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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Yeast extract and natural flavors might contain gluten, depending on how the yeast is grown and how the flavors are made. Some recommend that if these ingredients are present the food should only be used by someone with celiac if it is also labeled gluten free.
  2. RMJ
    Welcome! People with celiac disease differ greatly in their sensitivity to gluten contamination. I’m super sensitive. I couldn’t get my antibody levels down to the normal range until almost all gluten free processed foods I ate were certified gluten free. I definitely avoid ”may contain” and am wary of “made in a factory…”. That last statement isn...
  3. RMJ
    Would an article like this help? If so I can look for more. Case of coeliac disease presenting in the psychiatry ward
  4. RMJ
    I get mine from Nuts.com. If I copied the link correctly, this should take you to their certified gluten free selections: Certified gluten free nuts
  5. RMJ
    It would be very interesting to know how the duplicate samples were prepared, and how close the numbers were. If genuine duplicates with hot spots, I’d expect the two numbers could be quite different.
  6. RMJ
    I’m not sure what you mean by “blood work shows a growth deficiency.” I hope you get some answers at the Monday appointment.
  7. RMJ
    My initial TTG IgA was 110 with a normal range of 19 or less. My DGP IgA was 143 with the same range. I had an endoscopy after being on a gluten free diet for 3-1/2 years (delay unrelated to celiac) when my TTG IgA was down to 3 (normal) and DGP IgA down to 29 (high) and I still had Marsh 3A damage.
  8. RMJ
    Has your daughter had repeat antibody tests? If so, are they in the normal range or still elevated?
  9. RMJ
    The units used to report celiac antibody results can be quite different from lab to lab because they are not absolute weight/volume measurements. Even within a lab they can change. The lab where I’ve had celiac tests done has used tests with normal ranges of 0-19, then 0-3, and now 0-4.99. What is the normal range for normal for your test? Also, ...
  10. RMJ
    I think you have a good hematologist and a good gastroenterologist! With positive antibody results, positive visual results of the endoscopy (scalloping), some microscopic pathology results (increased epithelial lymphocytes), another autoimmune disease (Hashimoto’s) and a first degree relative (son) with celiac disease, it is VERY likely that your h...
  11. RMJ
    Thanks for the update! It’s great that they did have the more detailed descriptions and lot numbers, and provided a revised certificate. However, if they had a decent Quality department, the original certificate never would have been issued. It’s hard for me to believe that they’re ISO 17025 certified with that poor a certificate.
  12. RMJ
    LabCorp doesn’t seem to offer that test anymore, but they certainly don’t mention celiac disease in your quote. As discussed above, the antibody tests for celiac disease will likely give a false negative if you’ve not been eating gluten.
  13. RMJ
    Or it could be a test like the one described here, which is NOT a test for celiac disease. The one described here has the same normal range which the original poster listed. IgG gluten test That’s a good reason to get tested! Do you know what laboratory performed your IgG gluten test? Maybe we can figure out what type of test it really w...
  14. RMJ
    I’m not sure what an “IgG Gluten” test is, could you give the full name so we can evaluate if it is a standard test for celiac disease? If it is: If you have the genetics to allow celiac disease, other autoimmune problems, some family history, a positive antibody test, and feel better gluten free, why put yourself through the torture of a gluten chall...
  15. RMJ
    We’ll just have to disagree then. When I think of food allergies I think of anaphylaxis and epipens, and I don’t mind using an inaccurate term if it will keep me safer from being served food contaminated with gluten.
  16. RMJ
    To add to what @trents wrote, sometimes using the term “allergy” can help at restaurants, even though celiac disease is NOT an allergy scientifically and medically speaking!
  17. RMJ
    Too many errors from HRI. Vanilla cookies listed on certificate of analysis when chocolate chip was provided for testing, item descriptions not detailed enough (for example: can’t tell what type of King Arthur gluten-free flour was tested), telling you they used a test that canNOT give the quantitative results they reported, and not all items on certificate o...
  18. RMJ
    I just saw this comment, sorry to be a week late. The AgraStrip test is qualitative (yes/no gluten), not quantitative. Yet the HRI results are reported to two decimal places, not as yes/no. Might you mean the Romer AgraQuant test? Romer AgraStrip Romer AgraQuant
  19. RMJ
    GIG posted the following on Facebook this morning - I hope it’s ok to copy and paste it here: “We have recently been made aware of concerns raised by Moms Across America (MAA) regarding the gluten content in several products certified gluten-free by our organization. Specifically, their report mentioned that three products contained gluten levels abo...
  20. RMJ
    I like Jovial’s answer, that they didn’t detect gluten/pesticides above the lower limit of quantifiable detection, more than Banza’s answer that what they detected was less than the allowable limit. Limit of quantification is a very standard concept in analytical laboratories.
  21. RMJ
    King Arthur makes four different types of gluten free flour. Unfortunately the report doesn’t say which type they tested.
  22. RMJ
    There’s still the question of why Health Research Institute called the cookies vanilla on their certificate of analysis.
  23. RMJ
    Thank you Scott for following up with the various organizations/companies!
  24. RMJ
    Here’s one problem. The article on the MMA website says the Made Good cookies are Soft Baked Double Chocolate, as does your reply from Made Good. The Certificate of Analysis from Health Research Institute has the same lot number (1023) as your reply from Made Good, but says they are vanilla cookies. So what was really tested? What is the error? What o...
  25. RMJ
    Those are the genes that code for susceptibility to Celiac disease IF they have certain alleles, but the listed results (CC and TT) are NOT the celiac-related alleles. Sorry I don’t know where to get testing for the other HLA haplotypes, unless you want to go for whole genome sequencing.
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