Fenrir
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Fenrir
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I'm no Dr. but if you have pain that wakes you at night that's something that should be treated or evaluated immediately. Extreme abdominal pain can be a sign of many things including bowel obstruction (can happen with extreme constipation), UC or any number of things that are potentially fatal. Extreme pain without being exposed to gluten isn't normal... -
i have celiac right?
Fenrir replied to joe3530's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You have the labs that are pretty specific to celiac disease so I believe you are as sure to have celiac disease as one can be without having the EGD done. I would get the EGD done if money isn't an issue but you could certainly just go gluten-free and if you improve then you are good to go. I had the EGD done because I maxed out my deductible and max... -
I had similar issues as you before I was diagnosed but also had join issues, headaches, constipation, stomach pain, bloating, and fatigue. Typically, you don't just have one or two symptoms you end up with multiple. No way to really know unless you get tested and you'd need to be eating gluten for the tests to work right. If you want to see what...
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Sjogren's, Celiac, or both?
Fenrir replied to Eggs's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Doing great! Been gluten-free for two years, now. No symptoms, antibodies are almost nil and certainly where they should be. Been glutened really bad twice (ate 4 slices of bread I thought was gluten-free once, and ate pasta I thought was gluten-free once) was in bed for three days each time and felt like crap for a couple of weeks. Learning experiences,... -
I'm not a doctor or expert but I've done a lot of reading and I believe anything that causes major inflammation for the small intestine can cause false positives for celiac antibodies. Sometimes people with Crohn's will have positive celiac tests as well. I wouldn't be surprised in the least that someone with a bad case of Giardia would come up positive...
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Sjogren's, Celiac, or both?
Fenrir replied to Eggs's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Everything you listed above very well could be Celiac Disease and not Sjogren's, but people with one autoimmune disease are at a higher risk of getting another one. Your GP clearly is working with old knowledge in regard to Celiac Disease. There are probably more people who suffer from constipation from Celiac than loose stools. I know for me I never... -
That sucks, hopefully they figure out what the issue is.
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Genetic testing is pretty much useless so there's not much to learn from it. Probably need to do all the Celiac antibody tests.
