Jmg
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Posts posted by Jmg
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5 hours ago, kstadelman said:
I have zero proof of anything at this point but I went to the doctors concerning the same kind of problems. I had an upper GI done with no conclusive results. Due to the fact that everything came back normal they recommended that I should look into allergy testing. I haven't done anything with allergy testing yet. I also seem to go in cycles with the swallowing being more difficult with my menstruation cycle, I haven't been able to pinpoint the exact time frame in worsens yet but it is typically at the mid month/cycle time frame.
Every time I begin to eat I struggle to swallow, this includes all liquids as well. Now the difficulty is constant, where before it would seem to last a couple months at a time, then go away. I know its getting worse and that worries me. I also have a geographical tongue that is consistently worsening. I don't enjoy food anymore and I'm not really interested in eating. Food doesn't sound good anymore, I associate discomfort and pain with it.
I guess I just wanted you to know that you're not alone with these struggles.
Welcome
Consider starting a new thread as more people will see your post and may be able to offer some help.
Best,
Matt
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Welcome Demetria77 and
9 hours ago, Demetria77 said:I hate to complain so much, but I really just want someone to tell me that they know what I'm going through, because no one in my life can relate to me right now, or even have any sympathy. Please, tell me I'm not alone.
no you're not alone! There are people here who have gone through similar experiences and came through the other side stronger, healthier and happier. Things may seem bleak now but that doesn't mean they won't soon improve, that's what life is like sometimes.
I was a little unclear about what happened to you here:
2 hours ago, Ennis_TX said:. After a month of starvation, my swallowing returned to (somewhat) normal, and as you can imagine, I stuffed every food imaginable down my throat: pizza, bread, ramen, my favorite foods basically. And now I'm back to step one, and I've never felt more miserable.
Was this month of starvation you following a gluten free diet? If so and you then returned to eating a lot of gluten foods that could explain why you got much worse. It could also explain why you feel so miserable as gluten may be impacting your mental state as well.
I know you've had bad experiences with doctors but I think you should consider trying again to get a diagnosis as it could prove very helpful for you. Maybe asking or searching your area for a doctor that specialises in celiac? If you find a doctor that's willing to test you and help you through the gluten challenge period that may make it easier to endure.
However I'll just add, if now is not a good time to pursue a diagnosis via a gluten challenge, you can still take some steps to get an answer. Try to start a food journal, note what you eat, the time and how you're feeling. Note any symptoms such as brain fog, throat sore, digestive stuff etc. You can use a note app on your phone or a little notepad whichever you prefer. This will help you track any reactions to foods and it also helps make you think a bit about what you're eating.
Second, you need to look after your mind as well as your body. Dealing with these kind of conditions is very stressful. Is there a counselling service at the college that you could book an appointment with? It could prove really helpful to speak to someone outside your immediate circle, whether its to vent or just chat! It really helped me when I did this aside from any of the tests etc. You will also find lots of good advice and good people here, so do stay in touch here also
Best of luck
Matt
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A lot of this depends on your own reactions. As a very general rule, spices should be fine, 'seasoning' take care! A spice is a single element, it's just turmeric, or oregano etc. A seasoning mix is a blend of different things and that's when gluten may sneak in.
Marshmallows are mainly glucose syrup and should be fine. Obviously if they're covered in other things or sat on a biscuit base then maybe not. If in doubt google the product and check the website.
I think in the US the FDA rules make it mandatory for companies to disclose gluten ingredients. So the maple syrup should be fine whether or not there's a gluten free sign on it.
When I first went gluten free I was suspicious of anything not marked gluten-free. Now I'm more relaxed and will eat things that do not have a gluten ingredient listed as long as I know the manufacturer and there's no 'may contain warnings'. You need to find a happy medium between staying compliant and being able to exist in the world. Depending on your confidence, level of sensitivity etc this will vary depending on the individual.
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3 hours ago, pdm1981 said:
I agree 100% but in that disclaimer they said in a restaurant setting. They sell canned chili in the local stores so I would think that I should be okay. I've tried to make my own chili but the problem is that I suck. I'm a horrible cook. Gordon Ramsey would probably slap me in the face. Cincinnati style chili is different from most chili out there too. There is chocolate, cinnamon, and some other ingredients that you won't find in other chili recipes out there. It's different and if you screw it up, not good. Give it a try. Like I said, if you make it right, the best you've ever had.
