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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Blood test numbers don’t necessarily correlate with the degree of damage. Also, was your blood test run by the same lab as that of your grandson? The units used to report celiac blood tests aren’t standardized but are developed by each test manufacturer. Numbers between labs with different normal ranges can’t be compared.
  2. RMJ
    Some would say gluten sensitive enteropathy IS celiac disease! Gluten sensitive enteropathy When I had my endoscopy/biopsy my TTG IgA and DGP IgG had gone down to normal. My DGP IgA was 29 with a normal range of 0 to 19. Damage on the Marsh scale was 3A. Some scientific studies have shown intestinal damage continues in some people even after...
  3. RMJ
    My GI recommends methyl cellulose as a soluble fiber, because it doesn’t ferment in the colon as much as others.
  4. RMJ
    It sounds like severe constipation. Do you eat much fiber?
  5. RMJ
    Casein is the protein in milk. Lactose is the sugar. So lactose free is not the same as dairy free.
  6. RMJ
    IgE is the type of antibody seen in allergies. This would be a test for allergies, which are different than celiac disease. One does not have to eat gluten to prepare for an allergy test. The tests for celiac disease look at IgA and/or IgG antibodies. Routine priority just means that the test does not have to be performed by the laboratory on a...
  7. RMJ
    Do the two tests you’re comparing have the same normal ranges? The units used for these tests aren’t absolute weight/volume units - each test manufacturer uses their own. (It would be as if one person measured length in banana units and another measured length in cucumber units). The health care organization that I go to recently changed their TTG IgA...
  8. RMJ
    Due to an unrelated issue I couldn’t have a biopsy when my celiac antibodies were found to be elevated. My official diagnosis was thus “abnormal celiac antibody panel.” Maybe your doctor could put something like that on paper? Better than nothing. You are NOT doing something horribly wrong by skipping the biopsy!!! Four years of gluten free diet later...
  9. RMJ
    The FDA 20ppm regulation assumes someone can eat one kilogram of food containing that level. A few cough drops won’t be anywhere near a kilogram! However, some people with celiac disease are more sensitive and can’t handle the FDA’s allowed amount. I see that the ingredient in question is glucose syrup derived from wheat. The National Celiac Assoc...
  10. RMJ
    Is that what your doctor said after viewing your intestines during the endoscopy, or is that the result of the biopsies where a pathologist looks at tissue under a microscope? Did you have biopsies? If so, have you gotten those results yet?
  11. RMJ
    I didn’t answer your questions! 1. Not realistic, especially since you’ve had gluten accidentally. 2. Fairly realistic, as long as any nutritional deficiencies have been addressed. 3. Touching gluten should not be a problem for most with celiac disease, unless you then put your fingers into your mouth before washing them. Kissing someone on ...
  12. RMJ
    It can take some time to heal on the gluten free diet, especially if you’ve had occasional accidents. That said, I don’t see why your new consultant would want you to do a gluten challenge before the camera (endoscopy). Some doctors just don’t seem to believe other doctors celiac diagnoses and want to do tests themselves. It sounds like you know glute...
  13. RMJ
    As a scientist I was curious and tried to look this up. Acid and heat will help solubilize gluten, but this paper is talking about pH 1-3, and a cup of vinegar in a washing machine isn’t going to make the pH that low. Effect of heating and acidic pH on characteristics of wheat gluten suspension
  14. RMJ
    My TTG IgA was down to normal in a year, but my DGP IgA took SIX years!
  15. RMJ
    Here is a diagram that shows how different grains are related. Wheat, rye and barley (and their proteins) are more closely related than the other grains shown. Most with celiac disease only have to worry about these three. Of the others, oats are the most closely related, and some with celiac disease have trouble with oats.
  16. RMJ
    I am basically an asymptomatic celiac but still call myself super sensitive because of how careful I need to be to keep my antibodies in the normal range.
  17. RMJ
    Yes, it can take a while for them to come down to normal, but they should at least be decreasing. It took me 6 years to get all of my antibody levels into the normal range. The TTG-IgA was really stubborn. Have your levels come down at all? Were the tests run by the same lab? Results from different labs can’t be compared easily.
  18. RMJ
    I would just wash the clothes. To be extra careful you could wash them separately from other clothes and do an extra rinse, although probably not necessary. Can you just gently hose off the whole boot? Or wipe with a wet rag? I would worry about how to get them dry if you get them too wet. Exposing to the elements will NOT remove or destroy gluten.
  19. RMJ
    Celiac tests can look at either IgA and IgG antibodies. If she is IgA deficient she should have the IgG tests. Can you post the full names of the tests that she has had? Sometimes only the IgA tests are run.
  20. RMJ
    Welcome to the forum! Yes, with those results your doctor should diagnose you with celiac disease. I’m glad your doctor thought to test for it and glad you’re already feeling better!
  21. RMJ
    I was going to say basically the same thing as trents. Perhaps she has developed an intolerance to another food.
  22. RMJ
    I wonder if your request actually went to the doctor or was just denied by other staff. Perhaps some references to scientific articles would help to make your point: Gluten induced cognitive impairment (brain fog) in coeliac disease Cognitive impairment in celiac disease… Celiac Disease and Neurological Manifestations: From Gluten t...
  23. RMJ
    Reading your other posts, some anxiety about your situation sounds reasonable! It’s just gotten away from you. Your recognizing that it is a cycle is a great first step to breaking that cycle. Can you perhaps talk to a therapist to help with that? Possibly even get some anti-anxiety or antidepressant medication to help just until you’ve gotten out of ...
  24. RMJ
    Monk fruit is considered a “high intensity sweetener” by the FDA and is not required to be listed as a sugar in the nutrition facts. Monk fruit sweetener is often mixed with erythritol, which is a sugar alcohol. Erythritol is only required to be listed in the nutrition facts if the labeling includes a statement about its health effects. Manufacturers may...
  25. RMJ
    I don’t remember how long the sedation lasted but there was no discomfort afterwards. If I ever need another I won’t be worried about the procedure at all!
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