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RMJ

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  1. RMJ
    RMJ's post in Blunted villi almost 4 year after diagnosis was marked as the answer   
    I only had the one endoscopy.  My GI wasn’t worried that I still had blunted villi. My antibody levels are now normal. I never had specific symptoms, although I generally feel better now, less fatigue. 
    I think not having  ex...
  2. RMJ
    RMJ's post in potato chip cross contamination was marked as the answer   
    I don’t know what sort of labeling TJs does for gluten free.  In general, if a company labels some products gluten free, then has a product not labeled gluten free, I would be very cautious with that product.
  3. RMJ
    RMJ's post in Labcorp Celiac Testing for Providers vs. On Demand for Patients was marked as the answer   
    I just looked at Labcorp, they sure have a number of different celiac panels!
    You’ve had the total IgA tested before so there isn’t much value in retesting that.  You don’t have a deficiency. 
    The panel you ordered for you...
  4. RMJ
    RMJ's post in Newbie with Weight Loss was marked as the answer   
    Welcome to the forum, and to a celiac diagnosis.
    Was your weight loss prior to your diagnosis? Or in the last month?  It will take a little while on the gluten free diet for your small intestine to heal and absorb nutrients properly <...
  5. RMJ
    RMJ's post in Conflicting Lab Ranges was marked as the answer   
    Normal hemoglobin levels are defined by looking at results from thousands of healthy people and doing appropriate statistics to get an appropriate range.
    Those calculations may be revised occasionally, or different in different...
  6. RMJ
    RMJ's post in Is Classico pasta sauce still gluten free after repackaging? was marked as the answer   
    Definitely contact the company.  They may have changed something about the manufacturing conditions.  
    When my favorite cocoa powder was suddenly missing the gluten free claim I contacted the company.  They had changed manufacturing si...
  7. RMJ
    RMJ's post in Please help, mass in the abdomen was marked as the answer   
    Looks like blueberries can turn stool blue or black:
    How your diet can affect your poop color
  8. RMJ
    RMJ's post in Gluten in plastics from manufacturing, not contamination. was marked as the answer   
    From what I can find, “gluten based bioplastics” are being studied.  Whether they are actually used out in the real world or not I don’t know.
    Article on gluten based bioplastics
  9. RMJ
    RMJ's post in Supplements? was marked as the answer   
    You definitely will need vitamin D.  Have you ever had your vitamin D levels checked?  
  10. RMJ
    RMJ's post in WE NEED SOMETHING DONE TO PROTECT US!!! was marked as the answer   
    This looks like the most recent attempt in Congress to pass a law requiring labeling of medications with respect to gluten, although it didn’t make it through.
    HR2435
    The National Celiac Association advocates for this t...
  11. RMJ
    RMJ's post in Daughter test results was marked as the answer   
    With symptoms, family history and positive TTG and Endomysial antigen tests it is likely she has celiac disease.  It would be best NOT to remove gluten from her diet now as that could affect any additional testing by the gastroenterologist....
  12. RMJ
    RMJ's post in Endoscopy on 2 year old was marked as the answer   
    “lining appears healthy” sounds like a visual inspection, especially if you were told that on the day of the endoscopy!  Biopsy results take longer.   Celiac damage can’t always be seen with the endoscope, so you’ll need to wait and ...
  13. RMJ
    RMJ's post in Four months in, labs show progress, still having some symptoms. was marked as the answer   
    How do you define strictly gluten free with respect to processed foods? I have a degree in Nutrition Science so I thought all I had to do was read labels and not eat foods with gluten ingredients.  For me that wasn’t enough to get al...
  14. RMJ
    RMJ's post in Celiac disease or not? Differing opinions among GI MD! was marked as the answer   
    Yes, it is what I thought. Each line has to be read all the way across for those two tests.  It certainly is a confusing layout on the page! The Endomysial Antibody IgA is a separate test from Immunoglobulin A, Qn, Serum (Qn probably ...
  15. RMJ
    RMJ's post in Newly diagnosed and scared to touch anything outside of my own home... was marked as the answer   
    You may be going a little overboard. Do you share desk space/computers etc? Disinfecting wipes won’t destroy gluten - it must be physically removed. But touching gluten isn’t a problem if you wash your hands before eating or touching your...
  16. RMJ
    RMJ's post in Test results question was marked as the answer   
    The ranges are different because the units in which results are reported are different.  It is as if one test manufacturer used micrograms and one used ounces, but the celiac test units are arbitrary and there is no conversion factor ...
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