Ah I've googled it, as you guessed I was thinking of chilli con carne, this is something different! Sorry I can't be of help.
ps, no offence, am sure it's lovely but I did find this hilarious: https://deadspin.com/the-great-american-menu-foods-of-the-states-ranked-an-1349137024
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1 hour ago, pdm1981 said:
I live in Cincinnati. One thing we are known for is chili and a horrible football team. I was wondering if anyone had one of those gluten detectors and how they work because I would love to test them. They claim to be gluten-free and even state that in their restaurants there is a high probability for CC. I even wrote the company several times but no reply. I just had some earlier and am up with a reaction to something. I'm leaning towards the chili. Is there any good canned chili out there that will not make me sick?
I'm from the UK so I can't help you on the recommendation, but instead of canned chili have you tried making your own? It's super easy to do, far nicer and cheaper than any pre-made variety and you can make a big batch and freeze small portions so its always available if you need a quick filling meal?
There's no reason a chili should include gluten btw, but if they're telling you that there's a high probability of cc its best not to eat there in any case!
Edit: checked their site:
https://www.skylinechili.com/special-dietary-options.php#glutenfree
They're basically telling you there could be cc
QuoteGeneral Allergen Info
While we don’t have a gluten/peanut free prep area for specific items, our procedures have been written to avoid cross contamination. However, this is not a guarantee that products in the restaurant are not exposed to a form of a peanut, nut or gluten product. For example, some Skyline restaurants may offer nuts for their ice cream, which is not typical, but would present potential cross-contamination exposure. Unfortunately, we are not able to say with complete certainty (nor do we believe any restaurant can) that products in a restaurant setting would not be exposed to cross-contamination with peanut, nut or gluten products.
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Hi Serafina,
I found your post fascinating. I've often thought of pursuing a meeting with Professor Hadjivassilou, you may be interested in the article by him I posted above in my first reply. It's one of the best overviews I've found of gluten's effect on the brain.
One thing which struck me was this:
18 hours ago, Serafina57 said:I now stick to a gluten-free, Dairy Free and (added)Sugar Free diet. Essentially a anti-inflammatory diet. I still have neuropathy, but it's managed with diet and Clonazapam. If I eat sugar, my neuropathy makes me numb/hurt from toes to mid shin. Not to mention my cognitive issues. Yikes.
Despite being gluten-free for a few years now Ive only recently completely excluded dairy and I'm noticing a massive difference, it's freaking me out to be honest as I'm realising how big an effect its had on me. I now feel like my body is more sensitive to non dairy gd sugary foods than it was, so I'm very interested in learning more about how you came about excluding added sugar. Does that diet allow you to eat naturally sweet things like fruits etc? I have a sweet tooth and am wondering if I could cope with losing what sweet treats are left in my life now the dairy has gone the same way as the gluten!
Matt
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2 hours ago, Lions31 said:
Thanks for the feed back it’s good to hear other people going through the same things. Will also order some of the b complex mentioned above.
Jmg how long did it take for your neuropathy take to clear up?
I'm sorry I can't put a time on it - that whole period was overwhelming, I did keep a diary during my challenge but didn't continue it post going back to gluten-free. I also was still discovering back then that some of these things were gluten related. So it was only months later when I realised I'd not had eyesight issues for awhile, or that the twitch under my eye had gone etc. Months rather than weeks in any case.
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11 hours ago, Lions31 said:
I am a first time poster....I am feeling very frustrated, I am 4 month gluten free post diagnosis via blood test and biopsy. Most of my digestive problems bloating, heartburn and occasional ‘C’ have completely resolved. However I am still having problems with tingling/numbness/pain in legs and feet. Also some occasional zapping in the head. I am taking high doses of b12 as my reading was 320 at diagnosis but is now over 1000 and also vitamin d and magnesium. Also I am df and mainly just eating unprocessed food. Although I have to eat out occasional for work and social reasons I think I have only been gluttened once in 4 months.
I have seen a neurologist who did a nerve conductor and few other tests and did not see anything wrong. Is there anything else anyone can recommend? I am 37 with two young children and was always very active so would love to think there is some light at the end of the road. Also I am meant to be running Nyc marathon next year so constant feet pain not ideal!
Hi and welcome
I've just written this to another new member:
For me, again not a diagnosed celiac, the neuro symptoms are first to arrive, last to leave if I slip on the diet, almost like an early warning system. I don't know the reasons why, but that's how it seems to operate. However they weren't the first symptoms I experienced growing up, I think they took time to develop then. So if the neuropathy is gluten mediated it may be that its the last to go, and it may be that it needs a stricter approach to the diet than you've managed so far on your own.
