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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I am also a silent celiac. I had to be very strict and careful about contamination to get my antibodies down to the normal range. I know what you mean about preferring to have a symptom! I think I might get nauseated when I am glutened but I am not sure. I had trouble with nausea before I was diagnosed and now it is rare. When it does happen it is usually...
  2. RMJ
    Your doctor is potentially keeping her ill and underweight with celiac disease so she doesn’t join the obesity epidemic?! Definitely need a new doctor. Is this pediatrician a gastroenterologist? If not, can you see a pediatric gastroenterologist? Are you in the USA? In most states you can order some blood tests online without a doctor - you could get t...
  3. RMJ
    Can you take her to a pediatric gastroenterologist or would you need a referral from this unhelpful doctor? Sounds like he is making up his own range (>100) for positive which is not appropriate.
  4. RMJ
    You said you only buy things labeled gluten free. Perhaps you are sensitive to very low levels of gluten? I pretty much stick to things that are labeled as certified gluten free. Or you could eliminate processed foods entirely and try the Fasano diet.
  5. RMJ
    Do you live in the United States? If so you may be able to order your own celiac blood panels online.
  6. RMJ
    Don’t beat yourself up too much, Perhaps this is just what you needed to convince yourself to stay gluten free from now on!
  7. RMJ
    In this paper they conclude that CD57 cells do not appear to have a role in celiac disease. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2222270/
  8. RMJ
    I don’t know what a broccoli seed looks like, but alfalfa seeds are much smaller than wheat kernels. I would think you could wash the seeds thoroughly before sprouting, pick out anything that doesn’t look like an alfalfa seed, and you'd be ok.
  9. RMJ
    Discouraging? You already have one normal value! That’s great! And the TTG is the antibody against yourself so a great one to be in the normal range. Keep up the good work.
  10. RMJ

    Immune reaction

    RMJ replied to Zodako's topic in Meet Up Room

    The amount of gluten that causes visible (under a microscope) damage varies a lot from person to person. Researchers do studies where they take people with celiac who are on a gluten free diet, feed them known amounts of gluten, then do endoscopies and look for damage. Why knowingly cheat when you know you have celiac? I wouldn’t even want a Marsh 2...
  11. RMJ
    Hi, I also have crypts and tonsil stones but they don’t sound nearly as bad as yours. What have you tried for them? I have to gargle two or three times a day with Listerine or I get a sore throat. I also have to remove them occasionally.
  12. RMJ
    You’re a good friend. I’d ask her what she prefers, and if she hesitates about having you cook for her, don't push it. I will eat at my brother’s, but they check ingredients with me and I look at anything packaged.
  13. RMJ
    The immune system changes during pregnancy so perhaps that is why your reaction was different. Best to stay gluten free until you’ve had the baby.
  14. RMJ
    You were feeling better on the gluten free diet then decided to cheat and now feel worse? Why not just stay on the gluten free diet?
  15. RMJ
    If you are gluten free, it takes weeks of eating gluten to get the antibodies to a level where they can be measured.
  16. RMJ
    You could try going gluten free for 6 months and see if the TTG levels go down.
  17. RMJ
    It is possible to have systemic reactions from skin prick tests, but they are usually happen along with a positive skin reaction. Here is some info about ragweed/banana and itchy mouth. https://www.aaaai.org/conditions-and-treatments/library/allergy-library/outdoor-food-allergies-relate
  18. RMJ
    My DGP antibodies decreased but remained stubbornly in the positive range until I tried the Fasano diet. I know it comes up regularly in the forums but I don’t know if there is a specific thread on it. The reason for waiting 4 weeks is to allow the villi to heal, since the enzyme that digests lactose is from the tips of the villi. After 3 months i...
  19. RMJ
    Not everyone is positive on the tTG test. Some are only positive on the DGP test (deamidated gliadin peptides). She might still have celiac, or it might be non celiac gluten sensitivity.
  20. RMJ
    I’m not sure what you mean by “her IgA is within normal range.” Is that total IgA, TTG IgA or DGP IgA? Were there any IgG tests? p.s. your English is fine!
  21. RMJ
    I used to develop tests like this. To develop a celiac blood test you take blood samples from a bunch of people with biopsy-diagnosed disease, and a bunch of samples from people without celiac. You run the test on all of them. Then you figure out where to make the healthy/celiac cutoff so that you get the right answer (matches biopsy) most of the time. ...
  22. RMJ
    Thanks, I will have to try these.
  23. RMJ
    OD stands for optical density. When the test is run it is evaluated in a machine which reads a color and gives results in OD units. Most blood tests have absolute units such as mg per deciliter, a weight per volume of blood. Celiac tests are not standardized. The units are arbitrary based on the machine used to read it. Thus each manufacturer has their...
  24. RMJ
    I’m curious, what is the purpose of soaking in water?
  25. RMJ
    You could try the gluten free diet and see if the antibody levels go down, that would certainly indicate that they were related to gluten in your diet.
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