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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Fenrir
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GliadinX/Tolerase G
Fenrir replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications
@docaz @Scott Adams Just placed placed an order for GliadinX. We will be traveling in the next few months and I always end up having to eat out at places that I can't 100% trust not to cross contaminate and I've been glutened before. This will be a good thing to try and see if helps avoid reactions that inevitably happen in spite of our best efforts... -
GliadinX/Tolerase G
Fenrir replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications
Well luckily, the insurance require to be a personal trainer isn't very expensive. -
Yes, more than likely once the diarrhea clears up that will get better. Might still be a problem sometimes though.
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Cooking with ovens and cross contamination?
Fenrir replied to rt-116's topic in Coping with Celiac Disease
I think I would avoid cooking/baking gluten food and gluten-free foods at the same time, it's too easy to contaminate when handling both. I'm not sure I would bake bread above gluten-free food either just in case somehow crumbs fall down. -
@rt_116 Yes, all of those symptoms could be related to Celiac Disease. celiac disease is systemic (means it affects every bodily system) due to the fact that it causes inflammation and causes poor absorption of nutrients. Nutrient deficiencies can cause neurological symptoms like tingling, itching..ect. That doesn't mean all of them are caused by celiac...
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Just wait and see. Only thing is I would be weary of is if they ordered the right tests and if your TTG is "weak positive" they'll not realize that there is no such thing as a weak positive TTG. It's either positive or not. If it's positive you pretty likely have Celiac and should be confirmed with an EGD (sounds like you had that too). If you already...
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GliadinX/Tolerase G
Fenrir replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks! That pretty well answers my question. I did some looking around and found several studies that showed it was effective but just didn't stumble across one that mentioned the dose used. I could have missed it though. Also, it's great your product is dosed correctly. I'm seeing that many products for this purpose on the market that are essentially... -
You will get sick doing that.
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Yes, my TTG was only 8 (negative is 0-3), this is "weak positive" according to many GPs. Problem is, positive is positive. Even if it's 4, it's positive. At the very least other blood work should be ordered (deamidated tests) and probably have an EGD done. With my "weak positive" I was found to have a Marsh grade 3b which is pretty significant...
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Tomato soup
Fenrir replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
Walmart does carry gluten-free condensed soups and they seem pretty good: https://grocery.walmart.com/ip/Great-Value-Gluten-Free-Tomato-Condensed-Soup-10-5-oz/583125423 -
GliadinX/Tolerase G
Fenrir replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, I was just wondering what the doses were that were given to the test subjects because it doesn't say in any of the studies. Having studied nutritional/fitness supplements extensively many of them either don't contain the amount listed on the bottle or the dose in the supplement uses is significantly less than the studies showed were an effective dose... -
I started this one: It's more about the dosage but open for any discussion on enzymes.
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Tomato soup
Fenrir replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
I use the Progresso gluten-free soups and they are pretty good. I'm not a fan of tomato soup so not sure if that particular one is good. Just make sure you look on the back of the can, it's labeled in small white print "Gluten Free". I think they also make gluten versions too. -
Should be noted that 1/8th a slice of bread normally would result in a pretty bad reaction for many Celiacs. Last time I was exposed to that much gluten it made me puke and I was in pain for days and bad reflux for about a month. So, IMO, that's pretty a pretty significant exposure. So if it works on that it should be fairly effective for cross contamination...
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GliadinX/Tolerase G
Fenrir replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, I'm aware of all of that. The purpose of this isn't to give clients suggestions on supplements. I'm just stating that while studying for my PT certification I came to find out supplements are under dosed so I was curious about the actual dose used in the studies for the enzyme products. I'm well aware of the insurance/liability and am also pursuing... -
Attacks may be linked to wheat?
Fenrir replied to Ang72's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
These are not the most typical symptoms for Celiacs but because Celiac Disease is systemic it can affect just about anything in your body in a round about way. To me what you describe could be many different things, so you should see a doctor. However, it could simply be from anxiety and lack of physical activity as well. -
I was just curious if anyone has found an article or study that tells what the effective dose is for this product? I'm soon to be a personal trainer and have been researching supplements for fitness uses. I know from this research that there are some supplements that do help build muscle and they are proven by science (creatine, Beta-Alanine..ect). However...
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I eat out about twice a month and I typically only go to places I know are safe. I don't feel the need to take enzymes or use a Nima at these places as I've been there several times with no issues. I would probably take enzymes if I went to a new place though.
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I didn't mean the device itself is faulty just that even if used properly it can give you false negatives. The comparison is that both are effective but you can still have a reaction using them. Most of the problem with using the Nima is that if the piece of food you put in there doesn't have gluten in it, it will be negative but another piece for a...
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Also, the same logic people use against using enzymes could be applied to the Nima device. The Nima device has many issues and you are still possibly being exposed to gluten. Like enyzmes, the Nima device doesn't replace properly implementing gluten safe measures but people will use both outside of their applicable purposes and get exposed as a result. ...
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Personallyu Well, actually there are plenty of studies showing the ingredients in GliadinX in fact does break down gluten by 50-85% before it reaches the small intestine. I believe the reason Scott recommends using it when you are having issues after going gluten free is the help ease the symptoms until you can find the source of gluten you may be...
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High ttg iga negative biopsy??
Fenrir replied to AS2914's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you know how many biopsies they did? They should be doing 4-8 to be accurate. -
FWIW, I think sometimes these renown medical groups aren't really any better than others in some areas. I'm from MN where Mayo HQ is, just as an FYI. I think generally Mayo is probably one of the best Cancer and Cardiology hospitals. When it comes to GI they are still good but I went there for my problems and they didn't figure it out. I went to Minnesota...