You may find this of interest on gluten mediated neuropathy: Prof. Marios Hadjivassiliou http://www.acnr.co.uk/pdfs/volume2issue6/v2i6reviewart2.pdf
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The paper notes that recovery from ataxia is excellent but can take up to a year, that's consistent with a lot of experience of neuro symptoms from users here. It also suggests that it may not be a traditional enteropathy derived imbalance that's causing this. Having said that balanced supplements and eating well cannot harm you. So maybe keep going on the diet, keep noting your responses and allow just a little longer for the neuro symptoms to go, chances are they were a long time in developing so they may take some time to leave as well the light may there but it's just a slightly longer road than you were hoping for in other words!
Best of luck to you!
Matt
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38 minutes ago, mystic said:
I wasn't having a single issue with that cereal having used it for years, only reason I switched to the cheerios is because it's label shows as gluten-free. I would be glad to go back to the flax if I can confirm it's gluten free?
For quite a long time I didn't have any cereals as I didn't seem to take to them too well. I noticed both cereals and gluten-free bread seemed to be difficult to digest. The saving grace for me was switching to omelettes. I fill them with any of onions, spinach, mushrooms, tomatoes, avocados, bacon etc. They're filling, nutritious and help set me up for the day. Now I do have gluten-free cornflakes quite often or some fruit with non dairy yogurt. Even a gluten-free crumpet on occasion, but generally I eat far less grains than I used to.
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34 minutes ago, mystic said:
Hey guys, since I started on a gluten free diet 2 months ago, I am not regular as I used to be prior to that, is this normal? If yes, anything can be done to correct this please?
I was very unsettled for weeks after going gluten-free, stomach was very noisy etc.
You may want to share some details of your current diet. Have you replaced the gluten foods with processed gluten-free foods? Are you eating oats? Dairy? Some struggle with these, at least at first.
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14 hours ago, Jane87 said:
Thanks to everybody that has taken the time to read and reply to me on this thread!
One "symtpom" I forgot to mention is one that I've only noticed in the last year. I was reminded as it happened tonight when I got home from work. I was hungry but considering I'd had a filling breakfast, a late lunch and a snack only about 60/90 minutes earlier, I was disproportionately starving to the point of feeling very shakey and feint. Not enough to go all Victorian period drama over it but I had a sweaty back and felt ravenous. I didn't stop feeling hungry until well after I'd eaten. Lucky for me the other half was already home from work and dinner was on the go. I've had a few of these episodes this year. They make me think of low blood sugar but I don't believe myself to be diabetic. Any thoughts on this guys? I'm not undereating and certainly not underweight!
Yes this is another check on my bingo card... I had multiple diabetes checks over the years as this often happened to me. I would 'crash' get very weak, absolutely ravenous and be shaking. I came the conclusion that gluten interfered with my bodies capacity to regulate blood sugar, but when tested later at doctors I would not show up as diabetic.
The good news is this is one more thing which resolved once gluten free. I think you and I have very similar symptoms. So guessing again you are very much on he right path and hopefully once you finish testing you can look forward to some great results health wise.
start finding and eating your favourite gluten foods, you may be saying goodbye to them so time to set in motion operation cheesecake/French bread/pizza etc - it's one time in life where you kind of have a medical sanctioned reason to indulge
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1 hour ago, Jane87 said:
I'm glad to hear Matt that you have no longer had any episodes since going gluten-free.
Not entirely. I get occasional periods of occluded vision, last about a couple of minutes in one eye, these I think are related to occasional cross contamination. Note I've not been diagnosed with optic neuritis and they may be retinal migraines - I'm not willing to put myself through any further testing...
1 hour ago, Jane87 said:Is it relevant that my mother is Icelandic and my father's grandparents are Swedish & Norwegian? I've read that there is a propensity for people with Scandinavian heritage to have Celiac. Is that correct or needn't I mention it to the Dr?
There is a higher incidence from there and also from the West coast of Ireland where I have ancestors. I doubt a physician will pay it much mind, but I'd have it way down the list of bullet points and amalgamate it with my immediate familial history which will be given greater weighting.
1 hour ago, Jane87 said:Is it relevant that with this last episode on my elbows I have felt sluggish, depressed, dehydrated and have had a mix of constipation and a little of the opposite.
