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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Whether yeast makes alcohol or not depends on oxygen availability, not sugar availability. Yeast can certainly make alcohol out of sugar. I would decrease or omit the sugar, be sure not to overproof before baking (no more than double in size, it will rise more when baked), and bake thoroughly to drive off any alcohol. To what internal temperature did you...
  2. RMJ
    Even companies making foods certified gluten free by GFCO don’t have to test every lot. After enough lots that pass they are allowed to reduce testing. GFCO 2024 manual Step Down Testing pp22-23
  3. RMJ
    That isn’t a complete blood panel for celiac disease. Can you ask for additional tests? Especially Deamidated gliadin peptide (DGP) IgA?
  4. RMJ
    I don’t have a cat, but have had to look for gluten free food for my dog. Chewy has a lot of filters (look at left side of linked web page) so you can try to find gluten-free, chicken free, dry, senior cat food. When I put in all those filters there was only one (and it had turkey and duck), but if you don’t need senior, or if grain free instead of glu...
  5. RMJ
    Sounds like you found a good pediatrician! I hope you get a clear cut answer from the biopsies. Please let us know the results. If biopsies are negative, luckily you don’t need a doctor’s permission or prescription to try a gluten free diet. Just don’t start until you have all the celiac results - going gluten free too early can lead to false negat...
  6. RMJ
    GFCO has just withdrawn their gluten free certification of Aussie Bites due to finding levels of gluten above the allowable amounts. This might be why you reacted to them! GFCO safety alerts Edit: (I see Scott and I were posting at the same time)!
  7. RMJ
    It would be interesting to see if your antibodies increase with increased gluten consumption. Would it be the same laboratory running the repeat tests? The units used for the celiac antibody tests aren’t absolute, so the normal ranges may be different and one can’t always compare results from different labs/manufacturers.
  8. RMJ
    It certainly doesn’t hurt to repeat the blood tests, but I’m not sure why you think it might be a false positive, especially when you have symptoms. One doesn’t have to have positives on all the antibody tests to have celiac disease.
  9. RMJ
    Yes, extra intraepithelial lymphocytes and villous blunting are both signs of celiac disease. Have you had any of the antibody blood tests for celiac disease?
  10. RMJ
    It wouldn’t hurt to get the DGP IgA and IgG, and the EMA IgA, so when she sees the GI doctor he/she has the whole serology picture.
  11. RMJ
    It may depend on how refined the wheat germ oil is, and how much is in the product. It is great that you’re being so careful for your girl!
  12. RMJ
    Have all of your tests been run by the same lab? What are the normal ranges and are they the same for all of the results? The units used to report celiac antibody results are not standardized. Even though I’ve had tests ordered through the same health system for twelve years the normal ranges have been 0 to 19, then 0 to 3 and now 0 to 4.99. My results (...
  13. RMJ
    All my antibodies were positive when first diagnosed (TTG IgA and IgG, DGP IgA and IgG). However, the DGP IgA was the last one to decrease into a normal range on a gluten free diet (took several YEARS), and the only one to become positive again when I used flour labeled gluten free that wasn’t gluten free enough for me. (DGP IgG did also rise but stayed w...
  14. RMJ
    This celiac researcher found that some people with persistent symptoms and intestinal damage can improve following the strict diet they propose. Fasano diet paper
  15. RMJ
    It is concerning. Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists. Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby!
  16. RMJ
    Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten...
  17. RMJ
    Glad you’ve found a solution! Smelling your food probably gets your salivary glands going. Saliva contains an enzyme (amylase) that starts breaking down the starch that you eat.
  18. RMJ
    The magnification when the biopsy is observed under a microscope is greater than that of the endoscope. So yes, the biopsy might be positive when nothing was seen during the endoscopy. I hope you get a clear cut answer!
  19. RMJ
    Did you change your diet in between tests?
  20. RMJ
    It’s wonderful that you’re trying to keep her safe from gluten! Based on posts I’ve read here over the years, not everyone tries to keep friends/family/significant others safe.
  21. RMJ
    Sounds like celiac disease to me. Symptoms, slightly positive blood test, abnormal biopsy results that indicate celiac disease.. I hope you continue to feel better as you are on the gluten free diet for longer. I don’t understand why some doctors, even gastroenterologists, seem to be so resistant to diagnosing celiac disease.
  22. RMJ
    You said “positive for every marker”, but I’d edit that to “every marker tested” (unless there were other tests you didn’t list). Was total IgA tested to be sure that other IgA tests would be valid? What about TTG IgG, DGP IgA and DGP IgG? Perhaps a full gluten challenge as Trents described, and a full celiac panel. On the other hand, do you feel be...
  23. RMJ
    Welcome to the forum, and to a celiac diagnosis. Was your weight loss prior to your diagnosis? Or in the last month? It will take a little while on the gluten free diet for your small intestine to heal and absorb nutrients properly
  24. RMJ
    Actually, even normal people don’t digest gluten all the way down to amino acids. I wasn’t clear. But normal people don’t have trouble with the gliadin peptides.
  25. RMJ
    Proteins and peptides are made of amino acids, the difference is the total size. Gluten is a large protein molecule. It is partially digested into smaller pieces, which are then called peptides. One of the reasons that gluten causes trouble for those of us with celiac disease is that our body can’t digest it all the way down to the amino acids.
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