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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    GIG posted the following on Facebook this morning - I hope it’s ok to copy and paste it here: “We have recently been made aware of concerns raised by Moms Across America (MAA) regarding the gluten content in several products certified gluten-free by our organization. Specifically, their report mentioned that three products contained gluten levels abo...
  2. RMJ
    I like Jovial’s answer, that they didn’t detect gluten/pesticides above the lower limit of quantifiable detection, more than Banza’s answer that what they detected was less than the allowable limit. Limit of quantification is a very standard concept in analytical laboratories.
  3. RMJ
    King Arthur makes four different types of gluten free flour. Unfortunately the report doesn’t say which type they tested.
  4. RMJ
    There’s still the question of why Health Research Institute called the cookies vanilla on their certificate of analysis.
  5. RMJ
    Thank you Scott for following up with the various organizations/companies!
  6. RMJ
    Here’s one problem. The article on the MMA website says the Made Good cookies are Soft Baked Double Chocolate, as does your reply from Made Good. The Certificate of Analysis from Health Research Institute has the same lot number (1023) as your reply from Made Good, but says they are vanilla cookies. So what was really tested? What is the error? What o...
  7. RMJ
    Those are the genes that code for susceptibility to Celiac disease IF they have certain alleles, but the listed results (CC and TT) are NOT the celiac-related alleles. Sorry I don’t know where to get testing for the other HLA haplotypes, unless you want to go for whole genome sequencing.
  8. RMJ
    It is quite normal in gluten free bread recipes to only proof once. Basically, put in pan, let double in size, then bake. Good luck!
  9. RMJ
    Ok, now I see why sugar might reduce the alcohol content - as long as you don’t overproof.
  10. RMJ
    Whether yeast makes alcohol or not depends on oxygen availability, not sugar availability. Yeast can certainly make alcohol out of sugar. I would decrease or omit the sugar, be sure not to overproof before baking (no more than double in size, it will rise more when baked), and bake thoroughly to drive off any alcohol. To what internal temperature did you...
  11. RMJ
    Even companies making foods certified gluten free by GFCO don’t have to test every lot. After enough lots that pass they are allowed to reduce testing. GFCO 2024 manual Step Down Testing pp22-23
  12. RMJ
    That isn’t a complete blood panel for celiac disease. Can you ask for additional tests? Especially Deamidated gliadin peptide (DGP) IgA?
  13. RMJ
    I don’t have a cat, but have had to look for gluten free food for my dog. Chewy has a lot of filters (look at left side of linked web page) so you can try to find gluten-free, chicken free, dry, senior cat food. When I put in all those filters there was only one (and it had turkey and duck), but if you don’t need senior, or if grain free instead of glu...
  14. RMJ
    Sounds like you found a good pediatrician! I hope you get a clear cut answer from the biopsies. Please let us know the results. If biopsies are negative, luckily you don’t need a doctor’s permission or prescription to try a gluten free diet. Just don’t start until you have all the celiac results - going gluten free too early can lead to false negat...
  15. RMJ
    GFCO has just withdrawn their gluten free certification of Aussie Bites due to finding levels of gluten above the allowable amounts. This might be why you reacted to them! GFCO safety alerts Edit: (I see Scott and I were posting at the same time)!
  16. RMJ
    It would be interesting to see if your antibodies increase with increased gluten consumption. Would it be the same laboratory running the repeat tests? The units used for the celiac antibody tests aren’t absolute, so the normal ranges may be different and one can’t always compare results from different labs/manufacturers.
  17. RMJ
    It certainly doesn’t hurt to repeat the blood tests, but I’m not sure why you think it might be a false positive, especially when you have symptoms. One doesn’t have to have positives on all the antibody tests to have celiac disease.
  18. RMJ
    Yes, extra intraepithelial lymphocytes and villous blunting are both signs of celiac disease. Have you had any of the antibody blood tests for celiac disease?
  19. RMJ
    It wouldn’t hurt to get the DGP IgA and IgG, and the EMA IgA, so when she sees the GI doctor he/she has the whole serology picture.
  20. RMJ
    It may depend on how refined the wheat germ oil is, and how much is in the product. It is great that you’re being so careful for your girl!
  21. RMJ
    Have all of your tests been run by the same lab? What are the normal ranges and are they the same for all of the results? The units used to report celiac antibody results are not standardized. Even though I’ve had tests ordered through the same health system for twelve years the normal ranges have been 0 to 19, then 0 to 3 and now 0 to 4.99. My results (...
  22. RMJ
    All my antibodies were positive when first diagnosed (TTG IgA and IgG, DGP IgA and IgG). However, the DGP IgA was the last one to decrease into a normal range on a gluten free diet (took several YEARS), and the only one to become positive again when I used flour labeled gluten free that wasn’t gluten free enough for me. (DGP IgG did also rise but stayed w...
  23. RMJ
    This celiac researcher found that some people with persistent symptoms and intestinal damage can improve following the strict diet they propose. Fasano diet paper
  24. RMJ
    It is concerning. Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists. Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby!
  25. RMJ
    Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten...
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