Highly relevant.
1 hour ago, Jane87 said:Oh and is it worth mentioning I have carpal tunnel symptoms in my wrist/arm that flare when I use a computer at work
Again relevant and another building block in the case.
1 hour ago, Jane87 said:Could this all be signs of DH/Celiac or am I overreaching?
Possibly but I don't think so based on your posts. I think your doing the same thing I did a few years ago and finally putting together a big jigsaw puzzle and finding out there's a connection between things you thought separate, a cause behind things you thought were just part of aging/lifestyle etc.
1 hour ago, Jane87 said:I do not have unexplained weight loss nor extreme stomach problems so I am concerned about being dismissed at first sight.
The popular view of celiac is that the above is the typical way of presenting but the stats suggest otherwise. Most people don't present with mainly gastrointestinal symptoms, some don't have any. For me, neuro symptoms are more prevalent, though once I did go gluten-free I found that my GI situation improved immeasurably and I now realise I had issues there that I'd not fully identified.
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11 hours ago, Jane87 said:
As mentioned in my OP, my mum has immume conditions including Hashimotos Thyroiditis. I'm not diagnosed with anything but I had an episode of unexplained optic neuritis at age 21 that left me with almost no vision in my left eye. This doesn't affect me day to day and luckily my right eye compensates. However they were never able to work out what caused it as MRI's were clear for MS. I've since this week read about possible relation between Celiac, Sjogrens and optic neuritis.
Ok I'm filling in my celiac / gluten sensitive card here and I now have 2 numbers, this doesn't entitle me to call bingo (that's you and your doctors prerogative) but I'm beginning to check the prizes and thinking about that yacht I've had my eyes on.
I suffered from unexplained optic neuritis for over 20 years. I was checked for diabetes and, such is our crappy health service, that was it. I was left convinced one day I wouldn't get the vision back, but by that point I thought I was going to die early in any case... The good news is that it cleared up on going strictly gluten free. I didn't expect it to, had no idea it was related to diet but it was one of maybe a dozen unrelated symptoms which resolved.
So again, not a diagnosis, but you may be on the right path. If I were you now I would start keeping a journal noting down what you eat and when and any symptoms you may notice. Also, prepare for that doctors meeting. Make some very brief, concise, bullet point notes detailing the skin outbreaks, optic neuritis, family history. Basically approach it like your a lawyer building a strong case for an investigation.
Do all the testing, but if you test negative, DO GIVE THE GLUTEN FREE DIET A CHANCE ANYWAY! That bit was important, I tested negative but the optic neuritis, elbow itching and a whole lot more comes back if I slip up on the diet. Medical Testing and knowledge in this area is less than optimal. Be your own health advocate and do what's best for you.
Stay on gluten, get every test you can and best of luck!
matt
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On 11/29/2017 at 2:45 PM, Jane87 said:
Any thoughts and comments will be greatly appreciated. Does this look like DH?
Hey Jane where ya going today!
I don't have a celiac diagnosis but gluten isn't good for me. About a year after going gluten free I developed a very similar looking rash on both elbows. It was extremely itchy. I realised I was eating a cereal with barley malt which was no longer on the safe celiac list here in the UK. I stopped eating the cereal and the rash went away. I still don't know if it was DH but it fit the symptoms and was seemingly caused by gluten. So I think you may be on the right track.
Best of luck!
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16 hours ago, kareng said:
Why wouldn't it be gluten-free? whiskey is gluten-free. Wine is gluten-free.
I understand the science around distillation, but there appears to be at least a grey area on this question for some where gluten grains are used in spirits: https://www.verywell.com/will-whiskey-make-me-sick-if-im-gluten-free-562778 I didn't do well on whisky after going gluten-free and had already removed gluten based spirits prior to stopping drinking entirely. So each to their own on this question in my view.
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Hi
13 hours ago, meg-c said:Any thoughts, suggestions, recommendations, or similar experiences would be greatly appreciated.
These papers may be of interest:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1785098/
http://casereports.bmj.com/content/2016/bcr-2016-214874.abstract
QuoteLeukopenia/neutropenia
Abnormally low white-blood count has been reported in a few children with celiac disease.72 These findings appear to be rare, and deficiencies of both folate and copper have been implicated as possible etiology for the leukopenia.69,70,83 The data on treatment of these patients are extremely limited but we recommend initiating a GFD and supplementing these patients' diets with oral copper sulfate if there is evidence of copper deficiency.
