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cavegirl

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  1. Sorry to hear that your BF is so sick.

     

    I would check to make sure he isn't some how getting cross contamination from some where.  Gluten is everywhere even where you don't expect it.  It can be in hair products, toothpaste, mouth wash, makeup, pet food.  Like Colleen said, read the newbie thread and learn about cross contamination.  

     

    Your boyfriend also needs to be checked for deficiencies and followed by a MD.  If his doctor isn't sure what to do, be referred to see a Gastroenterologist. Three months down the road, you probably have a good handle on the diet but maybe seeing a dietician or nutritionist might help.  He might also have other food intolerances.  Dairy is a big one after diagnosis, it is digested on the villi in the small intestine and most celiacs have blunted villi and therefore can't digest dairy.  Soy and corn seem to be others that are common.  An elimination diet might be needed.

     

    Does he still have his gallbladder and appendix?  It seems like a lot of Celiacs have problems with those. They never seem to work right

     

     

    What would be the easiest way to find out all the foods he is allergic to?

     

    He still has both his gallbladder and appendix, though his doctor has mentioned his gallbladder before, but he didnt' really say anything else about it, so I'm not sure if he ruled that out or not. We have an appointment to see his primary physician this week to talk to him about the problems he's been experiencing. Really hoping to get him healthy.

  2. Hey guys,

    So, like all of you, I was, unwillingly, thrust into the confusing world of Celiac Disease. Let me just give you some background history.

    Andrew (my fiance) and I, began the "Paleo Diet" (gluten, sugar, grain, dairy, artificial flavor free, organic diet) on April 1, 2014. The reason for our lifestyle change was because Andrew had been experiencing constant debilitating nausea and stomach pain for months. (It was something he has delt with since he was a child, but recently, things got a lot worse.) I figured that diet change would help remedy the situation. Around this time, he also (finally!) got a referral to see a GI specialist. After spending only a few short minutes with this new doctor, she decided to send him for an endoscopy and a gluten tolerance test. We had already been paleo (and gluten free!) for about 2 weeks by this time. The doctor told him to eat gluten again regularly for about a week before his tests.

     

    Both tests confirmed the worst. It was Celiac.

    Once diagnosed, that was it. We didn't get a follow up appointment. We weren't referred to anyone to talk about what the next steps were, and how this could affect our lives. We were just thrown out, with this confusing diagnosis, left to fend for ourselves.

    Immediately after the tests, we resumed our gluten free, and paleo diet. We have now been on this diet for 3 months, and yet the symptoms continue.

    They seemed to disappear for awhile, but now Andrew is taking Phenergan daily again. He seems to do okay throughout the day, but every evening, like clockwork, (around7 PM), he is overcome with the sweats, and crippling nausea.

     

    Can anyone shed some light on what might be causing this? His doctor is, as always, at a loss, and just keeps giving him Phenergan, which just doesn't cut it because we want answers.

     

    Thank you so much, and I am really excited to be part of this community!

     

    Savannah&Andrew

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