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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    Yes, no need really for the biopsy if you don't have any positive tests, IMO.
  2. Fenrir
    Do you have the reference ranges?
  3. Fenrir
    Whoops! Yeah, had an issue reading the results sideways. Looks pretty negative now that I look at it again. It still could be you haven't been eating enough gluten and like RMJ said they didn't run all the right tests either.
  4. Fenrir
    If you want to get the results to show celiac you have to be eating at least two pieces of regular bread a day for a month or so before the biopsy. If you are eating low gluten it can cause the tests to be negative or weak.
  5. Fenrir
    I would ask to be referred to a GI or ask to have and EGD with biopsy done. You do have a slightly positive TTG IgA which would indicate celiac disease. You also have slightly elevated liver enzymes which is another common thing seen in celiac disease. Your Dr./Nurse may not know that there's no such thing as "not true celiac", you have it or you don...
  6. Fenrir
    There are so many of them it's hard to advise you unless you give specific examples. Pediasure is gluten-free.
  7. Fenrir
    It really depends. Mine were normal after 6 months, some people will still show elevated for a year or more. That's with a strict gluten-free diet. Early on it's best to judge recovery by seeing if symptoms improve. Labs should still be done periodically to make sure they are going down but it can take quite a while for them to get back to normal.
  8. Fenrir
    Yup, and I expect most of those reactions happen because the makeup/lip balm..ect ends up in their mouth in inadvertently and then into the GI tract.
  9. Fenrir
    Didn't in tend to be condescending if that's how it came off. I'm just going based on the science of a celiac reaction. As far as I've been able to find there's no proof that a celiac can react to gluten that hasn't reached the small intestine. I'm open to being proven wrong but I haven't seen anything yet that indicates this is possible. I only mentioned...
  10. Fenrir
    Your reaction sounds more like an allergy than Celiac Disease. In celiac disease I don't think you can really even have a reaction to anything that doesn't reach your small intestine. It takes anywhere from 1-3 hours for it get from the stomach to the small intestine before it causes a reaction. I doubt Celiacs will react within seconds, if so they may be...
  11. Fenrir
    Unfortunately, it sounds like your situation is still questionable. This may be due to the fact that you were sporadically eating gluten around testing times. I think at this point if you don't want to start eating gluten to get accurate testing or have a biopsy then just go gluten-free , completely. If you aren't feeling better after a month then you...
  12. Fenrir
    Celiacs can be deficient in many vitamins and minerals including B12. As many as 40% of celiacs have a B12 deficiency before being diagnosed. Here's an interesting study on vitamin deficiencies in Celiacs: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820055/
  13. Fenrir
    The only major downside to not getting a DX is that it might be something other than Celiac Disease. However, if you go gluten-free and your symptoms go away eventually then you can be fairly certain. With that said if you a biopsy saying you celiac disease then you arleady have the DX.
  14. Fenrir
    Do you mean an item with gluten in it?
  15. Fenrir
    Did the biopsy results actually say something about Celiac Disease or more description of the type of damage? There are many things besides Celiac Disease that can cause intestinal damage. Assuming it said celiac disease, there's really no further need to see Drs. if you are feeling better gluten-free. As long as you've had labs on vitamins, minerals...
  16. Fenrir
    Actually, yes, it could be celiac. Hard to know without getting tested. Anxiety and lactose intolerance are big problems for celiacs and many celiacs get misdiagnosed with IBS. I would certainly push your Dr. to have the proper testing done. See below: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  17. Fenrir
    I know my primary symptom now directly after eating gluten is vomiting. It's almost like clockwork, 3 hrs after I eat gluten I get very nauseous and usually throw up and feel terrible for a day or two.
  18. Fenrir
    If you are relatively newly diagnosed you may be lactose intolerant. Many celiacs (assuming you are celiac) are lactose intolerant at least until they are healed up. Caffeine can also irritate the GI tract before you're healed as well.
  19. Fenrir
    The best thing to do is talk to the pharmacist and if they can't help the next thing would be to try contacting the pharmaceutical company that makes them.
  20. Fenrir
    Depends on what type of enzymes, there are lots of different ones out there.
  21. Fenrir
    I would definitely keep her on gluten until fully tested if it's manageable. I know I react to gluten way more harshly now that I've been gluten-free for six years than I did before I was diagnosed.
  22. Fenrir
    Yes, cross contamination is a serious issue for celiacs and most certainly could cause a reaction.
  23. Fenrir
    I'm not sure that Celiac Disease would be the first the thing to look at if this is his only symptom. I would think if you moved to Ne Orleans the most likely explanation would be change in diet which can cause a change in body odor. It could be any number of diseases as well or just poor hygiene which may be more noticeable with a change in diet and if you...
  24. Fenrir
    Usually just one sample showing celiac is enough. The reason the do more than one is sometimes the damage can be spotty.
  25. Fenrir
    Best thing to do is to call the manufacturer if it's not labeled gluten-free.
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