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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Monk fruit is considered a “high intensity sweetener” by the FDA and is not required to be listed as a sugar in the nutrition facts. Monk fruit sweetener is often mixed with erythritol, which is a sugar alcohol. Erythritol is only required to be listed in the nutrition facts if the labeling includes a statement about its health effects. Manufacturers may...
  2. RMJ
    I don’t remember how long the sedation lasted but there was no discomfort afterwards. If I ever need another I won’t be worried about the procedure at all!
  3. RMJ
    That is for the nutrition facts label which is separate from the ingredient list. I tried to make that clear in each of my posts. I give up.
  4. RMJ
    I don’t disagree that sugar alcohols can cause digestive problems, or that Americans eat too much sugar/sweeteners. I just disagree with the labeling (mis)information. Maybe it’s different in Germany where the Sabine Hassenfelder is from, but I don’t find anything in FDA laws or regulations exempting sugar alcohols from the ingredient lists of foods...
  5. RMJ
    I think sugar alcohols have to be listed on the ingredient portion of a food label. They do NOT have to be included on the Nutrition Facts portion of the label unless certain claims are made about the food.
  6. RMJ
    Have the GI specialists found blood in your stool? An endoscopy can’t see the whole small intestine. Sometimes doctors will use a capsule (basically a tiny camera that you swallow) to look at the whole small intestine. Lack of red blood cells can either be from bleeding, something destroying the red blood cells, or the body not making red blood cells. ...
  7. RMJ
    The 9/21/23 tests include two celiac antibody tests which would be affected by a gluten free diet, and a total IgA test which is in the normal range (good!). (If the total IgA had been too low then different celiac tests might have been necessary).
  8. RMJ
    Yes, the first two would be affected by a gluten free diet (deamidated gliadin and t-Transglutaminase). “Negative” is a strange result for total IgA (Immunoglobulin A, Qn, serum). Was there a number and a range? This looks like total IgA which is tested to be sure the other IgA tests are valid.
  9. RMJ
    In the EMA test the patient’s serum is diluted and added to a microscope slide with a certain type of tissue. If there are a lot of antibodies in the serum it can be diluted a lot and still give a positive result. For example, a 1:160 dilution would mean more antibodies in the sample than a 1:20 dilution. Has your daughter continued to eat gluten a...
  10. RMJ
    A reaction to or damage from gluten will be related to the dose. So one time contamination from a tiny stain on a plate will be a tiny, tiny dose of gluten and shouldn’t cause much, if any damage. Many people with celiac disease can handle the amount of gluten in a small crumb or two of bread. If the dishwasher cycle couldn’t remove the material it ...
  11. RMJ
    Were you eating gluten prior to the testing? From your previous posts it looks like you try to be gluten free.
  12. RMJ
    Damage cannot always be seen visually. It depends on the magnification of the endoscope. That is why biopsies are taken.
  13. RMJ
    Spicely makes certified gluten free spices!
  14. RMJ
    Based on the normal ranges, it looks like the four sets of results were performed by three different labs, so different test manufacturers. Numbers can’t be compared unless they are from the same manufacturer’s test because the units are not absolute (weight/volume) but set by each manufacturer. Your numbers that can be evaluated have gone down bet...
  15. RMJ
    My celiac antibody tests have been ordered by doctors in the same Gastroenterology department in the same health system for 12 years. The TTG-IgA test has had three different normal ranges in that time! Original normal range 0-19 units Next normal range 0-3 units New normal range 0.00 to 4.99 FL units The DGP tests have only...
  16. RMJ
    As has been answered in your other posts, unless you’ve had additional serology testing (deamidated gliadin peptide antibodies, IgA and IgG) you did not have a full celiac antibody panel. Without these additional tests it is not correct to say you have negative serology.
  17. RMJ
    They fix and stain the samples so it takes a few days to get results (or weeks if they’re really slow).
  18. RMJ
    Someone did a great job testing you - doing the IgG tests because your IgA was low. I hope you get a definitive answer from the endoscopy! Damage to villi can’t always be seen during the endoscopy - it depends on the magnification of the endoscope. So if the doctor says he didn’t see any damage don’t lose hope for a diagnosis, the histopathology on th...
  19. RMJ
    Same here often just the aura, although I did have a painful one last month.
  20. RMJ
    I was tested for celiac disease because of migraines, not gastrointestinal issues. Turns out I have it (blood tests and biopsy positive). I’m strictly gluten free and still have migraines, but overall feel better, more energy. In case the biopsy confirms celiac disease you may want to enjoy your favorite gluten-filled foods while you wait for the n...
  21. RMJ
    Companies might use that statement because the spices are packaged in a facility that also processes items containing wheat, or even packaged on equipment that also processes items containing wheat. So there’s a risk it could be contaminated with gluten.
  22. RMJ
    Some endoscopes that doctors use to look at tissue during the endoscopy have better magnification than others. So sometimes damage can be seen (with good magnification) and sometimes it can’t. I won’t hope that you have celiac disease, but I hope you get a clear cut diagnosis!
  23. RMJ
    You don’t really know if your Ttg-IgG is unchanged or not. Greater than 250 could be 25,000 or 251. It could have decreased from 25,000 to 251. Good job on getting the Ttg-IgA down to near normal! It is not at all unusual for results to still be high after only four months of a gluten free diet. I would be that the IgG has come down but is still a...
  24. RMJ
    Normal hemoglobin levels are defined by looking at results from thousands of healthy people and doing appropriate statistics to get an appropriate range. Those calculations may be revised occasionally, or different in different countries, or a lab could have their own range… Here is an article evaluating the World Health Organization range: Evaluation o...
  25. RMJ
    The only way to know for sure if your villi have healed is another endoscopy with biopsies. However, a good surrogate is to look at antibody levels and see if they have returned to normal. I see in another post that your Tissue Transglutaminase IgA was elevated. Watching my antibody levels told me how strict I have to be with the gluten free diet. I started...
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