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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Yes, I had many years of palpitations, missed beats etc. as well as very intense chest pains which closely match those of a heart attack. I had several ECG's in hospital ER, wore a 24 hr trace, had cardiac sonography and none of it showed up anything. When I removed gluten it cleared up, although if I've slipped up ever I'll get the palpitations back. There...
  2. Jmg
    I'm glad you did, its good to hear from you and your experiences will help others in the future. Best of luck to you and your daughter.
  3. Jmg
    Celiac was excluded in my case also Kirsty, negative blood and endoscopy. There are potentially more people out there with a problem with gluten who test negative for celiac than there are celiacs themselves. It's called None Celiac Gluten Sensitive or NCGS. It would explain both many of your symptoms and the reaction you noticed when you reduced yr gluten...
  4. Jmg
    Hello again and as ever, please don't apologise. It's nice to hear from you again, although I'm sorry things have been rough for you in the meantime. To this question: Yes. We have members here who had multiple negative or inconclusive tests and more than one endoscopy. It could be celiac, which may be one reason your consultant has asked for...
  5. Jmg
    Hello again Kirsty I think Ennis above and this post from GF01 have said it all: If your doctor wants to exclude celiac then at least you're currently eating gluten and the test can be performed. Once testing is complete I think you should properly come off gluten, even if you test negative. Your symptoms remind me a lot of my own before I removed...
  6. Jmg
    Ultimately you know your body better than anyone and I would not want to encourage you to do something which you feel would endanger you. From the outside it seems to me that if you react strongly to reducing gluten then you may well have a problem with it, either celiac or ncos and neither of those groups should consume any gluten whatsoever. I think...
  7. Jmg
    How long were you fully gluten free for Kirsty?
  8. Jmg
    Hi Kirsty, Gluten messes me up in a lot of different ways, some of which I recognise in your first list. You can find a massive list of symptoms associated with celiac here: https://glutenfreeworks.com/gluten-disorders/symptom-guide/ and it may be that some of your other symptoms can be found there. It's also worth searching this forum as it's been going...
  9. Jmg
    Yes, the beers which I'm referring to had barley listed in the ingredients panel. For example, this was one I was looking at made from malted barley. Here in Europe things are slightly different. As long as the 20ppm test is passed beers can call themselves gluten free, including ones which you would see called gluten removed. So they share the shelves...
  10. Jmg
    It's funny you post this as the other day I was looking at the supermarket shelves in the gluten free section. There was a very impressive choice of beers. A couple of years ago there would be one or two, but I think I counted 8 including a very tempting IPA and another real ale type alongside the more established commercial beers. I don't drink any...
  11. Jmg
    I'm trying to think of a chocolate treat you have over there that I miss. Nope... If one comes to mind I'll get back to you
  12. Jmg
  13. Jmg
    It's Tesco treat time again. The good news is they have a new chocolate gateau: The bad news is that it has replaced the strawberry one and I'm not as keen on it... I think this is in part because there's no shortage of chocolate desserts already whereas the strawberry one was something new. Anyway, it's 3 quid, very chocolatey and it gets a 6...
  14. Jmg
    I can understand doctors being cautious and wanting certainty before diagnosing a youngster with a lifelong condition that will limit their already limited dietary choices. Even so, his figures seem to make a very strong case and I wonder what their rationale is for waiting 3 months? That seems to be time that could be better spent getting him healthier on...
  15. Jmg
    You find a magic typewriter in an old musty box in the attic. It will allow you to write a message to yourself on the day that you found out you had celiac (or gluten sensitivity etc). You can include anything you've learned about yourself, handling celiac, good strategies for coping, how to deal with emotional issues, hostile reactions from friends and family...
  16. Jmg
    Thanks to everyone that's replied I plan to sort through these and bundle them up into a big ball of helpfulness. For now, here's mine 'I wish more people were aware that a negative test for celiac doesn't equate to 'gluten is fine for you, eat as much as you want'. That may be the case and in which case tuck in, but for some people...
  17. Jmg
    It is tough news and it's certainly not fair. Just maybe there may be some positive news coming for him however if he reacts well to the gluten-free diet. It could be he has improvements in his diabetes for instance. The diet is a pain in the xxxx but it does get easier over time and the choice of safe foods continues to expand. Wishing...
  18. Jmg
    Hello and welcome You've found a good site for advice and support. Google suggests there is a link between EoE and Celiac, but at the moment that seems to be as much as anyone knows: https://www.emaxhealth.com/12410/celiac-disease-increases-risk-eosinophilic-esophagitis https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471...
  19. Jmg
    You've done everything right so far, stay the course. Early diagnosis of crohns appears to be massively important in improving outcomes. If I were you I'd do as you'd planned and trial the gluten-free diet, although let your doctor know beforehand in case there's any impact on further crohns diagnosis. Very best of luck to you both.
  20. Jmg
    I love Aldi here in the UK, they are superb at providing labelling info for their regular foods, but it looks like you may be getting a much bigger selection of dedicated gluten-free food than we do! In part this is because the Aldis in the north of England dont get the gluten-free foods that those in the South and Wales get. I've been fine with one...
  21. Jmg
    Try to treat the first 6 months as a separate learning and healing period. Eat non processed foods where possible. Don't go overboard on gluten free bread etc. For travel, learn the safer restaurants and easily available foods and stick to those. Keep some snacks with you in case hunger strikes. Learn to read labels, gluten can be hidden in the...
  22. Jmg
    If you have a gluten issue then it can affect both those and many other parameters, but I take your point.
  23. Jmg
    Hello and welcome First, a negative test as a baby doesn't mean you don't have celiac. Things change over time. However, given you won't be eating gluten again I don't see any point in going down the testing route. You already have your body telling you not to eat it. You react to it, so you're likely either celiac or non celiac gluten sensitive...
  24. Jmg
    Hi These papers may be of interest: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1785098/ http://casereports.bmj.com/content/2016/bcr-2016-214874.abstract They both suggest copper levels may be low. Perhaps something to check? Also just on this point: I fully respect your position of wanting evidence before you...
  25. Jmg
    Did you notice any change yourself? For instance in the digestive issues you mentioned? My thyroid levels were deemed normal but the gluten-free diet addressed several symptoms consistent with hypothyroidism. I kept a diary which helped me track any changes over time, but it wasn't easy in the case of those symptoms. The change was very gradual.
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