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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Definitely contact the company. They may have changed something about the manufacturing conditions. When my favorite cocoa powder was suddenly missing the gluten free claim I contacted the company. They had changed manufacturing sites and it was now made on equipment that also processed wheat.
  2. RMJ
    My personal theory is that the company of people is more important than the food. So I have been known to go out with people but not eat anything. Or just eat white rice. None of my friends or coworkers ever made a fuss about my doing that.
  3. RMJ
    Depending on how you parse the “contains” sentence, the wheat might be from the fermentation medium used to manufacture the enzymes. Enzymes are typically manufactured by growing microorganisms (bacteria or yeast) that make the enzymes, and those microorganisms need food!
  4. RMJ
    I was tested (biopsy) for microscopic colitis because of urgency issues. It turned out that I don’t have it, but my gastroenterologist said that it is more common in people with celiac disease.
  5. RMJ
    I sympathize, I’m also asymptomatic. Took me six years to get my deamidated gliadin peptide IgA into the normal range.
  6. RMJ
    How high was his Ttg IgA when he was diagnosed? I.e., is it at least coming down? (Note: can only compare results if they were run by the same lab).
  7. RMJ
    If that’s the typical EMA test the results are given as a dilution. In that case, it would have to be more dilute than 1:10 to be positive, so 1:5 would be negative.
  8. RMJ
    I had few to no symptoms, mainly some nausea. Without symptoms it is silent celiac disease.
  9. RMJ
    A colonoscopy cannot detect celiac disease, it looks at the wrong part of the intestines. Might you be having an endoscopy?
  10. RMJ
    I would probably wait until you’ve been six months gluten free to retest antibodies. They stay around for a while.
  11. RMJ
    My only experience is with the air travel part. You should be able to get gluten free meals, but they must be requested from the airline in advance. You can take plenty of “dry” snacks on planes. The only food limitations would be on liquids. There are cards available in various languages that one can show to a waiter to request gluten free food. H...
  12. RMJ
    You might consider going 100% gluten free IN your house, but allow non-celiac family members to eat gluten outside of the house when not with the 15 year old. This could make it a lot easier for the older sibling.
  13. RMJ
    When a result is reported as >250 it is difficult to see how fast it might be decreasing. It might have been 2500 and it’s down 50% to 1250 but it would still be reported as >250. Samples greater than the upper limit could theoretically be diluted and retested but labs don’t do it because it’s more work/expense for them. In the US the tests actua...
  14. RMJ
    I really wonder what the pediatric GI expects to see, or not see, with a gluten challenge and more testing. Test results are only useful if meaningful action can be taken. What if the results were the same - what would the GI say. What if the antibodies or endoscopy or both were normal - what would the GI say? Not celiac? Or not a long enough challenge...
  15. RMJ
    What is the normal range for your test? It can vary from lab to lab because the units aren’t absolute. My tTg IgA went down to the top end of the normal range within a year, but it took six years for my DGP IgA to become normal. That one still pops into the high range occasionally. If I eat processed foods I have to use certified gluten free foods. ...
  16. RMJ
    Looks like blueberries can turn stool blue or black: How your diet can affect your poop color
  17. RMJ
    Are the masses always there in the same places, or do they come and go? When I was skinnier I could sometimes feel a mass in my abdomen and it turned out to just be a normal part of my intestine with material and/or gas moving through.
  18. RMJ
    Here is information from the company that did the Phase 1 clinical trial. Anokion press release
  19. RMJ
    As a fellow scientist, I like your approach. There is a good genetic/chemistry reason why some celiacs react to oats. Oats are in the same sub-family as wheat, rye and barley. This article has a good diagram. https://minervanaturalhealth.com.au/coeliac-disease-gluten-and-oats/
  20. RMJ
    This fact sheet from Pfizer has the ingredients in Paxlovid: Paxlovid fact sheet
  21. RMJ
    A lot of bread recipes include some sugar because that’s what the yeast “eats” in order to grow and form the bubbles that make bread rise. If it is way down in the ingredient list it may be for the yeast action and the bread probably won’t be very sweet.
  22. RMJ
    If anyone wants to read the technical article, here it is: Utilization of FTIR and Machine Learning for Evaluating Gluten-Free Bread Contaminated with Wheat Flour The problem with FTIR is that it requires an expensive piece of equipment. Doing ELISAs is much less expensive and therefore more readily available to manufacturers.
  23. RMJ
    That result does not indicate celiac disease. Was there any more description of the test? What you posted doesn’t indicate if they looked at IgA TTG antibodies, IgG TTG antibodies, or both. Also, although many doctors start by just looking at the TTG antibodies, there are additional tests for celiac disease that look at antibodies to DGP (deamidated g...
  24. RMJ
    Your son having celiac disease also makes it more likely that you have it. I hope you feel better gluten free!
  25. RMJ
    RU might be something like relative units, since the units for the TTG-IgA aren’t absolute. What’s strange is that you’re at the bottom of the range and they didn’t do total IgA. It could be that 0.2 RU in the TTG-IgA test is the limit of quantitation, and they do have a lower number that is between the limit of detection and the limit of quantitation, and th...
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