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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Fenrir
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It's possible but unlikely. Just because you react strongly to barley doesn't mean you're not reacting to wheat and rye. You may still be having a reaction even if you aren't showing symptoms. Basically, those tests are for antibodies the body generally only creates as a response to gluten (for the most part) and there is gluten in wheat, barley and...
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I'm a dude so, no direct experience here but t The way I understand milk S1-caesein protein and whey proteins can end up in your milk if you ingest it. If your baby has an allergy or intolerance to those proteins you have to stop ingesting milk. It may or may not have anything to due with celiac, a lot of babies have milk allergies or intolerance outside...
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Lab Testing Significance Question
Fenrir replied to amanda12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, until the biopsy is done there is no 100% answer but your TTG IgG is positive, 93% of people with a positive TTG IgG have celiac disease. Your endomysial Ab was positive and that is very specific for Celiac (99-100%). I'd be very surprised if your biopsy doesn't comeback with celiac as well. -
Cooking with ovens and cross contamination?
Fenrir replied to rt-116's topic in Coping with Celiac Disease
The other thing to take into account is that it's not just you learning, it's the people that live with you. You will make mistakes in the beginning and that's with you being celiac. Other people don't even think about cross contamination in their daily lives so it's easy for them to forget in the beginning too. My wife glutened me a few times early... -
Lab Testing Significance Question
Fenrir replied to amanda12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
More than likely you have Celiac Disease. You can't know for sure that it's celiac vs another disease without the biopsy but with your labs it's probably 90%+ Celiac Disease. Drs will typically not want to comment on the diagnosis until they have followed the appropriate clinical course. -
Got test, but was gluten free
Fenrir replied to TheTeaCups's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Being gluten free for a month could certainly cause a false negative. After I went gluten-free my weak positive TTG IgG went negative after a month. -
Generally just stick to unflavored versions of spirits and you're fine. Also, mead (honey wine) is gluten free and pretty excellent but sweet. Not too acidic though.
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@cyclinglady is correct. The term "anemia" is just a general medical term meaning there something wrong with your red blood cells. It could be from a nutrient deficiency, could be genetic, could be from bleeding, cancer, or exposure to toxins. So if you don't know why you're anemic be sure the Dr. figures it out. Some celiacs are anemic from poor absorption...
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As far as nutrition goes, instead of pasta , rice will probably be your go to carb. You will want to be weary of any packaged items you come across at runs. I know they generally give out bags with goodies in them that sometimes are edible, so avoid those pre race unless you're sure they're gluten-free or it could make for an interesting run.
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Yup, if you have celiac and were exposed and that's the cause of your issue there's very little a GI doc can do for you. There are no shots or pills that will stop the reaction, just time, unfortunately. As for Celiac Spcialists, my GI group has providers that are specialized in Celiac. I started out seeing a general GI Dr. at the GI clinic and...
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Well, there's no way to know if glyphosate is in any particular food and it has been found in certified organic foods too. Have you be diagnosed with celiac or NCGS? I would agree glyphosate is unlikely to be the cause, but weather or not it is gluten depends on what course you've taken for a DX.
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Yes, my IgA was positive too. I was meaning from a medical point of view, a EGD should be done. However, I think if the person can't afford that of course you're probably going to want to go gluten-free. Even if it were to turn out not to be celiac disease many diseases are improved by a gluten-free.
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It was hard for me at first because I didn't know what I could and couldn't. I was basically on a plain meat, veggie, fruit, rice sort of diet for a while. Eventually I was able to start learning to make some foods gluten free and found out some foods I used to eat were already gluten-free. Over time, I've learned to make more food gluten-free and...
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DGP= Deamidated Gliadin Peptide. Basics on celiac testing: TTG IgG is typically the first test done because it is 93% sensative, meainng 93% of celiacs will be postitve (weak or strong positive). It is also 98% specific, meaning if positive 98% it's Celiac Disease causing it. EMA IgA is another test sometimes used becuase it's very specific...
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Worried about negative blood test
Fenrir replied to Luna15's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you know which tests they did and what the numbers were? Often times GPs call weak positives "negative" which is incorrect. Yes, what you describe could cause a negative as well. Consider my TTG being only 8 (range is 0-3, many celiacs have TTGs way higher than that)when I had a Marsh Grade 3b which is significant damage on the biopsy. Had I stopped... -
I would recommend using something to put a coating around the area to act as a barrier. Cortizone10 works, Gold Bond cream, hemorrhoid cream...ect. Put some on after you shower in the morning and when you go it will help prevent irritation, you may have to reapply afterward as well. Leaking takes time.
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GliadinX/Tolerase G
Fenrir replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, I have a background in medical labs so I understand chemistry and how to interpret research articles. The studies published on AN-PEP show stronger evidence than some prescription drugs (not celiac disease related) have. For instance, Statins (for cholesterol) are roughly as effective in reducing cholesterol as AN-PEP is in reducing gluten. Also, statins...