Ennis-TX
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About Me
To sum it up, I am a Celiac adopted into a non Celiac family. Took years to figure out what was wrong due to my birth mother refusing contact or releasing updated medical records. I grew up under a lot of stress and worry about what my body would let me do that day. I have turned my natural cooking abilities and overly sensitive palette into a great combination for figuring out what works best for custom flour mixtures and my own gluten free baking line. I have been selling at farmers markets and am currently have my own completely wheat free facility. I been selling Artisan Almond Butter and gluten-free Health oriented Baked goods for years now.
Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies
Corn, Whey
Sensitivities/Intolerances
Legumes (peanuts, peas, lentils), Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation
Gluten Free Bakery
Paleo Based Chef/Food Catering
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Chaparra reacted to a post in a topic:
Excruciating Back and Chest Pain from CC
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Change of career post diagnosis?
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Ucat reacted to a post in a topic:
Brain Fog Recovery.
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10 year old celiac and irrational, awful tantrums
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Reacting to certified gluten free foods.
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Reacting to certified gluten free foods.
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Reacting to certified gluten free foods.
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Reacting to certified gluten free foods.
Ennis-TX replied to littleMrs's topic in Coping with Celiac Disease
Some things I was sensitive to were resolved with digestive enzymes and changing up cooking methods on others. But in the end your best bet is a food elimination diet and finding the triggers and avoiding them for a bit. Many of my issues have gone away over the years with food intolerance issue, while others have stayed or cropped up. You mention processed... -
I think the vital what gluten was used before, I think the person did a few tsp a day of it? I do not think they ever got back to us. Vital Wheat gluten should be the gluten proteins left after the starch has been washed away. Google says a slice of bread is 4.8grams of gluten, so 2 slices per req. would be roughly 10 grams or 2tsp. For good measure double...
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Yep had the constipation issues for years, went regular after going gluten free. Now days my reaction is a different and the last exposure left me with diarrhea. You find your symptoms can change over the years with this disease. You might also find many other things and health quirks you took for granted will clear up once gluten free.
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daddymac reacted to a post in a topic:
Starbucks and Tim Horton Drink Options
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I would actually suggest avoiding anything that is made in the blender, even commercial blenders are prone to stuff getting stuck the seal around the blades. Odd I know but I have noticed it with the Blendtec I use. Your best bet would be sticking to plain coffees with syrups and what ever milk just poured in. I did fine with stuff like americanos with flavor...
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Could I possibly have Celiacs?
Ennis-TX replied to hayleedee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In addition to the above advice, I dealt with the constipation issue for years in the past. Was a bit weird since normal and even large doses of ex lax and miralax did nothing for it aside from a normal bowel movement (Think like the hole 8oz container of miralax for this). I found I had to use magnesium citrate or carbonate to get regular BMs years ago,... -
pinchy pain under ribs and muskuloskeletal pain
Ennis-TX replied to MADMOM's topic in Related Issues & Disorders
Hmm you might double check the oatmeal to see if labeled Gluten Free. They do often have contamination issues otherwise. Another thing to consider is like 10-20% of celiacs will react to oatmeal the same as gluten to some degree regardless of being gluten free. -
What am I doing wrong?
Ennis-TX replied to Vapor-girl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The elimination diet is a good route, garlic and onions give me issues when my gut is not happy (celiac or ulcerative colitis), high fiber foods and veggies in general were hard with my intestines causing gas and pain....I mean I was fine with smooth almond butter but rough veggies or just chewing nuts did not bode well. Are you fine with eggs? Not a meat... -
Ennis-TX reacted to a comment on a blog entry:
Head ache after eating
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Hemp and Gluten wtf
Ennis-TX replied to Ennis-TX's topic in Gluten-Free Foods, Products, Shopping & Medications
I did develop a issue with pea protein earlier this year causing some gastro issues. But the nuts/seeds are still in my diet without issues. I shifted away from flax and chia and rarely do I still use Hemp, the headache of getting stuff without issues was a problem. Still have some gerbs whole seeds that I sort the be sure and snack on sometimes or add to... -
Celiac and so many other issues...
Ennis-TX replied to LyndsRose's topic in Coping with Celiac Disease
Well Celiac never goes away, it is a genetic autoimmune disease (Gene can be dormant at birth but permanent once active). Sure the damage can heal in a year or so, but if you ever eat gluten the immune system will start attacking your intestines again and normally it is worse then it initially was. The other food issues trents mentioned should be considered... -
I have corn and dairy allergies among some others, I do get the red sores (mine are a bit more like blood blisters) in my mouth. But yes keeping antihistamines around is daily life. Some stores around here have a liquid version that taste awful but works faster/better. Food allergies are very common in celiacs, common ones are dairy, soy, legumes (peanuts...
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Bread
Ennis-TX replied to marriedmomm's topic in Gluten-Free Foods, Products, Shopping & Medications
As mentioned Rye itself contains gluten, best thing I have been able to do was make homemade gluten free bread with gluten free flours and used caraway seeds to help with that flavor. I played with that nearly 5 years ago so I do not recall the recipes. -
Yes I misunderstood when you mentioned blood test assuming she had had recent blood work done that still showed high antibody counts, follow up test do need to be done to check if they are going down which seems they have from a follow up comment. The mentioning of the new food intolerance/sensitivity/allergy issues trent mentioned are really common...
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Hmm my perspective is really quite skewed, my mother made very little attempt to keep the house gluten free and would cause me to get sick constantly. I still to this day do not trust her with my food 6+ years later. Other random incidents have drilled it into and I only trust food I make myself in my own dedicated place. Your daughters is probably at this...
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The distention makes me think you could have gotten gluten in somehow, perhaps some contaminated cookware (cutting boards, colanders, scratched pots/pans, cast iron, wooden utensils, etc). Double check everything on this note and consider a elimination diet to see if it is a new food issue or if a condiment/food you thought was safe is not. Also do not trust...
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It would have to be ingested normally to trigger a reaction, that said even the dust that you get in your nose and drains into your stomach trapped in the mucus would trigger a reaction to some degree (We have seen this with flour dust in others). I used to work in a machine shop, dust mask did not matter, you were blowing black stuff out of your nose after...