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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    The total IgA test is standardized and is reported as an absolute amount, although the normal ranges vary a little from lab to lab and are also different for children of different ages. The only way to know if someone is IgA deficient is to do a total IgA test.
  2. RMJ
    Your daughter has three positive tests for celiac disease, out of five. One does NOT need to have all of the tests positive to have celiac disease, some patients only have one positive. The next step may be an endoscopy. Be sure to have her continue eating gluten until all testing is complete.
  3. RMJ
    A very, very minor issue: I usually look at this site via the Unread Content page. For weeks now, one article has always been at the top. I've read the article and have gone to that page multiple times to convince the site that I’ve read it, but it is always there as unread. Does this happen to anyone else? Did I somehow unknowingly pin the article to t...
  4. RMJ
    As others have said, good for you for pushing for the testing/diagnosis! You might be able to call Quest and ask for the turnaround time. Looking at their website shows two Quest labs (basically East and West coast) that could run the test. I’ve added the link for the test with reflex, which could take longer. Quest link
  5. RMJ
    Your glutening is obviously not contagious. But if someone is bullying people to come to work when ill with something contagious that is really not good and will just lead to more people being ill - counterproductive.
  6. RMJ
    Since you already know that you have increased levels of tissue glutaminase IgA, I don’t think you need the total IgA test. It will not add any useful information in your case.
  7. RMJ
    The Anti Gliadin Ab IgA is so high that it is above the range where the test gives a specific value for the answer. It is greater than (>) 150. It could be 151, it could be 1500. It is not moderately positive, it is a very high positive.
  8. RMJ
    When I need to gain weight I find that peanut butter helps since it has a high amount of calories per unit volume. I also have snacks mid-morning and mid-afternoon whether I’m hungry or not.
  9. RMJ
    It may take a while for the antibodies or intestinal damage to reach an observable level, but that doesn’t mean that damage isn’t being done. The tests have “limits of detection.” Antibodies have to reach a level that is detectable by the test. Intestinal damage has to cover a large enough area that a random biopsy will find it.
  10. RMJ
    Thank you trents. Interesting article. Bacteria with gluten-degrading enzymes were found in human duodenum and theoretically might be able to colonize the duodenum of celiac patients and break down gluten there. I’m not sure how much gluten could be broken down in this manner though.
  11. RMJ
    I can’t even see the article in the link. If you can post the journal name and an author I can search for the original research paper.
  12. RMJ
    Yes, 6 weeks should be enough.
  13. RMJ
    How much gluten were you eating prior to the endoscopy? You said you gravitate towards a gluten free diet. If you’re fairly gluten free that could affect your endoscopy results.
  14. RMJ
    The first two listings on the linked page are for Ambien packaged by Sanofi. Your bottle should have an NDC code so you can see if one of them matches your prescription. Daily Med - Ambien If you click on the product name it will take you to another page, scroll down to “Ingredients and Appearance” and click on the “+” sign. There is indicates that th...
  15. RMJ
    This is true, but the crucial word is “most.” Some of us cannot handle that amount and are super sensitive.
  16. RMJ
    Oats that are not labeled gluten free when eaten regularly might be enough to cause symptoms and a positive celiac test. Plus some people respond to the protein in pure oats. I’d eliminate oats and see what happens before throwing out much in the kitchen. If removing oats doesn’t help, I think your plans are a bit overboard. Metal pots and pans wit...
  17. RMJ
    I looked at the original article. The researchers found that not all IELs are the same. Although IELs are increased overall in those with celiac disease, they found a subset of IELs that is decreased.
  18. RMJ
    I do too. The first time my mother gave me a vitamin pill I tried and tried to swallow it until all the coating had dissolved and the inside tasted really terrible! I usually take pills in a mouthful of food. Chew food until ready to swallow, then pop pill into my mouth and swallow with the food. I have a pill for osteoporosis (alendronate) that...
  19. RMJ
    I’m not sure what you mean by “I’m just not good with taking a large amount.” Do you have trouble swallowing the vitamin pills? (I do). If so, for vitamin D you could take a higher dose less often. Vitamin D is the only supplement I take. I take it because I have osteoporosis.
  20. RMJ
    I would be furious if this happened to me. Good for your boyfriend in noticing something that might contain gluten! It sounds like you have his support.
  21. RMJ
    You definitely will need vitamin D. Have you ever had your vitamin D levels checked?
  22. RMJ
    King Arthur makes some certified gluten free flours, but be careful they are not all certified. When I used a lot of Bob’s Red Mill flours my antibody levels went up. I’m a silent celiac so I can’t go by symptoms. My antibody levels went back to normal when I switched to King Arthur.
  23. RMJ
    Unfortunately there’s no clearcut answer to your question. Antibodies will often go up with continued exposure to the antigen, in this case gluten. But sometimes they’ll plateau or even go down. In your daughter’s case, I hope they’ll go up so you can skip the biopsy and start treatment (gluten free diet)!
  24. RMJ
    From what I can find, “gluten based bioplastics” are being studied. Whether they are actually used out in the real world or not I don’t know. Article on gluten based bioplastics
  25. RMJ
    As trents said, you did NOT have a full celiac panel. A full panel would include: Total IgA (if deficient, the other IgA-based tests might not be accurate). TTG-IgA TTG-IgG EMA DGP-IgA (Deamidated Gliadin Peptides) DGP-IgG Not everyone with celiac disease is positive on all tests.
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