglutaminase test?
  17. RMJ
    What is the normal range for your Transglutaminase result? Normal varies from lab to lab.
  18. RMJ
    Here is the FDA review : https://www.fda.gov/media/81500/download
  19. RMJ
    If you’ve been gluten free and are now doing a challenge, I don’t think symptoms, GI or other, would necessarily indicate detectable antibody levels. A recent scientific paper demonstrated that the nausea and vomiting people with celiac get a few hours after eating gluten was via a cytokine response from a type of T cells, not an antibody response. Also, th...
  20. RMJ
    The 10mg figure is an average. Some people can handle more, some less. The FDA reviewed all the literature before finalizing the gluten free labeling regulations and there was quite a range. if your scientific husband want to read the whole FDA review let me know and I’ll try find the link.
  21. RMJ
    When the blood tests are developed they don’t try to get a correlation between the numbers and the degree of villi damage. They basically just look for positive blood test with positive biopsy, and negative blood test with negative biopsy. I know some tests have a weak positive range - I wish I knew the brand so I could look up their approval on the F...
  22. RMJ
    Have you been retested for celiac antibodies? Are they back in the normal range? I was diagnosed by blood tests plus biopsy, but I am the only one in my family with celiac. Family history isn’t necessary to have this disease.
  23. RMJ
    I have a marble rolling pin left from my pre-gluten free days. Do you think it is ok to use it? The handles are wooden - I thought I could scrub, sand and varnish them to seal in any leftover flour. What about the marble? It is very smooth and shiny.
  24. RMJ
    Have your villi healed? Are your antibody levels normal?
  25. RMJ
    I’m skinny and haven’t gained weight after going gluten free.
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