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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    It may depend on how refined the wheat germ oil is, and how much is in the product. It is great that you’re being so careful for your girl!
  2. RMJ
    Have all of your tests been run by the same lab? What are the normal ranges and are they the same for all of the results? The units used to report celiac antibody results are not standardized. Even though I’ve had tests ordered through the same health system for twelve years the normal ranges have been 0 to 19, then 0 to 3 and now 0 to 4.99. My results (...
  3. RMJ
    All my antibodies were positive when first diagnosed (TTG IgA and IgG, DGP IgA and IgG). However, the DGP IgA was the last one to decrease into a normal range on a gluten free diet (took several YEARS), and the only one to become positive again when I used flour labeled gluten free that wasn’t gluten free enough for me. (DGP IgG did also rise but stayed w...
  4. RMJ
    This celiac researcher found that some people with persistent symptoms and intestinal damage can improve following the strict diet they propose. Fasano diet paper
  5. RMJ
    It is concerning. Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists. Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby!
  6. RMJ
    Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten...
  7. RMJ
    Glad you’ve found a solution! Smelling your food probably gets your salivary glands going. Saliva contains an enzyme (amylase) that starts breaking down the starch that you eat.
  8. RMJ
    The magnification when the biopsy is observed under a microscope is greater than that of the endoscope. So yes, the biopsy might be positive when nothing was seen during the endoscopy. I hope you get a clear cut answer!
  9. RMJ
    Did you change your diet in between tests?
  10. RMJ
    It’s wonderful that you’re trying to keep her safe from gluten! Based on posts I’ve read here over the years, not everyone tries to keep friends/family/significant others safe.
  11. RMJ
    Sounds like celiac disease to me. Symptoms, slightly positive blood test, abnormal biopsy results that indicate celiac disease.. I hope you continue to feel better as you are on the gluten free diet for longer. I don’t understand why some doctors, even gastroenterologists, seem to be so resistant to diagnosing celiac disease.
  12. RMJ
    You said “positive for every marker”, but I’d edit that to “every marker tested” (unless there were other tests you didn’t list). Was total IgA tested to be sure that other IgA tests would be valid? What about TTG IgG, DGP IgA and DGP IgG? Perhaps a full gluten challenge as Trents described, and a full celiac panel. On the other hand, do you feel be...
  13. RMJ
    Welcome to the forum, and to a celiac diagnosis. Was your weight loss prior to your diagnosis? Or in the last month? It will take a little while on the gluten free diet for your small intestine to heal and absorb nutrients properly
  14. RMJ
    Actually, even normal people don’t digest gluten all the way down to amino acids. I wasn’t clear. But normal people don’t have trouble with the gliadin peptides.
  15. RMJ
    Proteins and peptides are made of amino acids, the difference is the total size. Gluten is a large protein molecule. It is partially digested into smaller pieces, which are then called peptides. One of the reasons that gluten causes trouble for those of us with celiac disease is that our body can’t digest it all the way down to the amino acids.
  16. RMJ
    Blood test numbers don’t necessarily correlate with the degree of damage. Also, was your blood test run by the same lab as that of your grandson? The units used to report celiac blood tests aren’t standardized but are developed by each test manufacturer. Numbers between labs with different normal ranges can’t be compared.
  17. RMJ
    Some would say gluten sensitive enteropathy IS celiac disease! Gluten sensitive enteropathy When I had my endoscopy/biopsy my TTG IgA and DGP IgG had gone down to normal. My DGP IgA was 29 with a normal range of 0 to 19. Damage on the Marsh scale was 3A. Some scientific studies have shown intestinal damage continues in some people even after...
  18. RMJ
    My GI recommends methyl cellulose as a soluble fiber, because it doesn’t ferment in the colon as much as others.
  19. RMJ
    It sounds like severe constipation. Do you eat much fiber?
  20. RMJ
    Casein is the protein in milk. Lactose is the sugar. So lactose free is not the same as dairy free.
  21. RMJ
    IgE is the type of antibody seen in allergies. This would be a test for allergies, which are different than celiac disease. One does not have to eat gluten to prepare for an allergy test. The tests for celiac disease look at IgA and/or IgG antibodies. Routine priority just means that the test does not have to be performed by the laboratory on a...
  22. RMJ
    Do the two tests you’re comparing have the same normal ranges? The units used for these tests aren’t absolute weight/volume units - each test manufacturer uses their own. (It would be as if one person measured length in banana units and another measured length in cucumber units). The health care organization that I go to recently changed their TTG IgA...
  23. RMJ
    Due to an unrelated issue I couldn’t have a biopsy when my celiac antibodies were found to be elevated. My official diagnosis was thus “abnormal celiac antibody panel.” Maybe your doctor could put something like that on paper? Better than nothing. You are NOT doing something horribly wrong by skipping the biopsy!!! Four years of gluten free diet later...
  24. RMJ
    The FDA 20ppm regulation assumes someone can eat one kilogram of food containing that level. A few cough drops won’t be anywhere near a kilogram! However, some people with celiac disease are more sensitive and can’t handle the FDA’s allowed amount. I see that the ingredient in question is glucose syrup derived from wheat. The National Celiac Assoc...
  25. RMJ
    Is that what your doctor said after viewing your intestines during the endoscopy, or is that the result of the biopsies where a pathologist looks at tissue under a microscope? Did you have biopsies? If so, have you gotten those results yet?
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