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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Hello and welcome Don't despair. I know just what its like to go in expecting the explanation you've been waiting for and being told the biopsy results are negative, It's a very weird situation to be in where you'd rather be told you had a serious condition because at least then you'd have some certainty and could begin to get better? You've...
  2. Jmg
    Most of the time I see people advised to cut dairy out here its in the context of just starting out on the diet, particularly when initial response is problematic. Given that I think maybe 10 to 20% percentage of celiacs may experience secondary lactose intolerance due to flattened villi I don't think that's bad advice as long as the missing calcium is replaced...
  3. Jmg
    Hello and welcome Yes brain fog is a very commonly reported symptom. Everyone's experience is different but in my case I noticed a lessening of brain fog very soon after going gluten free, but then there was a much more gradual improvement over time. It may help you to keep a food journal at this time, you can track any responses from your body...
  4. Jmg
    Hi and welcome Your's is a very natural reaction and one which many here shared. Take a look at this site: https://grief.com/the-five-stages-of-grief/ You'll probably go through these stages, or may indeed be partway through the process even now. The good news is that some of the way you're feeling may be physical, a celiac response to gluten...
  5. Jmg
    I think it would make a great gift for a pasta loving friend or relative! There's videos online for cleaning them: and I'm sure they do a good job, but I'd be worrying about a stray gluten particle. I guess you could like you say make a couple of dummy runs and give your friends some gluten free pasta they didn't ask for at which point...
  6. Jmg
    I found keeping a food journal helped during my challenge. Just noting what I ate, when, and how I felt. I used this forum when I noticed a change so I could get some reassurance that others had experienced a similar response. In my case my endoscopy failed to reveal celiac so the diary became doubly valuable, although I didn't get a celiac diagnosis I had...
  7. Jmg
    I'm one of those people that tested negative but still have a significant reaction to gluten. So follow the good advice above, but if and when testing is finished do go ahead and trial the gluten-free diet even if the celiac diagnosis is negative. You could find gluten is a problem for your son. Your Transatlantic cousins have a sort of answer...
  8. Jmg
    Whilst being too vigilant about the gluten free diet may cause me stress and anxiety, eating gluten is proven to do so. Over time I can get better at handling the stresses around following the diet, I have no comparable means of dealing with gluten induced depression, anxiety and brain fog (and the rest of it) other than avoiding provoking it in the first...
  9. Jmg
    Yes it's a bit intimidating to be honest, but there does appear to be very good results from it. Including people being able to reclaim foods that they were previously intolerant to after completing some time on the AIP diet. Check out the theory behind the 30 day reset: https://chriskresser.com/5-steps-to-personalizing-your-autoimmune-paleo-protocol/ Life...
  10. Jmg
    Hi Have you come across the AIP diet? http://www.saragottfriedmd.com/is-the-autoimmune-protocol-necessary/ I've not done it myself, I've been thinking about it since I realised my dairy issues were more serious than I'd previously realised. It does seem to have good evidence behind it although it looks difficult to do.
  11. Jmg
    Hi and welcome i was the opposite, I used to sweat profusely when I was on gluten. It was one of those things that I never expected to be affected but gradually resolved once I was in the diet. I don't think it was. Vitamin related, more to do with the way gluten affected my metabolism. Sweating is governed by the autonomic nervous system...
  12. Jmg
    I try and compost those sorts of things or stick them in a stock pot. I wish I had some Deer nearby instead!
  13. Jmg
    Hi and welcome Mandiee Individuals reactions differ and no-one here can diagnose you, but all the things you describe are amongst those reported for Celiac / NCGS so it's possible you and your doctor are on the right track. There's a link in this post which shows the massive numbers of potential symptoms linked with gluten. I've experienced...
  14. Jmg
    I think anything other than repeating CL's advice to tell your doctor would be superfluous Katie. The GI symptoms could be completely separate to the fever. They do sound like a glutening, but I tend to see gluten behind every corner and sometimes the butler didn't do it! Maybe the flu has caused your already sensitive gut to react defensively? Sorry...
  15. Jmg
    These 2 can be taken alternately: https://www.emedicinehealth.com/pdfguides/first_aid/fever-in-adults-treatment-61466.pdf
  16. Jmg
    Thanks for the update Ellie, as you've realised that's going to help others on the same journey. I'm sorry you're feeling sick but glad you've got an answer, regardless of the biopsy you should definitely be gluten free for life. You may want to think about being extra strict in the next 6 months and getting a blood test to check those levels come down...
  17. Jmg
    Hi and welcome It's considered a good test I believe for youngsters: http://www.cureceliacdisease.org/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease/ You also have positive response to the gluten free diet. I think you need to find a new doctor and consult with them. If you're after a diagnosis, that will probably mean...
  18. Jmg
    You're most welcome Others here have more experience of DH and will doubtless comment in time. Re abdominal spasms. Obviously I have no idea what fetal movements are like! but on gluten I used to get a feeling like someone had reached into my belly and twisted hard. That went after I went gluten free thankfully. Levels of depression and anxiety...
  19. Jmg
    Hi and welcome You've clearly done some reading already, you may be on to something, but only testing will establish that. DH is usually symettrical if that helps? Your regular doctor can probably get you an initial celiac test as well as referral to a specialists for the DH. A dermatology specialist can biopsy the skin alongside the rash to...
  20. Jmg
    Hi Jamie and welcome On a general note, be aware that most regular doctors don't seem to know an awful lot about celiac / gluten sensitivity / IBS etc. That's not necessarily their fault, they have to know a little about everything after all. As CL says above the 5 days you were on this diet is nowhere near long enough. Changing your diet...
  21. Jmg
    https://tenor.com/view/round-of-applause-applause-gif-8296097
  22. Jmg
    Don't bother trying to educate anyone that isn't a close friend or family member would be my advice! Tessa's approach seems right to me. Shut the conversation down and move it on to other things. If you're offered something smile, say it looks delicious but sadly you can't indulge, but don't let that stop you! Something like this for instance: Is...
  23. Jmg
    This is perfectly normal response and to be expected. Be grateful it wasn't novel length, some parents use my longer posts to punish naughty children and the insomniac society have me on retainer. Hmm, I think he needs to give serious thought to trying to track down a physical cause, thyroid like Pikakegirl says above or an elimination diet or AIP...
  24. Jmg
    Karen and CyclingLady have given you some good advice. I'm going to just jot a series of thoughts down in a list, hopefully some of them will be of use Changed mindset: My whole approach to food changed. It used to be one of the great pleasures in life and now it's become at times a necessary evil. I feel like I always have to maintain a level...
  25. Jmg
    Yes its true that testing is not infallible. Although even a negative test can still be helpful. My own test was negative, but because I kept a food diary during the challenge period I was able to tie the returning of various symptoms to eating gluten. My doctor told me to avoid it for life even though the endoscopy was negative. Ultimately it's your...
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