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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    Unfortunately, I've found most of my favorite eastern restaurants are a no go. None of the Asian or Indian places near me are remotely safe for celiacs. Mostly small, family owned places around here that are mostly unaware of food allergies. If I travel to other places sometimes I can find a safe place.
  2. Fenrir
    There's a difference between what you're saying and what I was talking about. Sure, you can have mood swings, anxiety...ect because you don't feel well. My point is that there are MANY, MANY diseases that cause different imbalances in body chemistry. This isn't unique to celiac disease. If you're healed up and gluten-free , celiac disease isn't the...
  3. Fenrir
    I'm a firm believer that celiac disease only aggravates mental conditions that are already there. The withdrawals can possibly cause mood issues like someone coming down off of drugs, alcohol or tobacco but it's not the gluten per se. Generally speaking people that don't feel well for long periods of time have more anxiety, depression.....ect, no matter...
  4. Fenrir
    The Kuerig brand of regular, unflavored coffee is gluten free. The vast majority of plain coffee based products are gluten-free.
  5. Fenrir
    Yes, some folks tend to have more sinusitis. I used to get sinus infections and ear infections pretty frequently but haven't had one since going gluten-free. I think it may be that celiac disease is an autoimmune disease so your immune system is all screwed up from the reaction to gluten.
  6. Fenrir
    Chances are if you have lumps on your body for years and the Dr. isn't concerned they're probably not lymph nodes. Chronically swollen lymph nodes would be something every Dr. would be concerned with. Chances are you just have cysts or lipomas as stated above. I had a cyst removed from my head years ago, my mother had several of them. Drs generally...
  7. Fenrir
    It's different for everyone, it can be a month or maybe a year. Most probably within a few months. This is assuming the symptoms are in fact related to gluten, which they may not be.
  8. Fenrir
    I have a 12 year old daughter. Sounds pretty typical preteen/teen to me. Mine is not a celiac and she sounds just like what you describe. I think it's just sassy, homonal, typcial teen girl behavior. ?
  9. Fenrir
    I was on BP meds for a while but didn't have an issue with Losartan. I haven't taken any hormones but I would think injections would be much less likely to have gluten in them than pills.
  10. Fenrir
    Joint pain was maybe one of the worst symptoms I had. It can take months of being gluten-free for it to go away unfortunately. Make sure you are having your vitamins and minerals screened and if calcium or vitamin D are low take a supplement.
  11. Fenrir
    Also, using mice doesn't eliminate the need for human trials as well. From what I've been told is that mice are great for a first line screening. Mice are smaller animals than humans (obviously) and physiology not quite the same. Many drugs tested on mice (even scaled to size) tend to be more effective in mice than humans. However, what using mice allows...
  12. Fenrir
    I'm finding that I don't process casein very well ever since I started having celiac symptoms. My antibodies and biopsy results post dx show that I've healed but I still don't process casein well. Strangely, I can still process whey protein fine so long as it contains no casein. Given the types of proteins whey and casein are made of are different,...
  13. Fenrir
    It's good that they are finding a way to research without using humans but research done on mice (for practically anything) has been pretty unreliable when studies move on to testing things in humans.
  14. Fenrir
    Yes, the upper right just under the rib is where I get it too when I get glutened. One thing that seems to help me recover is to avoid processed foods and do intermittent fasting for a couple weeks. Processed foods can cause inflammation in the gut, intermittent fasting helps reduce stress on the GI tract by giving it a rest for 16hrs a day.
  15. Fenrir
    The short answer is yes, with only a month all of these things could still be a problem even if 100% gluten-free. I know many new celiacs get exposed to gluten quite often early on unintentionally due lack of knowledge too. It's also possible you may be getting exposed to cross contamination from sources you haven't figured out yet.
  16. Fenrir
    Only three months of gluten-free isn't enough time for many celiacs to heal fully. So if you were diagnosed with celiac disease you can continue to have symptoms for upwards of 6-8 months in some cases longer than that. Also, many people new to eating gluten-free get exposed to gluten a lot because they're not educated about eating gluten-free and cross contamination...
  17. Fenrir
    My symptoms were mainly joint swelling and neurological. I had bloating and gut pain but none of the other GI symptoms most others have, it seems. I had migraines, nerve pain in my hands and feet. I actually had trigeminal nephropathy something awful when I was eating gluten. All of the neurolgical stuff went away within a month of going gluten-free.
  18. Fenrir
    Exactly @Scott Adams In my six years as a celiac and being quite curious looking into celiac related issues it's quite clear that the there is a wide range of disagreements among the many celiac organizations. IMO, there are too many celiac organizations, seems there is a little too much territorialism in the celiac organizations for my liking. And...
  19. Fenrir
    It's not an attack, simply, at this point it's wasting my time responding to posts that say "the studies aren't clear" when they are. You may have an argument if we haven't had one done on celiacs to measure how many reactions would be avoided using AN-PEP. But the science does indicate that AN-PEP is effective in reducing gluten that makes it to the small...
  20. Fenrir
    For the record, I've been testing GliadinX a little on myself. I've gone to restaurants I've previously head reactions at: Pizza Ranch Dominos Denny's Applebee's When I first was diagnosed and didn't know better I thought that gluten-free options at these places were safe and I had reactions to the food, presumably from cross...
  21. Fenrir
    Yeah, one sample isn't good. Should be at least four, but eight would be better.
  22. Fenrir
    The studies are very clear. AN-PEP does reduce the amount of gluten that makes it into the small intestine. In that thread it's been pointed out many times that there are clear studies on humans that shows that. The only thing that hasn't been shown is studies using celiacs but that doesn't mean that AN-PEP doesn't work, because the studies show that it does...
  23. Fenrir
    A positive TTG IgG or IgA means likley celiac disease. Most celiacs are positive on TTG IgA but some that are deficient in total IgA are only positive for TTG IgG. Generally the best route to DX celiac is: https://www.mayocliniclabs.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Just make sure your doctors follow...
  24. Fenrir
    With a positive TTG IgA it's about a 98% chance you have a celiac disease but there is a 2% chance you could have a false positive caused by another autoimmune disease. That's why they do the biopsies, you don't want to have an incorrect DX of celiac disease when you may have another autoimmune disease that may require a different treatment.
  25. Fenrir
    I certainly had many more sinus/ear infections before I went gluten-free. I have a brother that is not a celiac but does have Sarcoidosis and your case sounds similar to his. He is only 34. Only way to find out for sure is to have the testing done. Celiacs are at a much higher risk to get another autoimmune disease.
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