Jmg
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Jmg
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newbie: emotional issues accepting Gluten Free Life
Jmg replied to Gma of 3's topic in Coping with Celiac Disease
Yes, I used to write a lot, for work and pleasure. Now, not so much. Which probably explains why you guys have to suffer the occasional bout of nonsense!- 8 replies
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newbie: emotional issues accepting Gluten Free Life
Jmg replied to Gma of 3's topic in Coping with Celiac Disease
I wrote a big moany rant! First few weeks are rough. It gets better as you get your head around it. But your response is natural and as SI says weve all gone through it. This is the process: https://grief.com/the-five-stages-of-grief/ Best of luck- 8 replies
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Gastritis or Glutening - Slippery Elm
Jmg replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry you're feeling poorly Have you seen this page: https://www.peoplespharmacy.com/2015/07/27/getting-off-ppis-can-be-a-challenge/ I think you can get gluten free DGL, maybe worth a try? -
Welcome! YES! Some of us who have problems with gluten do not test positive to celiac tests. There is a term for this, non celiac gluten sensitive NCGS and this could explain your symptoms. Having said that, it would be a good idea if you hunted down the actual results of your celiac tests and posted them here. It's possible that your doctors didn...
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Spot on. You know you're going in advance so in good time you write /phone (ideally write) and let the venue know. The manager can then let you know what the venue can provide and you can make a decision as to whether it's suitable for the child or not. If it's not, then you can negotiate on whether they can eat their own food, ie offer to pay for a...
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Quite new and worried
Jmg replied to Rebelliott's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Avocados are packed with good fats. Aldi and Lidl often have them on offer. You may be able to tolerate sweet potatos if you're looking for a carb. They're better for you than potatoes, lower glycaemic index and more nutrients. Ask the pharmacy if they can order in the folic acid variant your after or order it online? All the best! Matt -
The outcome wasn't good, but if the planning had gone on for that long they could've contacted the tavern in advance and either satisfied themselves about their standards or cleared the child to bring in a snack. Instead they've lawyered up and a great many people are going to go through a lot of stress which didn't really need to happen.
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Lack of motivation, adderal the solution?
Jmg replied to Victoria1234's topic in Coping with Celiac Disease
Many thanks for this I'm going to give it some serious thought... -
Gluten free issues
Jmg replied to Natasha927's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi and welcome Can you tell us a little about your diet? What are you eating on a typical day? You may find that some simple switches in food choices can deliver more energy and fewer spikes and crashes. This is something that receives too little attention, particularly from the medical community. It can come as a huge shock to the system... -
Surprise biopsy
Jmg replied to Mrs. Doodlepunk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hope it proves of use The Umberto Volta interview is particularly interesting and the case study from England also... -
Surprise biopsy
Jmg replied to Mrs. Doodlepunk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You have a few options. If your in a restaurant or cafe and want a safe meal, just declare yourself celiac or alternatively say 'no gluten please, it's a medical requirement' if you're uncomfortable doing this. The objective is for them to treat your being gluten free seriously and distinguish yourself from hipster part time fad dieters. With friends... -
Surprise biopsy
Jmg replied to Mrs. Doodlepunk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello One drawback is that there are no guarantees. You may go through the testing process and not get the answer you want or need. I did go through testing after having been gluten free and was stunned when I was told it was negative. By that point I'd gone through the challenge and seen various symptoms return so I thought I'd definitely be diagnosed... -
I look back at photos from a few years ago now and can see the inflammation in my face. I spent decades with my body fighting constantly without my really being aware. Freaked me out when I realised! Few things to think about: If up to 1% of pop are celiac, at much as 6% could be NCGS - further reading here: https://www.celiac.com/forums/topic...
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No Oj for me today
Jmg replied to Awol cast iron stomach's topic in Gluten-Free Foods, Products, Shopping & Medications
Absolutely nothing to apologise for Awol. I'm sorry for getting on my sugar hobby horse. In any case I'm a dreadful hypocrite, cutting out fruit juice but still indulging cravings for gluten-free cheesecakes and the like I wish I had some advice for you. Bone broth helped me, I think it can help leaky gut, maybe worth a try? Dr Fasano's diet could be... -
It was difficult yes, but on reflection worthwhile as the gluten challenge confirmed that a wide spectrum of symptoms were all either fully or mostly resolved on a gluten free diet and resuming it saw them reappear. Once you know this it doesn't really matter what blood tests say, you don't want eat gluten ever again, or at least I did't. It sounds like...
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Quite new and worried
Jmg replied to Rebelliott's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you tried making chicken or beef bone broth? Very good healing food for the stomach. Lot's of blogs online with instructions and even the process itself can be quite fun. Try treating these first 6 months on the diet as a special phase to kick start your body into healing. Keep a food diary and note symptoms and reactions. Once you've done some... -
Lack of motivation, adderal the solution?
Jmg replied to Victoria1234's topic in Coping with Celiac Disease
I have a similar problem. I feel like a different person these days, as if something broke inside me and I'm no longer as productive or goal oriented I'd be very interested in seeing if the adderall works if you decide to go with it. No it sounds interesting. I may give that a try I think I have some cocoa and I'm sure I can find hemp protein powder... -
Quite new and worried
Jmg replied to Rebelliott's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi and welcome You've found a great community full of wise people who have experience successfully negotiating just the things you're going through. So that's some good news to start. Course there's people like me here too... Take heart from the fact its very early days and you will have a lot of healing to come. Everyone slips up at first, don... -
Lab work came back
Jmg replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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No Oj for me today
Jmg replied to Awol cast iron stomach's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry it probably did read like that but I was just rambling! Ignore me -
UK Cuts Gluten-Free Food Prescriptions
Jmg replied to Scott Adams's topic in Publications & Publicity
It looks insanely good. First time I've wished I was back in London for ages Omg I have to leave the thread I've not eaten yet and now I crave steak -
I'm sorry that I can't lay my hands on it now but I did read a peer reviewed study on morbidity rates amongst non gluten-free compliant celiac patients that said that 1 slip up per month was linked to quite a scary increase in risk of serious complications up to and including cancer. That's not to say that will happen, just that there are potentially...
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UK Cuts Gluten-Free Food Prescriptions
Jmg replied to Scott Adams's topic in Publications & Publicity
One thing that struck me when I lived in the States (pre gluten free) was that much of your supermarket bread wasn't great and it seemed very expensive in comparison to the other foods in my grocery trolley. It took me awhile to realise that the bread in the UK was subsidised via EU common agricultural policy which accounted for the difference in price.... -
UK Cuts Gluten-Free Food Prescriptions
Jmg replied to Scott Adams's topic in Publications & Publicity
When this was introduced there was very little gluten-free food available and it could be inordinately expensive for someone on a low or regular wage. These days there's a lot more choice and although you pay a premium for gluten-free it's no longer massively more expensive, unless you're eating more of the processed gluten-free substitute foods than you... -
No Oj for me today
Jmg replied to Awol cast iron stomach's topic in Gluten-Free Foods, Products, Shopping & Medications
Hope you're feeling better soon Awol On fruit juice this: is how I feel. Orange juice is marketed as one of the healthiest things you can have but the reality is that it's a concentrated dose of sugar that hits the bloodstream without any fibre to slow down digestion. Try eating 5 oranges and you'll give up quickly, but you can easily drink the...