They both suggest copper levels may be low. Perhaps something to check?
Also just on this point:
QuoteI had a blood test for Celiac disease preformed a long time ago. It checked both my tTG IgA and total IgA -- both were within range. I was eating gluten at the time (and I still am, no plans to stop unless I receive a proper diagnosis).
It may also be worth noting that both my parents have autoimmune diseases. My father had T1 diabetes and my mother had transient Graves' disease. I know that autoimmune diseases can be more likely to run in families.
I fully respect your position of wanting evidence before you act. However...
I tested negative for celiac, blood test then endoscopy. However I do have a major problem with gluten. It affects all sorts of systems across my body. I only discovered this through a change in diet, which then led me back into the testing procedure via a gluten challenge. I became ill again and was convinced I'd have a positive test, because I react just as a celiac person would, but no, for me the tests were negative. This is called Non Celiac Gluten Sentitivity or NCGS. If and when you've ruled out celiac then given your family history and symptoms you have nothing to lose by giving the gluten-free diet a try. I didn't know just how ill I'd become until I removed gluten from my diet. Please give serious thought to trialling the diet.
Best of luck!
Matt
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Thanks for the nice messages I was ok really, the discomfort didn't last too long and wasn't near a full glutening...
I went on to experience similar symptoms once I switched to soft drinks, we have one in the UK called J2O, I was getting a similar horrid bloating and stomach churning such that I didn't want to go back.
So on Friday and last night I switched to a straw in the bottle and... No problems! So, a question answered, for me now the doubtless small levels of cross contamination in the pub glasses are sufficient to irritate my stomach. Given this is a similar sensation to the reaction to coffee (and that as I type this I'm on my 3rd black coffee of the day) then I have an answer for myself at least.
I think this is an example of how our reactions can change over time and what was ok in the past isn't neccesarily going to be so in the future. It's a little annoying in this case as I'm a little old to be getting a thrill out of drinking with a straw but it's not the end of the world and if I can still go out with friends and family and enjoy a soft drink then that's good news.
Thanks again for the kind words
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I often go out to a local pub. I don't drink any more so my order was typically a black coffee (eat your heart out Keith Richards). Most of the time it was fine, but several times I got horrible bloating, stomach churning etc. I drink quite a lot of coffee, always black and usually decaf without a problem, but the coffee from the pub was an issue, but only sometimes.
i asked and the coffee was made with one of the pod machines. I think, but don't know for sure, that my issues related to cross contamination from when different pods were used in the machine. I don't think it was gluten, more likely casiein / lactose related as CyclingLady says above. The answer of course is not to order the coffee, which sucks, but there you go.
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On 8/26/2017 at 10:08 PM, goonman said:
Thanks for your reply I've tested it about 4 times if its coincidental, the abscess comes back and goes away predictably everytime i cut off / resume gluten. I had a staph infection where the abscess was 4 years ago, it refills everytime I eat gluten. I have no rashes.
Thanks
It looks like you have an issue with gluten. If you search the forum you'll see others with abcesses which resolved once gluten was removed. Testing for celiac is probably your next step as RWG says. You'll need to stay eating it for the duration of testing.
Alternatively you could go gluten free as it does seem like it's a problem for you. The diet is quite a lifestyle change for most however and many find it easier with the diagnosis behind them.
More info available here. or via the forum faq stickied above.
Best of luck!
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I'm just a few days into magnesium supplementation and noticing more vivid dreams already.
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2 hours ago, Juan said:
OMG please stop, while well intentioned people are trying to help, none of this will.. Your daughter has parasites, the itching & crawling sensation is very real & internal. I don't know if coffee enemas are safe for a child, but would provide immediate relief. Least for a day or so. You'll have to research & work out a parasite be gone program..wish I could help with this one , but still trying to work this one out myself..Edgar Cayce said it's a good idea for everyone to do a 3 day apple cleanse every year for this very issue.. maybe try that & see if she doesn't feel better..I wish you the best of luck.
Hi Juan and welcome Please don't take this the wrong way. I know you're also seeking to help but the others responding here have been careful to offer suggestions but not conclusions. That may be an approach you'd also like to consider. Whether the child has parasites or not it's clear that diagnosis via internet forum post is not without its risks. Also one of the members here has previously detailed negative consequences of repeated coffee enemas over a number of years. It's something I'd be very wary about suggesting for a young child.
