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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    Yeah, hospitals will probably vary from one to the next as far as how celiac friendly they are. I happen to work at ours so I have access to things regular folks wouldn't. The kitchen ladies let me inspect all the packages and ask me about what they can put in things or not. It's a small hospital so I'm able to influence things a little bit.
  2. Fenrir
    Well, actually, not all gravy contains gluten. All of the gravy we serve at our hospital is gluten free. The Chili is gluten free. Not saying the nursing home was serving gluten-free gravy but commercially prepared gravy is available gluten-free and served by many hospitals. The key is letting the Dr and nursing staff know of the need for gluten-free...
  3. Fenrir
    I hear ya on that, I'm Italian and love my bread and pasta. The good news is that there are good gluten-free pastas. Barilla makes really good gluten-free pasta, just make sure it's the one labeled gluten-free.
  4. Fenrir
    The problem with the withdrawal symptoms is there isn't a lot you can do about them except give it more time. If they're very sevre then you should see a Dr. to be sure you don't have something else going on.
  5. Fenrir
    I work in a hospital and eat at their cafeteria frequently. They are aware of proper procedures for food allergies. Hosptials have several RD'S so as long as you make sure they know you have celiac it should be OK.
  6. Fenrir
    If you're going to get a gluten digest get one with Aspergillus Niger 300mg or more. Nothing else is actually scientifically supported. GliadinX is probably the best thing on the market right now but it's only really recommended to ease cross contamination.
  7. Fenrir
    Yeah, with the one test being slightly elevated celiac isn't ruled out yet. It would probably be worth while to have an EGD done if it's something you can afford to do.
  8. Fenrir
    Why are we necro posting something this old.
  9. Fenrir
    Stomach ache for a week is pretty hard to pinpoint anything. Most celiacs are having issues for months and years before they get diagnosed. Based on your labs it's pretty unlikely, but not impossible that you have celiac disease. A week's worth of tummy trouble could be simply eating something that doesn't agree with you, constipation, lack of exercise...
  10. Fenrir
    Best thing to do until you learn what is and isn't gluten-free is to go to a meat, fruit, and veggie diet and add in foods listed as certified gluten-free. If you are eating mostly meat, fruit, veggies and only things labeled gluten-free you should be fine. Just plain meat and veggies seasoned but no sauces or breading. That's the easy gluten-free diet that...
  11. Fenrir
    It could be celiac, it wouldn't explain the weight gain but many people with celiac disease also have thyroid issues which would cause weight gain. The problem with EGDs is the Dr. has to know what they're looking for to DX celiac disease because they need to take biopsies from a specific portion of the small intestine. I had two of them done because...
  12. Fenrir
    Don't worry, 20 months isn't typical. Most people get some relief within a month or so. For me, I was significantly better a month later but took 6 months to be mostly symptom free.
  13. Fenrir
    A lot of people actually have worse symptoms for the first two weeks to a month after going gluten-free. Part of it, the GI stuff, is a combination of healing and also change in diet goofs up your GI tract. You may have anxiety too, that can cause all of those symptoms. You can get dizzy from a low blood sugar as well if you're not eating.
  14. Fenrir
    Celiac is systemic so it can affect any part of the body. However, if you are on a gluten-free diet and not having other issues related to Celiac it could be something else. That sounds like it could be circulation or nerve issue. Celiac can cause nerve issues but typically that's in people with uncontrolled celiac disease or those that are just recently...
  15. Fenrir
    I don't think Gluten Cutter did much to save you. None of the ingredients in that product have been proven to do anything. ANP-PEP is the only thing that actually works and right now the only product with that in it that has the correct dose is GliadinX. People react differently to exposures, some have severe reaction right away and others don't feel...
  16. Fenrir
    Got ya! I read a little more into your post than you meant. Most people lump these supplements all into the same group but AN-PEP is different than the others. Although, AN-PEP supplements can also be suspect because most of the manufactures under dose their products. From my research and reading of studies it seems that 300mg Aspergillus Niger is required...
  17. Fenrir
    This is actually in correct. AN-PEP has been pretty well proven in studies to do exactly what it advertises: breaks down gluten before it reaches the small intestine. It's not a cure, but in a world where it's near impossible to avoid gluten 100% of the time (due to cross contamination) it is beneficial to use it as a prophylactic in situations where you...
  18. Fenrir
    Stool appearance is almost impossible to tell anything from except in very unusual cases. However, white specs could possibly be fat. Celiacs who are actively eating gluten tend to have issues processing fat and it ends up in your stool. On the other hand, people with out gallbladders and who have pancreatic or liver issues can also have fat in their stool...
  19. Fenrir
    I have definitely found that fasting helps immediately after a glutening. I will fast for as much as 24hrs after getting glutened, is just gives the GI tract time to heal and not be stressed as much. I often use intermittent fasting as a tool because since becoming celiac my GI tract is a little more finicky than it used to be. Basically what I do is...
  20. Fenrir
    Unfortunately, many doctors are not very well versed in how to properly diagnose or rule out Celiac Disease, even some GI doctors aren't. You really have to be your own advocate and insist on the correct tests and interpretation of them. It's good you're doing the right thing and keep at your doctors until they do the right thing. Many people don't do this...
  21. Fenrir
    Yes, Burning Brothers make great gluten-free beer. The owner is a Celiac, they are so strict they don't even allow employees to bring lunches with gluten into the building. They have a taproom too and they serve other gluten-free goodies and they have a weekly gluten-free food truck. If you are anywhere near the Twin Cities it's worth a stop....
  22. Fenrir
    Anything with gluten in it is very bad for celiacs. The amount doesn't really matter. Most celiacs will get ill from drinking beer made from barley, simple as that. If you know someone with celiac or gluten sensitivity they should stop drinking it whether you're noticing a reaction or not. When I was still eating gluten it didn't make me feel sick when I...
  23. Fenrir
    Sounds like a lot of the symptoms I had. The thing about celiac disease is it is systemic, meaning it can affect every part of your body including joints and nerves.
  24. Fenrir
    I didn't have any of the most common symptoms of Celiac Disease. I mostly had joint swelling stomach pain (no diarrhea, gas...ect). Almost all my symptoms were none GI things.
  25. Fenrir
    The test is for gliadin (gluten) antibodies. Howver, hordeins and secalins are very similar proteins, so much so the three (hordeins, secalins & gliadins) are referred to as "glutens". They are so chemically similar that all three are detectable using the same tests. Wheat has a higher gluten content than rye and barley, rye having the least. ...
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