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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    Items processed in the same facility as wheat shouldn't really be a problem but if it says processed on the same equipment as wheat that could be a problem.
  2. Fenrir
    School age kids with celiac disease can be difficult to manage. They might eat things they're not supposed to at school, maybe a friend shares a treat or something like that. If she is school age I would just ask if she is eating anything she's not supposed to or if friends gave her things. Chances are if she was rash free and it came back she probably...
  3. Fenrir
    Most celiacs wouldn't consider Chipotle Grill, In and Out Burger, and P F Chiang's as truly gluten free. Chipotle often have employees that don't change gloves between touching tortillas and are dipping hands into containers of ingredients. In and Out Burger, I'm not sure on but if they don't have friers dedicated to french fries (don't also fry breaded...
  4. Fenrir
    There will never be wide spread truly gluten-free restaurants. There are literally zero gluten-free restaurants with in an hour of where I live. Unless you live in an urban area there are probably zero or few gluten-free restaurants available. So unless you want to never go out to eat and never be able to share a dine out experience with friends or...
  5. Fenrir
    Just because mustard makes you sick doesn't mean it's because of celiac disease. People who have other conditions may react to vinegar, like if you have a stomach ulcer for instance. Not everything you eat that makes your stomach upset is because of celiac disease. It's important not to rely on anecdotal evidence and old wive's tales to determine...
  6. Fenrir
    I'm familiar with spherocytosis. I worked in a hematology lab for many years and have helped Drs. diagnose the condition by microscopically examining the blood for spherocytes. The main issue with spherocytosis is that it makes your red blood cells fragile and they tend to pop easier causing hemolytic anemia. hemolysis is basically just the red cells...
  7. Fenrir
    Not sure what else you want to know. Dedicated stations are about as good as you'll get in most areas, there are very few gluten-free Certified restaurants around. A separate station should minimize cross contamination as much as you can without being totally gluten free in the whole restaurant. The three shops I mentioned all have a separate station that...
  8. Fenrir
    There's a take and bake place in my town that has a separate station away from the rest of the food prep area for making their gluten-free pizza. I've eaten their pizza many times without reacting. I wouldn't eat at a dominos or pizza hut because they don't have a dedicated station for their gluten-free pizzas. Likewise I've eaten at Jersey Mikes's...
  9. Fenrir
    Yes, you can have celiac that's not active for many years. My celiac disease symptoms coincided with my mother getting ill and her prolonged decline in health and eventually passing away. I was actually diagnosed shortly before she died. I also had surgery around that time, which from what I understand another trigger. Apparently, many celiacs start...
  10. Fenrir
    Yes, if you drank a lot of soda for a long time and you're already having problems with magnesium levels to start with it could be a problem. Also, most people what drink a lot of soda eat poorly. My point is having a cola a day isn't likely going to be a significant problem for most people. It's a multi faceted problem that includes, celiac disease...
  11. Fenrir
    The only thing would be if it's tea mixed with other things. Teas and spiced teas are generally OK. I drink tea pretty frequently, plus komucha and haven't had reactions to anything yet.
  12. Fenrir
    What I suggest to people just diagnosed: Eat meat, fruit and veggies. No sauces (outside of ketchup or butter or unless specificly labelled gluten free). Spice as you like. If you like need a carb, add in plain rice, that you can spice however you like but don't buy seasoned rice products. Eat as few packaged foods as possible and only ones labeled...
  13. Fenrir
    It seems very daunting at the beginning, like it's going to totally change your life. I'm about 6 years out now from being diagnosed and really, I don't spend a lot of time thinking about celiac disease anymore except when I'm on here. You just get used to everything, it's the norm. In fact at some point you'll probably start thinking going gluten-free is...
  14. Fenrir
    Not saying diet soda is good for you but I really doubt that there's any science showing that one can of soda would have the affect on magnesium levels. If it did people would be hospitalized regularly for over drinking soda. I may be one of many factors that affect magnesium levels but one soda on it's own isn't harmful to anyone. Perhaps if you're...
  15. Fenrir
    From what you describe with the family history and the postitive blood test+symptoms I would be very surprised if it doesn't show celiac on biopsy. However, given all that as well if it were to be negative I would just go gluten-free anyway. You clearly, at the least, are sensitive to gluten and even if you have another autoimmune disease, a gluten...
  16. Fenrir
    Well the problem is that you cannot be sure it's celiac without a biopsy. There are a small number of people with other health issues that will come up falsely positive on the celiac blood tests. So it you want to be sure what the problem is, biopsy is required. However, some folks due just go gluten free and that's that. I don't recommend that just...
  17. Fenrir
    As Scot says we can't diagnose you but 98% of people that are positive (weak or strong doesn't matter)for TTG IgA are celiacs. The quote you posted from the pathology report (I used work with pathologists as a lab tech) would indicate you have Celiac Disease (that's what they mean by sprue). IMO, and I'm no doctor, is that you have a very solid...
  18. Fenrir
    Some of my liver enzymes are always slightly elevated. Have been since I started having celiac symptoms. They haven't gone up, my GI thinks it's just genetic for me. They call it Gilbert's syndrome. They did and ultrasound and found nothing abnormal so not worried. People with active celiac reactions may have elevated liver enzymes as well.
  19. Fenrir
    @cyclinglady You are actually correct about processed foods. There are studies that show it does cause GI problems and aggravate ones you already have. https://www.ncbi.nlm.nih.gov/pubmed/29904158 This is a reason why I recommend newly DX'd celiacs start with a meat,veggie and fruit diet. If you go heavy on whole foods that aren't processed...
  20. Fenrir
    Until you start feeling better. I did it for the first couple of weeks after DX. I also will do either a 24hr fast or 16hr fast (like i said above) if i have a reaction to something to help recover faster. It seems to help me get over an exposure faster. The thing is that when your GI tract is all irritated even gluten-free food can irritate your GI...
  21. Fenrir
    Yes, it's very common for people to have gluten withdrawals. It can be not too much different than what happens if you drink a pot of coffee a day and then go cold turkey. Some people get very severe withdrawal though. I do recommend staying away from things that may irritate your gut (even if they're gluten-free) until you're healed up. I generally...
  22. Fenrir
    Well, might be that because your GI tract was irritated by the celiac disease taking NSAIDs might cause gastritis even in small amounts. I don't think it's something to worry about(see your Dr. for sure) as long as you don't have continued symptoms after you go gluten free for several months.
  23. Fenrir
    Have you been using OTC pain relievers a lot? Due you drink alcohol? Those are the two main things that cause gastropathy. I could see it happening to celiacs because you may be taking ibuprofen for the pain. Could also be Naproxen(Aleve), Aspirin, Celebrex...ect Also, good to hear you got a solid DX. Now you know what you have to do to get better...
  24. Fenrir
    Males with anemia is unusual if something isn't wrong. I was anemic when diagnosed with celiac (and I'm male, just in case that wasn't clear). While it may be unlikely you have celiacm, you do have a positive aby test and some symptoms that are common to celiac disease. I would ask your Dr. about the possibility of doing an EGD to check for celiac and...
  25. Fenrir
    A lot of folks with celiac disease have anxiety that's aggravated by reacting to gluten. It also is aggravated by going off of gluten because there are withdrawals for many people. Keep in mind some of the symptoms a celiac might have can also be cause by anxiety. GI issues, high blood pressure, irritability...ect. are all things you could be experiencing...
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