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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    It's possible but unlikely. Just because you react strongly to barley doesn't mean you're not reacting to wheat and rye. You may still be having a reaction even if you aren't showing symptoms. Basically, those tests are for antibodies the body generally only creates as a response to gluten (for the most part) and there is gluten in wheat, barley and...
  2. Fenrir
    I'm a dude so, no direct experience here but t The way I understand milk S1-caesein protein and whey proteins can end up in your milk if you ingest it. If your baby has an allergy or intolerance to those proteins you have to stop ingesting milk. It may or may not have anything to due with celiac, a lot of babies have milk allergies or intolerance outside...
  3. Fenrir
    Yeah, until the biopsy is done there is no 100% answer but your TTG IgG is positive, 93% of people with a positive TTG IgG have celiac disease. Your endomysial Ab was positive and that is very specific for Celiac (99-100%). I'd be very surprised if your biopsy doesn't comeback with celiac as well.
  4. Fenrir
    The other thing to take into account is that it's not just you learning, it's the people that live with you. You will make mistakes in the beginning and that's with you being celiac. Other people don't even think about cross contamination in their daily lives so it's easy for them to forget in the beginning too. My wife glutened me a few times early...
  5. Fenrir
    More than likely you have Celiac Disease. You can't know for sure that it's celiac vs another disease without the biopsy but with your labs it's probably 90%+ Celiac Disease. Drs will typically not want to comment on the diagnosis until they have followed the appropriate clinical course.
  6. Fenrir
    Nice! You're lucky. Many people's Dr. give up after the first one and refused to go any further. At least you have your answer. It takes time to heal. It took about a month for most of my symptoms to go down quite a bit and about 6 months for a full recovery.
  7. Fenrir
    So they retested you and it came back positive?
  8. Fenrir
    Being gluten free for a month could certainly cause a false negative. After I went gluten-free my weak positive TTG IgG went negative after a month.
  9. Fenrir
    Generally just stick to unflavored versions of spirits and you're fine. Also, mead (honey wine) is gluten free and pretty excellent but sweet. Not too acidic though.
  10. Fenrir
    @cyclinglady is correct. The term "anemia" is just a general medical term meaning there something wrong with your red blood cells. It could be from a nutrient deficiency, could be genetic, could be from bleeding, cancer, or exposure to toxins. So if you don't know why you're anemic be sure the Dr. figures it out. Some celiacs are anemic from poor absorption...
  11. Fenrir
    As far as nutrition goes, instead of pasta , rice will probably be your go to carb. You will want to be weary of any packaged items you come across at runs. I know they generally give out bags with goodies in them that sometimes are edible, so avoid those pre race unless you're sure they're gluten-free or it could make for an interesting run.
  12. Fenrir
    Yup, if you have celiac and were exposed and that's the cause of your issue there's very little a GI doc can do for you. There are no shots or pills that will stop the reaction, just time, unfortunately. As for Celiac Spcialists, my GI group has providers that are specialized in Celiac. I started out seeing a general GI Dr. at the GI clinic and...
  13. Fenrir
    Well, there's no way to know if glyphosate is in any particular food and it has been found in certified organic foods too. Have you be diagnosed with celiac or NCGS? I would agree glyphosate is unlikely to be the cause, but weather or not it is gluten depends on what course you've taken for a DX.
  14. Fenrir
    Yes, my IgA was positive too. I was meaning from a medical point of view, a EGD should be done. However, I think if the person can't afford that of course you're probably going to want to go gluten-free. Even if it were to turn out not to be celiac disease many diseases are improved by a gluten-free.
  15. Fenrir
    It was hard for me at first because I didn't know what I could and couldn't. I was basically on a plain meat, veggie, fruit, rice sort of diet for a while. Eventually I was able to start learning to make some foods gluten free and found out some foods I used to eat were already gluten-free. Over time, I've learned to make more food gluten-free and...
  16. Fenrir
    I use pretty much every type of OTC med that says gluten free on it and havn't reacted so I would think they are generally safe.
  17. Fenrir
    Yes, my IgG tests were postive but TTG IgG was weak. Sure, it should always be confirmed by endoscopy. I don't see an instance where you shouldn't confirm with EGD.
  18. Fenrir
    If it's labeled gluten-free in the US & Canada it should be less than 20ppm. I don't think anyone labels OTC drugs certified gluten-free.
  19. Fenrir
    DGP= Deamidated Gliadin Peptide. Basics on celiac testing: TTG IgG is typically the first test done because it is 93% sensative, meainng 93% of celiacs will be postitve (weak or strong positive). It is also 98% specific, meaning if positive 98% it's Celiac Disease causing it. EMA IgA is another test sometimes used becuase it's very specific...
  20. Fenrir
    After a month I felt significantly better but it was probably 6-8 months before I was symptom free.
  21. Fenrir
    I would wait and see what you're deficient in. Many Celiacs are deficient in Vitamin D and B12 but each person is different.
  22. Fenrir
    I had a weak positive TTG and my DGP was very high, definitely Celiac.
  23. Fenrir
    Do you know which tests they did and what the numbers were? Often times GPs call weak positives "negative" which is incorrect. Yes, what you describe could cause a negative as well. Consider my TTG being only 8 (range is 0-3, many celiacs have TTGs way higher than that)when I had a Marsh Grade 3b which is significant damage on the biopsy. Had I stopped...
  24. Fenrir
    I would recommend using something to put a coating around the area to act as a barrier. Cortizone10 works, Gold Bond cream, hemorrhoid cream...ect. Put some on after you shower in the morning and when you go it will help prevent irritation, you may have to reapply afterward as well. Leaking takes time.
  25. Fenrir
    Yes, I have a background in medical labs so I understand chemistry and how to interpret research articles. The studies published on AN-PEP show stronger evidence than some prescription drugs (not celiac disease related) have. For instance, Statins (for cholesterol) are roughly as effective in reducing cholesterol as AN-PEP is in reducing gluten. Also, statins...
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