Personally I think CyclingLady's hit the nail on the head. A definitive diagnosis or exclusion of celiac sounds like a good place to start. A challenge may not be pleasant, but weighed up against a lifetime of potential uncertainty it may be a price worth paying.
Best of luck to you whatever course you decide upon!
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3 hours ago, Dawn_Ambrose said:
they stick wheat/grains in just about everything these days, why not your brew?
Because coffee manufacturers are rational actors looking to make a long term profit. Whatever temporary savings are made from bulking out their product with potential allergens would be dwarfed from the destruction of that brand once people started being sick and the authorities, media and retailers started testing the product. Just think about it, it doesn't make sense.
The other obvious point as CyclingLady alludes to above is that coffee itself can be hard on the gut. It doesn't have to be a gluten mediated reaction, just a response from an already tender gut.
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12 hours ago, OZDiver said:
Hello,
I am new to the glutten-free diet FOR ABOUT 6 WEEKS because I am trying to find a way to clear up my seborrheic dermatitis that I have since I was a teenager. Recently, it is all over my face as well, usually after light sun exposure. The dandruff is annoying and I was checking to see if it because of gluten. I really do not notice any difference with my skin. It has not helped. Should I give it more time?
Is 6 weeks enough time to start seeing results?
I don't want to be on any medicines. Shampoo's help, but not with my face. Any help would be appreciated. Thanks,
G'day and welcome
Going gluten free helped but it didn't get rid of the SD. The best shampoo was Nizoral due to the Ketonacazole active ingredient. I also find dairy, especially milk is really not good for my skin. Check this thread out too: https://www.celiac.com/forums/topic/75943-seborrheic-dermatitis/#comment-977173
"Skeptical" doctors?
in Doctors
Posted
Hi moleface and welcome!
I found your posts a tough read because I felt like I could've written them myself. I was raised to think of the doctor as all knowing and it's only through painful experience that I've taken them down from that childish pedestal and look at them dispassionately as either good, (rare) bad, (less rare) or mediocre (most of them). To be fair this now matches up to the medical students I knew at University...
Where celiac / gluten sensitivity is concerned however there's an additional ignorance factor to take in. Many of them have had little training. I saw one estimated they received half a day on celiac etc during their 7 year training period. I've had doctors assure me that one week on gluten is enough for the blood test to be accurate. Later finding out it was guess work on their part. There are so many bizarre ways that the condition can manifest and every case seems different.
I don't have any easy answers and my experience of US healthcare is limited but suggest.
Firstly, you need a fresh start with a good doctor and the Crohns is serious and needs treatment. Do the research, find a doctor that references celiac or intolerance issues, looks for online reviews, travel if necessary and write them a short letter detailing your previous experiences, the pain you are currently in and your need for help. You need and deserve good caring medical care and if you're upfront about past issues a good doctor will look to help. If they don't or refuse then you know they weren't any good in the first instance.
Second, I wouldn't even bother opening up the celiac or gluten sensitive box. You've excluded gluten from your diet a long time ago and you're not going back to it? So, just say:
'For your reference, years ago following health problems I decided to exclude gluten from my diet and I noticed a very significant response from my body. I did pursue medical confirmation but unfortunately the advice I was given at the time turned out to be incorrect and my subsequent negative diagnosis may not be reliable although my endoscopy did reveal other issues which may be related. Given my positive response to the gluten free diet I continue to follow it to this day and given there's no treatment available other than the diet I already follow I'm not concerned about chasing a celiac diagnosis.'
Document everything. Record visits, write brief notes. Before a consult have your notes in order and have any questions you have listed as concisely as possible.
Hi Dr I have noticed
Symptom 1, duration, Symptom 2, duration, Symptom 3, duration
Be concise, be organised, be polite, but do ask questions if you're not getting listened to and don't be fobbed off. Ask a closed question if you're not getting anywere. ie. Doctor given symptom 1,2 and 3 can you please explain to me how you have excluded Crohns as a potential diagnosis?
Finally you can take some advice from the ancient stoic philosophers and manage your own expectations to minimise the stress doctor visit causes. You won't get a whip smart diagnostician from 'House' although you may get one with his people skills I look at them now like mechanics. Some of them are better than others at different things and the small town guy who fixes every different type of car deserves respect but may not be the best person at recognising issues with an obscure Italian car from the late 70's. Just get what you can from them but this:
should be a bare minimum. If you're not getting that move on until you do.
Wishing you the best of luck!
Matt