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lrmilas

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  1. lrmilas
    I think my blasto is back. The single dose of Tinidazole cleared up my diarrhea for a few days, now I have the rumbling stomach and fatigue again. It’s only been one week. I am wondering about alinia. Did you have side effects? It really worked??? I need to get my doctor to pay attention to this!
  2. lrmilas
    Thank you for this. I think that may be the next drug if the Tinadazole doesn’t work. I really appreciate you sharing this.
  3. lrmilas
    Wow thank you for posting this! Yousaid just what I needed to hear right now. I had to cancel my endoscopy this week because I’m just too sick and besides unless I had something like cancer what can it tell us? But clearly my parasite is back and flourishing and I have been prescribed two powerful drugs to try to knock it out. That prescription won’t be ...
  4. lrmilas
    Thank you Kate. I know everyone wants a positive for sure diagnosis. I have not eaten gluten in any sizable amount in years. I just had the labs done again they are all negative. I am sure endoscopy would be too. However I’m a type one diabetic And the genetic testing I havd done for Celiac puts me at the very highest level of likelihood. I don’t know if ...
  5. lrmilas
    My mind is racing. I have studied nutrition my entire life. I know about B1. Yet it never occurred to me or any doctor to test for it… except once ten years ago when the test came back very low. It was a shock then because I was taking at least some supplements. As I recall I had lost a huge amount of weight, couldn’t sleep, paced endlessly. I’m doing that ...
  6. lrmilas
    I am hanging onto these words. I don’t know when I last had a trace amount of gluten but I suspect it’s been frequent. And now here I am powering back iron (120 mg a day), B12 and other things and feeling weak enough to be in a hospital. If this is celiac related I’m wondering how long before I start to turn around. I’m on my way to the store to pick...
  7. lrmilas
    Thank you so much for this. I just browsed the study but am too wiped out to read it all right now. Bottom line, what do you take daily? How much of what? I am also a Type 1 diabetic, so I know thiamine is a factor.
  8. icon knitty kitty reacted to a post in a topic: Confused and a little scared...
  9. lrmilas
    Thank you so much for the heads up! I do take a good B Vitamin, and my B12 shots have B1 in them... however I cannot say I've been faithful. I also have Benfotiamine. I will take some today and keep on taking! I REALLY appreciate this information!
  10. lrmilas started following Confused and a little scared...
  11. lrmilas
    I am about to turn 69, spent the last four years rock climbing in the desert, and suddenly am very very sick. I rapidly lost 20 pounds, and my iron/ferritin levels plummeted from 100 a month ago to 30 today. I've been unable to sleep... in fact, the nervous symptoms are worse than the physical ones. Celiac was the last thing on my mind because I was thinking...
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