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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Ah. You're not the only one to have a lousy experience with doctors but I'm sorry to read that nonetheless... Ok, so you may need to make some decisions on your best way forward. You may have celiac, it would explain the symptoms you've written about. You may have a problem with gluten called NCGS, which is what I have. Or you may have neither....
  2. Jmg
    I know you've posted that you have enough eggs as it is, but I'm going to sing the praises of the mighty omelette anyway Lily I have one each day and its a really easy way of bringing in different veggies as a filling, or maybe bacon or sausage if I'm feeling decadent. Lots of salads in summer, olive oil, cider vinegar and different things to go alongside...
  3. Jmg
    Hello again. It would be interesting to see if there's any other tests that have been ran. These are the ones in common usage at the moment: Anti-Endomysial (EMA) IgAAnti-Tissue Transglutaminase (tTG) IgADeamidated Gliadin Peptide (DGP) IgA and IgGTotal Serum IgA You've had the TTG which I believe is the most accurate and popular, but others...
  4. Jmg
    No problem If you look at the results they will typically name the test, provide a range guide which shows what a normal or abnormal result will be then provide the result itself. Of course different labs have different layouts. Here's a sample one http://www.holisticheal.com/celiac-gluten-sensitivity-test.html yours may differ. The important info...
  5. Jmg
    I thought I'd throw this question out to the community. If you had a magic wand and could eradicate one commonly held misconception about either celiac, ncgs, or both, what would it be?
  6. Jmg
    Hello and welcome I haven't done the test, maybe someone else can advise further, this site has some experienced and helpful posters. I do think you should see a doctor however and request a lab test. That's going to give you more certainty than any store bought test. If you write down a note of your symptoms beforehand it can help in putting the...
  7. Jmg
    What was your response, if any, to the gluten free diet?
  8. Jmg
    Thanks for the nice messages I was ok really, the discomfort didn't last too long and wasn't near a full glutening... I went on to experience similar symptoms once I switched to soft drinks, we have one in the UK called J2O, I was getting a similar horrid bloating and stomach churning such that I didn't want to go back. So on Friday and last night...
  9. Jmg
    Fast food is addictive, not simply due to taste but due to the way in which our bodies digest it. There is also some interesting evidence that suggests celiac/ncgs sufferers suffer an addictive relationship to gluten foods. I don't think this is proven, but it does fit with my own experience and that of others on here. One way to tackle fast food...
  10. Jmg
    Hello and welcome The main benefit of the endoscopy as I see it is establishing the level of damage, if any, and thus setting a baseline to test response to the diet. That and you need it for the diagnosis. There are benefits to a diagnosis, not so much in treatment terms (there isn't one) but in the ancillary support, nutrition levels, perhaps making...
  11. Jmg
    I tested negative, but still found gluten was a cause of a lot of problems for me. Finding out was like solving a dozen medical mystery's all at once! There's an enormous list of gluten mediated symptoms here: https://glutenfreeworks.com/gluten-disorders/symptom-guide/ Write a short list: Childhood issues tachycardia Growth Weight Etc...
  12. Jmg
    Hi and welcome Yes it can interfere with growth. It can also cause anxiety as well. So you have every incentive to get the blood test. You may want to note down a few key bullet points before you go to the doctors so you can make a good case for a test. Stay on gluten up to and after the test takes place. If its positive you will be referred...
  13. Jmg
    Hello and welcome Are your symptoms celiac related? Maybe. They're all things which could be caused by celiac or gluten sensitivity. It's a difficult condition to pin down because it can affect people in so many different ways. One thing which is not true is that you need to be experiencing diarrhea or other tummy troubles in order to have it...
  14. Jmg
    If you google almond binging you'll find you're not alone. There's some interesting theories from the paleo sites about our hunter gatherer past https://www.paleohacks.com/food/so-what-is-the-deal-with-nut-binges-19145 Whatever the ancestral influences I'd just like to endorse KarenG's post above. I think speaking to someone neutral but supportive and...
  15. Jmg
    I often go out to a local pub. I don't drink any more so my order was typically a black coffee (eat your heart out Keith Richards). Most of the time it was fine, but several times I got horrible bloating, stomach churning etc. I drink quite a lot of coffee, always black and usually decaf without a problem, but the coffee from the pub was an issue, but only...
  16. Jmg
    You may find these articles useful also: https://celiac.org/live-gluten-free/glutenfreediet/label-reading/ https://www.beyondceliac.org/gluten-free-diet/reading-food-labels/ https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/
  17. Jmg
    I've had kefir without problems but it was unflavoured I think. Although how certain are you that the kefir was to blame? Can you retrace your steps foodwise and see if there's anything else that may be suspect/subject to cross contamination? Are you ok with dairy? I've found myself if anything more sensitive to it since going gluten-free.
  18. Jmg
    To add to the good advice above. I think your husband has to take it on himself to communicate with his parents that this is a serious, medically diagnosed condition that their grandson has to live with for the rest of his life. He needs them to back you up, be supportive etc. On no account should you be cast as the fussy daughter-in-law who has to have her...
  19. Jmg
    I felt worse after I restarted gluten free diet after my challenge and had a rougher time than I had first time round. So I don't think its unusual. Give your body time to recover. Eat well, lots of good whole foods, maybe a decent multivitamin etc. Go easy on processed gluten-free stuff for awhile and avoid oats as well. best of luck
  20. Jmg
    It's a Yorkshire staple! I used to pass their then 'factory' just about every day when I lived in Sheffield, though apparently they've moved now and the Uni are going to turn their old place into a pub. The relish is lovely and marked gluten free and suitable for coeliacs on the bottle for added reassurance. It's nice to add a bit of...
  21. Jmg
    Hi Benjamin and welcome You've found a good site. Everyone above has given you good advice I just wanted to reinforce this point from Ravenwoodglass: Some people (like me), test negative for celiac but still have a problem with gluten. This is called Non Celiac Gluten Sensitivity and is not a well known or understood condition. Suffice to say...
  22. Jmg
    You're welcome I don't think any doctor should be too reluctant to request a blood test if you set things out for them in the right way. You have symptoms consistent with celiac/gluten sensitivity, you have anecdotal evidence (your positive reaction to going gluten free). So you have a good case. If and when you get some tests scheduled you will...
  23. Jmg
    Hello and welcome It can be scary and there's definitely a mental side to dealing with this which is at least as important as the physical. If available to you consider seeking out some counselling to help you process this. It was really useful for me, as were the people on this forum which is a great resource which you should use as much as you need...
  24. Jmg
    Hi again Long time since I lived down under but I'll give it a shot pending any Aussie members replying... Your naturopath has helped you and put you on what sounds like the right track, but now consider that you may be better off with a conventional doctor for the testing process. Be wary of food intolerance tests. They are notoriously inaccurate...
  25. Jmg
    Hello and welcome I don't think I've seen the report you reference. Obviously NCGS patients won't test positive for celiac antibodies but I'd not seen anything saying that they would never test positive for other conditions (If I'm reading you correctly). I tried to bring together the little that's known about NCGS here: There's info there...
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